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Hi Everyone,
Spuds brought to my attention that my first communication attempt had landed only in the cardiac bypass group. I wrote it several days ago and just since then have found many of my questions answered just reading past postings and replies right here. it seems about everything I am experiecing has not only been experienced by another but discussed as well. For instance, I ask about being fuzzy headed and found a discusssion with 47 replies! I certainly don't feel alone in my mushheadedness.

With all that said, I'll repeat my long list of questions anyway as it seems the more I vent and share, the better I feel and it's been a bit of a bummer day. Just me and my mind having quite a time of it, not to mention my unfamiliar heart. I've added a few details and more recent observations/complaints/whinings/ and anecdotes. Here goes,

I'm 52 and had a triple bypass almost eight weeks ago. Has anyone experenced the sensation of a pounding heart whenever they lie down. It's driving me nuts and preventing sleep. It feels as if my heart is racing when my pulse is actually a very regular 80 or so. This starts about mid day, everyday. This is my number one question.

How bout short term memory loss and a fuzzzy headed feeling. Memory was toast for first four weeks, but is much better now. I still have a difficult time concentrating. Making a sandwich takes effort. I had a brief episode this week of not knowing where to put my toothbrush after brushing my teeth and not knowing where to find a washcloth. The cardio's office just said to keep a log and bring it to next visit.
The surgeon's office said it was from anestheia and would go away in a few weeks.
I read all about "pumphead" but my bypass was done off-pump. I was stuck on vent for about 18 hours. Untrasound of carotid arteries was "normal."
Not sure, but have a feeling I've repeated myself several times my short time communicating with all of you.

Still having presurgery symptoms of sudden bouts of nausea, only relieved by lying down. Sudden feelings of being very hot. This is probably the scariest as nausea, that hot feeling and sweating were primary symptoms setting all this in motion. I haven't had that drenching sweating thankfully since bypass.

Episode a few days ago of irregular heartbeat (several skipped beats per minute) that lasted about half an hour. Wierd again, but felt much better after that.

Very tired, can be up and about for only a few hours before falling (carefully) into bed.

Lots of shoulder and collar bone pain, cracking and popping feelings, like should and collar bone just aren't in place. I had xrays already, they just showed arthritis. My GP says they really don't line the sternum up very well- not exact at all. She has quite a sense of humor.

Lots of numbness in vein graft leg, but have severe PAD as well. Leg still bruised and tender and incision (only about 2-3cms!) still not completely healed. Most recent wierdness is all the skin on that right foot peeled off- very neatly like a sunburn last week. Before bypass, left leg was worse. After bypass and use of right leg vein, right leg worse and toes on right foot sometimes turn purple. They can be rubbed back to normal, but purple isn't my favorite color. Has anyone had any procedure to open iliac arteries(left is 100% blocked but has collateral vessels, and right is "significantly" blocked). The idea of having something else done terrifies me but I'm not sure rehab will accomplish much with leg circulation such as it is. Not sure they'll even do it now anyway ("we'll talk about that in a few months")

Chest pain- not severe. Very mild actually, just freaks me out.

I've gained about eight pounds since surgery, weight fluctuates a lot, up and down up to three pounds a day. I quit smoking but don't seem to be eating near as much as presurgery (taste is just now getting back to normal). A little swelling and puffiness, but not enough to alarm docs (not much does). Is this typical?
Maybe it's simply the decrease in activity and I'll lose weight and even out once I start cardiac rehab.

When does all this go away?
Oh, I finally quit crying after about four weeks, but still get weepy at the drop of a hat, still feel very sad and like I've been deposited on another planet.
How long does it take before you start trusting your heart again? I hate to admit this, but I have a fear that I'll just drop dead any minute. Like Yesterday with my grandsons here, I had the thought when I started feeling tired, "It would be awful to have a heart attack in front of the children." Also, though I'm not afraid of being alone, I think about how awful it be for my partner or daughter to walk in and find me dead. I have that same thought about the grocery store or a resturant. I know all that sounds so morbid, especially after my optimism of yesterday, but the fragility of this human form is pretty obvious right now.

Any estimates on the life expectancy of rollercoaster moods? It's like Spring time in GA- don't like the weather? Just wait a few minutes and it'll be completely different.

I know I can't work yet. Oh, I could probably handle part time, but that's an option in theory only, but not reality (it'd end up more than full time again almost
immdiately). But in addition to that, I have no interest in a career that before bypass was pretty much my life. None. Repulsion would be a better word. I'd rather live in a cardboard box (that's probably not true, just a dip on the rollercoaster) than go back.

Incision still feels like it's coming apart sometimes though it's healed well except for a small seroma. I understand the skin sensitivity can last a long time.
Sensitivity, by the way, is a gross understatement. I'm usually in an oversized tee shirt with a bit V cut out or holding the fabric away from my skin.
Can't sleep without a shirt because two of our herd of small dogs sleep in bed with us and I'll wake up dreaming they are digging my chest open! That brings up nightmares- they are less frequent, but still occassional and usually involve my chest, saws, axes, ball bats and such.

Maybe it's my imagination but this lumpy place at the top of the incision seems to change sizes. One day it seems to have almost gone away, then another day it seems as big as ever.

Speaking of lumps, my upper abdomen, where the three neat little chest tube scares are, is so large (I've always been very small). I don't like it at all. Anyone have that?

