NOTE: One of the women in my support group sent me this letter-if anyone has any suggestions please let me know!! Thank You
As I mentioned at our dinner (great idea, by the way) I have been losing strength and energy for more than a year. I finally got to see a neurologist, head of his practice, who told me after an extensive MRI, EMG, and blood and other tests, that the pattern doesn't fit anything as far as he can see, but stop taking the statins. He said my muscle enzymes were a little high. He referred me to an arthritis specialist and to others for more testing and a spinal bloc for pain (which I never complained about). He seemed very wary about saying too much to me.
My cardiologist had me have a doppler study of my lower extremities, which revealed some minor problems, another catheterization, which revealed more coronary artery blockage. She prescribed another statin, lower dose, and fish oil and gave me the name of a reliable red yeast rice pill. I have not seen any evidence that taking Lipitor or Crestor lowered my cholesterol one bit after nearly two years on the pills.
I finally found the list of symptoms I've been having on the Web on a page posted by a person who claims to be a rheumatologist. Perhaps the neurologist was trying to refer me to a rheumatologist with his arthritis referral (her found arthritis on my neck and spine, no big surprise). Anyway, it took me some time and phone calls with my primary care physician to find a rheumatologist taking new patients within my lifetime. My appointment is on July 8.
What I found on the Internet was (see attached for the whole post) statin drugs cause three types of muscle conditions. First, they can cause muscle aching. This condition generally reverses itself within weeks of discontinuing the drugs. Second, they can cause muscle pains and mild muscle inflammation that may also be accompanied by minor weakness. Blood testing for the muscle enzyme, CPK, is mildly elevated. This condition also generally reverses, but it may take several months to resolve. Third, statins can cause severe muscle inflammation and damage so that not only are the muscles painful all over the body, they also become severely weakened.
I stopped the statins some weeks ago, but have nevertheless moved into the third condition of general aches and pains, and find that simple tasks have become difficult, and even shopping at Costco is a challenge.No medical person I've talked to about this has been able to give me real help, if they even understand what I'm going through.
So, finally my question. Is there some kind of antidote that I can take to stop this progression?




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