Hi Everyone... My name is Kim. I am 51 and I was diagnosed with Prinzmetals when I had a heart attack at the end of July 2006. My angi showed I do not have even a partial blockage .
They didn't have much to tell me about Prinzmetals , only that it was rare and that I needed to keep the stress out of my life. I had the usual intermittant pain and funny feelings in my heart and had to take nitro on a couple of occasions but I didn't have another heart attack yet. They gave me Isosorbide to take three times a day along with the sublingual nitros for any sudden onset of pain. They said it is just an artery that wants to go into a spasm and cut off oxygen to my heart until it starts to kill the heart. I guess I would really like to know what makes the artery want to spasm. i have heard triggers are stress, vaso-constrictors, such as epinepherine (so I had to stop using nose spray) cocoane, and cold weather. I do not use cocoaine altho I do have a stressful family.
Just two days ago I reached my 6 month mark and was able to get a root canal I needed. They won't touch a heart patient until its been 6 months. I told them no numbing medicine with epinepherine so they used a kind without it. later that night after I got home, I suddenly got sick and swetty and began to have spasms. It feels like a heat flush goes through my chest and it is so screy to feel it. I took a nitro and it stopped but then it happened again so I took another nitro and my sister called the ambulance. I felt so weak and nauseated and dizzy. In the ambulance they gave me more nitro and then i started feeling better and over the long night in the ER I began to feel better as they monitored me and ran my blood enzymes which were ok and they let me go home close to morning.
Does anyone else ever feel their spasms as a severe heat flush like that? And it makes me have diareaha too. When I had my heart attack, I got sick and threw up twice. I don't know what to expect or what anyone else goes through with this cause its too rare to find someone else who has it to talk to!
The doctor seemed to think that the carbocaine or whatever they used at the dentist should not have cause that to happen but I got the impression that none of them really understood or were familiar with Prinzmetals, and also one of the letters I read here said that doctors don't have much interest in a Prinzmetals patient because they aren't a surgical fix. I believe that is true! There is no excitement and blood and gore so they are mostly bored. Meanwhile, inside my chest, its anything BUT bored! How scarey a feeling!
And there are other things you can buy OTC like for colds, that have epinepherine or other vaso-constrictors in them ,...if I am not careful I could accidentally buy something and give my self another heart attack but nobody told me this, I found it out by reading about Prinzmetals online.
What I DON'T know could probably fill a book! I accidentally forgot and used nosespray once after my heart attack and within an hour or so My heart was pounding like crazy and skipping beats every 3rd or 4th time. It felt hideous. i couldn't lay back and relax. I finally had to take a xanax from my sister toget it to calm down so I could sleep. My doctor says she hates xanax and will not ever prescrible them. That makes me wonder what is a patient to do that has to control stress, and isn't given anything to help the stress.
I work as an in home care provider for my sister who has MS and coronary artery disease. Her grown children are bi-polar and cause us a great deal of stress and grief almost on a daily basis. We change phone numbers and live behind locked doors out of fear and exasperation.
Her doctor knows the situation and prescribes her xanax .
I don't know why my doctor thinks badly of it, or if theres anything else that she would approve of.
What symptoms do you all have and what do you do for the maintenance of the stress and
for the pain and the spasms? Has anyone had a bad experience beyond the 6 month mark? Does anyone else experience trouble with vaso-constrictors like epinepherine? what else do I need to know?!
What should I expect here?! I am a total newby at this! Anyone with any helpful advice and/ or warnings, I would love to hear from you. Tell me about your experiences so I can have something to compare to! I am firstname.lastname@example.org .