A dear friend gave me a big basket of wrapped gifts after surgery. The instructions were to unwrap one each day. They included gifts like those blow up punching balls, a deck of cards, candles, and a magnetic note pad for the frig. The top of each page of the notepad says, "It's all about me." There were a lot of other gifts I can't remember (and vistors for that matter). Funny the ones I remember, deck of cards (wrestling with cards dealt?), candles (which I burned at both ends), punching balls (self explanatory) and the notepad...

By the way, my family sweetly told me of my behavior the day they moved me from CCU. Like mumbling incoherently, moaning, making pitiful faces then letting my head fall back onto the pillow from my upper jaw only, leaving my mouth hanging open, asleep as quickly as I was moaning. They dramatically act this out for me, too. I've asked them over and over to tell and retell all those days I can't remember, but frankly, some things I'd just rather not know. Though they insist they don't think I ever received adequate pain management, they admit to being ever so slightly amused at my drugged, though still in pain, state. Seriously, they were wonderful, never leaving, sleeping in chairs for five days. I wish I could remember how they must've smelled by then. They still come running if I so much as sneeze.

You ladies rock.

Thanks everyone, Allie

5 replies

Allie:

Where to begin? Check out my journal if you get a chance. You might see some of yourself in my entries and get a laugh or 2 at my experiences after bypass and how I coped. For about 2 months post bypass I felt like I had water balloon in my chest where my heart was supposed to be. It felt like it was going to flip flop right out of my chest at any moment. I had trouble with my sternum healing but no one would believe me. Doctors kept telling me the pain I was having was normal. They finally did a CT scan about 4 months out (just to shut me up) and discovered the top 1/2 inch or so had never fused properly. There was a lovely little callous inside there rubbing back and forth with every movement I made. Nothing they could do short of opening me back up and filing both sides down and rewiring - no thanks! It took almost 9 months for my sternum to heal all the way. I now have arhtritis in it, which is lovely on rainy days when the barometric pressure drops - we live in SE Texas, a climate considered tropical so I have learned to cope.

My journal will tell you a lot about what I dealt with and when the clouds starting lifting for me. I am just now starting not to worry about every twinge and ache in my chest and I am about a year and a quarter post bypass. Time will take care of most of the things you asked about and every one is different.

The best advice I can give you at this point is to keep laughing - both with others, at others, at yourself and any and every chance you get. A sense of humor really does wonder helping you heal inside and out and it sure beats the tears!

Take care -
Dianna

Welcome New Allie,
What a tale-- and so many questions! I'm not a bypass person(heart attack and stents);that said, I have experienced some of the same or similar feelings. I believe I was oxygen deprived b/c I didn't realize I was having a heart attack. I think that has an impact on your ability to concentrate, the emotional rollercoaster, and the overall feeling of exhaustion (along with the stress and trauma of your event). Took several months to even out after my event as I recall. It's been just over a year and I feelpretty good most days--but I'm warning you--I'm a year out and I still have moments of exhaustion. Respect them.

Exercise will improve your overall feeling of well-being, mood swings, etc. Go to cardio rehab if you can. As for the sweating, CAD plus menopause?? I found that exercise and becoming a non-smoker really improved my hot flashes--dramatically. Amazing, really.

Again welcome; we're glad you found us.

Best,Barbed

I just wanted to say "Welcome". This group is the best! Sometimes you just have to figure out where is the best place to post your questions. When I first joined I was definitely not putting them where they needed to go. I cannot answer any of your questions but I wanted to wish you health and happiness. Stay strong and definitely keep a sense of humor!!!
Penny

Thanks Penny. I'm so glad to have found all of you. Reading here is a lot like a treasure hunt with lots of treasures. Health and happiness to you. Blessings, Allie

Hi Dianna, I spent last night and this morning reading your journal. I've laughed and cried and felt both your joy, fear and pain. Just a couple of days ago, the tornado sirens sounded and we loaded all the animals in crates (six dogs, two cats) and headed to the basement. Other than a motion sensor light bulb getting hit by the hail, we had no damage. One of our dogs, Birdie, a four pound chihuahua/pom mix with a heart condition of her own (go figure) has major anxiety during storms, too. When you lost sweet Gracie, I cried as well. Our little Gandhi, tiny little chihuahua who was the little fellow who turned me into a dog lover in the first place, died suddenly last October. He was playing in the back yard one minute, gone the next. The guess is a bee sting- can evidently put even big dogs in shock instantly if stung in the mouth. He always loved to chase the bees, got stung on the nose when a small puppy. Circus tent over house...circus family members...counting change!...not meditating, I read a book about "How to meditate with your dog, talks about holding them in your lap and doing just what we do, not moving to not disturb them. All the joy of your grandson. I loved his willingness to be on his tummy when nude...and your admission of going braless and make-up bare. When we went out to eat the other night, my daughter said, "Are you really wearing that?!" I was in a low cut tank top, instead of a bra with my partner's size 3x sweat shirt (I weight 110lbs). make-up now is usually a dab of mascara and lipstick. the lipstick, by the way, has to be a paler shade. It seems the color returns very slowly to the skin. Anyway, thanks so much for sharing so much. What a year you have had. The storms, the MI, the sternum issue, the depression, your daughter's own health challenges...you must have one tough heart. Please give yourself a hug for me (gently of course) and feel my gratitude for you. Allie

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