Introducing myself as a newbie :). My story. I think I hold a record from reading here on stents. I have a total of 25. My first HA was at 35. Im now almost 48.
I have had all the crap from ER's thinking Im crazy but I have a good Cardio Dr. My last happening was in Sept and I was being awakened in the middle of the night with severe chest pains. Nitro took care of it but I complained to my Dr. He did HC and I had a blood clot flapping in the last stent I had 8 months before. He even said he was surprised I didnt have a HA.
I usually pass all EKG's, Echo's, and Stress tests. Matter of fact those tests say my heart is getting stronger. From 10% to 60%. Only an HC shows whats wrong.
ER's are terrible, I can tell when they dont speak to my Dr and they spoke to someone that was on call. THey pass it off as a panic attack and send my home. So I just bypass the ER and go directly to my Dr. I remember one time I laid there in the ER for 10 hours while they discussed admitting me or not because my blood tests and EKG were normal.....I had a clogged stent.
This last time I felt fantastic after he fixed the blood clot. I started EECP, which I do every 2 years for just maintenance. But now Im having problems again and I think it is the Effient doing it. He switched me from Plavix. So now Im back to Plavix and have to wait until the Effient gets out of my system and see how I feel.
They think that most of mine is genetic but also because I had CML a type of leukemia for years and it wasnt detected until I was 45. This type of leukemia can hide in your system/organs and it will just show a elevated white blood cell count until it turns to an acute leukemia. You wanna talk about an expensive drug? Try $9,000. Yes I said $9,000 for a months supply to keep my leukemia under control.
I feel for everyone in here. I know the scary feelings, the uncontrollable CP, ER's thinking you're crazy and the big feeling of sometimes just wanting to give up. Im sitting here right now with palpatations.
Its funny during EECP I can actually shut down the machine with my weird heart. My tech just shakes his head and I shrug.
So I wanted to say to all, YOU ARE NOT CRAZY.