wanting this to all go away

A few weeks ago I saw the cardiologist"s nurse. I asked her if I could go off plavix. She told me she would talk with the doctor. After a week I did not hear from her and I called the office. They told me they were both on vacation. The next week another nurse left a message that I could go off Plavix and continue with a baby aspirin and coumadin. both of these I take for blood clotting disorders that evidently lead to my heart attack. Yesterday when I had my INR taken they said it was too low and I should have told them I was stopping the plavix and reduced the aspirin. No one told me to call them!!!! Or that it would interfere. How am I suppose to know. I am not the doctor!!! Today my hematologist called and said You cannot take just a baby aspirin. But that is what my cardiologist said to do!!!
Sorry to go on but I am so over all this and just want it to go away!! I found myself driving my children around to their events trying not to cry. I was soooo excited about going off the plavix and I felt like it was a great step to getting back to normal. But it just never ends:)

By grace5
Posted August 21, 2009 at 4:19 am
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So sorry to hear about your experience, believe me I DO know how it feels. Nobody seems to want to take responsibility for a medical decision and if one does, another has the opposite opinion, meanwhile we bounce back and forth never knowing quite what to do, maybe they should just toss a coin, it feels like they do, this journey is just so full of ifs and buts conflicting evidence and advice and communication breakdowns. I feel your frustration, you are not alone!
Love, lidia xx

By heartmother
Posted August 21, 2009 at 9:44 am
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It is a strange comfort to know I am not in this alone. It is helpful to know that others have experienced the same frustration.I just have to continue to do my own research and seek out people I trust. Thank you

By lvfrogs
Posted August 21, 2009 at 4:26 pm
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Oh my goodness, I could write a book on doctors and one not communicating with the other. I am still struggling to get answers to my health issues and I do the research always! I found out my heart problem by accident. Anyway, just wanted to let you know that I have been in the same situation and I hope that you get it all straightened out very soon!!
Hugs,
Colleen

By Misty1482
Posted August 21, 2009 at 5:35 pm
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I had that issue once. I was on the coumidin and baby aspirin. I was taken off the coumidin by the doc that put my defibrillator in, well when I went to see my cardiologist they sent me to get blood work done. Well I didnt realize it until after I was in the little room getting prepped for the needle I asked him if it was the blood clotting they were looking for and he said yes, I said well the defib dr took me off of it. Just so happens he didnt communicate with cardio dr that he took me off it. So I'm just on the baby aspirin now. Your not alone in any of this, I'm sure no matter what the situation is, that at least one of us has been thru it.
Lots of love,
Misty

By gracie62
Posted August 21, 2009 at 6:21 pm
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I am having similar issues with my 16 year old daughter's doctors right now. A heartsister put what they put us through in sutuations like this into excellent words. Doctors can be "so territorial".

Hugs-
Dianna

By mysparetimedesign
Posted August 21, 2009 at 10:15 pm
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It is frustrating, embarassing and pushes yo back down from the advances you think you've made.
I am receiving nursing care now for three "holes or incisions" resulting from the surgery because when they were bothering me I asked my Dr. and he literally took a peak down my top (the two serious ones from chest tubes are at my waist) and said "yup they look good just slap on so Polysporin and it'll be fine.
Now the nurses are concerned with one spot that is a "hole" right now....and I'm dealing with nights I'm afraid to go to sleep cause of odd pains or twinges that last a while and scare me but who do I get this checked with, who do you trust or is any of this being documented for my cardiologist I see in November?
I too get so frustrated and "beaten down" in a sense that I fight the tears then burst into them while alone in frustration....
I know this isn't offering solutions but know that it's normal to feel this way, and not good medical practices on their part for sure!

By danm
Posted August 22, 2009 at 9:58 am
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This is a sad story, especially when you're taking control of your own medical condition. I do recall when I was young that Dr's did provide responses to patients and gave advice "in person." I wish I knew the answer to the question you've posed, however I would say this, the Dr. knows or "should know" and I suggest you insist on speaking to her/him personally. If you do insist, you will speak to the physicians directly. Anything else won't be good enough. I know people don't want to seem pushy and or to be too demanding, but the truth of it is, that American society in the main, not just medical dr's, has been retreating from personalized contact with its clients during the last 20 years. We can change that, but some may think it's being "pushy". If you have to be pushy, be pushy, because it's the only way you're going to get the attention that you deserve and pay for. I promise you it will work, even if the office staff doesn't like it.

All the best,

By danm
Posted October 16, 2009 at 10:22 am
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I wrote you a note in late August. I trust, by now, you have received the information, completely and accurately, from your MD and that you are on the right track for good health.

Best regards,

Dan McGinnis

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