How to rate pain??

I've been told by one doctor that I have Prinzmetal Angina because of the sporadic chest pain I was having. This was AFTER my first stent when I continued to have chest pains. She quit her practice to move on to better things. I went to a "top doc" cardiologist in the nearest city who said my chest pains were NOT heart related if they weren't CONSTANT. So, I didn't tell him when pains were bad and coming more frequently last winter. They weren't constant. I had pains while seeing GP with my 96-year-old dad. The GP sent me for a stress test which showed a slight problem. He sent results to Cardio who recommended a cath which surprised me but was glad because I did need a stent (my second). I have continued to have chest pains even while on more meds. He said I'm just fine and to quit worrying. I don't think I worry but, darn, when I get chest pains that make me stop whatever I'm doing I have to wonder what is going on.
I sought out another cardiologist who said I DO NOT have Printzmedal angina, simply microvascular and vascular disease but don't worry because IF it is your heart, the pain will be constant and you will KNOW it if it is your heart.
That brings me to my question (and this is probably very weird/silly on my part). What constitutes bad enough chest, jaw, arm pain to call doctor, go to ER? I live alone and in a very small town. My kids live an hour away near a big city. They think I have a very low pain tolerance. I don't think so but I sure doubt myself any more.
I had pains this past Saturday that started in my chin/neck, went imediately to my chest and between my shoulder blades. I was driving on an interstate highway and couldn't pull over to get my Nitro, which I didn't want to take while driving anyway. I made it to my daughters about a half hour later. I still had pains but they had lessened. On a scale of 1 to 10 and 10 being "take me to an ER, I think I'm dying" I would say what I experienced while driving Saturday was a 7, maybe 8. Not horrible but I was getting very stressed, worried. I could feel my heart racing and I got hot and sweaty. By the time I got to my daughter's it was maybe a 4/5. I didn't take the Nitro then because I didn't think I should for that low of pain. Plus I still had to drive an hour home later in the day. Nitro gives me a bad headache plus I feel weird afterwards. I continued to have "twinges" the rest of the day. However, nothing since.
I'm not one to go to the doctors. I usually wait - sometimes too long. I waited too long once for a cold/cough only to go into pneumonia. I've never gone to the ER even though I passed out once while "on the throne" during the middle of the night. I woke up on the floor wondering where I was. God only knows how long I laid there. I crawled back to bed and went to sleep. Next morning I went to GP because I had a big knot on my forehead. Turns out that time I had a UTI. I'm sure if my husband had been around I would have been at the ER but...
How does a person know what to do, when?
I'm goofy, right?

8 replies   

Here is the pain scale I have been told to use. I tried to find one with facial expressions with it, but most of those only go to 5 so it didn't really figure into how we rate our pain here in the US.

http://www.tipna.org/info/documents/ComparativePainScale.htm

If it helps more at my drs. and hospital number 8 is you are crying and usually my pain level on bad days peaks around 6-7 as I am not crying but it is written all over my face and my pain level is considered moderate to almost severe. The drs. and nurses who see me regularly can tell my looking at my face what kind of pain day I am having. In fact we have a joke between my Cardiolgist and PCP that 2 years after this Thanksgiving I had Triple Bypass and then 3 months later I had to have my gallbladder out, well after the surgery they had put me on a demoral pain pump, but both my Cardiologist and PCP both looked at me and said I think this is the best I have seen you look in a long, long time...and then they took away my pain pump!!!! How WUDE!!!! ROFL

Anyway hope you start feeling better soon!!!

Best wishes,

Cindy

Thanks Cindy. Both of your posts helped. It seems odd I don't know how to accurately described my pain. All I know is when I get the pains it worries me but I can't bring myself to call the doctor or go to the ER and get checked out. I tell myself it must not be THAT bad. Thanks

The pain scale is completely subjective. I tell my patients to just say the first number that comes to them. The value in the pain scale is having a way to quantify your experience and help you compare different episodes of the effectiveness of treatment. It is not valuable as a guide to when a person should take a medicine. As far as your chest pain, you should take your nitro when ever you feel it. You can head off bigger episodes by treating at the first indication of angina.

Let me address what these doctors are telling you. You absolutely CAN have heart related pain that comes and goes. That is called angina. When you have angina, you need to rest and take your nitro. Sometimes it will stop with with rest alone. Triggers may include exercise or exertion, strong emotions, worry or anxiety, fatigue. Also vasoconstrictors like caffeine may trigger angina. Before I switched to half-caf I would get "second cup of coffee" chest pain.

I think when they say the pain will be constant, they are referring to having an acute event such as a heart attack. That is called unstable angina and requires emergent treatment. Some cardiologists fail to address the every day angina pain people have because they get so focused on acute coronary syndrome. This is irresponsible and does a real disservice to their patients. Personally I always found the "don't worry about it" advice insulting to my intelligence and usually uttered by a doctor who did not care to treat my ongoing unfixable condition. Try seeing a cardiologist who does not do interventions (stents) they tend to be more focussed on chronic care than interventionalists.

Also, you probably want to stay away from small town cardiologists and go to someone in a big city. They tend to be more up to date.

Thank you Yarnkitty. You gave a lot to think about. It makes sense what you said. I appreciate your help. k

Hi Everyone, im new to this site..........and from England :) After having severe chest pain 2 yrs ago i was taken into hospital where they proceded to do all the usual test for heart related issues, first the stress test, which i never really got told if it was ok or not, then had to have CT scan where they found SLIGHT plaque build up in LEFT ANTERIER ARTERY, then putting me forward for an angiogram ( which i put off going 4 times, due to me being slightly scared) anyway eventually went Feb this year 2012, wasnt the most pleasent procedure, and had trainee radiologist do procedure. After it was done i had to lay flat for an hour ( no pressure on cath site ) as had angio seal, ( all done through groin area (right side) and after an hour i could go home,..........told to rest up for a couple days................BUT on that evening whilst in bed rolled over onto my right side and the pain horrific ( worse that child birth) my BP dropped and i collapsed, my groin area was swollen to size of golf ball, my partner rang an ambulance and i was taken into hospital, they didnt do much just routine bloods etc, and then allowed to go home, 2 days after this happend i ended up with a Hematoma from my groin area across pubic bone down right thigh to back of my leg , i could not move at all had severe pain in my leg, went for 2 ultra scans and was told to rest, it took 3 mths for the bruising to go............................................Now 7 months later i still have weird pains in my groin area..................my diagnosis was my heart is fine thank goodness, no stenting but was told i had coronary heart spasms due to stress, and i smoke ( not GOOD) ..........................SINCE I WENT FOR ALL THIS PROCEDURE I SERIOUSLY have not felt right, i worry constanly as to wether they have the diagnosis correct, i am also menapausal which isnt helping matters, and cannot take HRT..................................................sorry to go on its just so sressful and worrying as i just dont feel myself anymore.............................

Wow Elli, you have really been through a great deal!! What you are experiencing is completely different than me. My pain is completely in my chest, back and/or jaw. I can't imagine what you went through. Please take care of yourself and continue to look for a doctor who will help you not only with your heart issues but also with your stress. Stress can do awful things to our bodies. I'm a fine one to talk because I have a tough time keeping my stress level at a reasonable rate. But, that is what I strive for!
God's blessings,

Elli...I am just looking in to something called Femoral mono neuropathy....damage to femoral nerve during angiogram one of causes....anyway, symptoms of pain associated with it you may want to sort out....not sure if relevant but it has taken me a few years and lots of 'mysterious' numbness and leg and back pain to want to get to the bottom of the debilitating pain....heart issues keep medical team from focusing on the other aches and pains, but I need to get a handle on why I can't walk more than a few blocks.... Sz

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