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Any Experience With This?

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I am a 54 year young woman and I have a plethora of respiratory problems that just weren't stabilizing. I was told that if I lost weight I would probably improve. Well I had a Nissen procedure for my Barrett's and have lost almost 100 lbs and still am progressing. I was going to National Jewish for over a year and they determined I had several things wrong, including lung aspirations from silent reflux, asthma, COPD and a borderline case of pulmonary hypertension. I just kept progressing and KNEW there was something else was wrong. I could tell the pain, that I thought was in my lungs, was different from lung pain, and was chest pain. I had all the tests last year, cardio and pulmonary and they diagnosed me with the above respiratory problems but kinda downplayed it, and said they didn't think it was my heart. Well this past year, the pain and other symptoms kept getting worse and more limiting. Along with this pain is a more pronounced shortness of breath and heavy fatigue. Also I noticed my nebulizer increases or even sets off these symptoms. Usually when I rested that pain went away, but more and more if it got bad, it would take hours for it to go away. In February I went back to my pulmonologist in the small town I live in and he ordered a night time pulse ox and it came back that for over 400 minutes that night my o2 was below 88. He ordered me oxygen at night and another echo. The cardiologists here in my small town that read the echo said it was mild pulmonary hypertension and the report said my RSVP went from 30.9 in the echo I had a year and a half ago to 41.9. I wanted to go back to National Jewish doctors rather that the small farming town I was in. So, I got an appt with a cardio dr at NJ. He told me those tests were only 50-50 accurate and he doesn't think I have pulmonary hypertension, he thinks I have a PFO the Patent Ovale Foremen (I think that's how you spell it..) I am scheduled for a cardiac cath next week in Denver at one of the top hospitals that do this procedure. I'm trying not to be too freaked out over it. I was reading the other posts on PFO's and it does seem to be standard, but my chest pain, which I guess my doctor says is angina is progressing still and I am very limited on my activities. After a couple errands I have to come home and sit or lay down to stop the pain and if I don't stop in time the pain won't go away for hours. (One time last week it was so bad I almost went to the Er, but took an aspirin and it diminished and finally went mostly away.) I read on here a perfect description of the pain, an elephant sitting on a golf tee on my chest.
I guess my main question is anyone had the cath closure done and did it help? The doctor is naturally going to check my coronary arteries and check the pressure in my pulmonary arteries as well to determine if I have pulmonary hypertension. He says he doesn't think I do.
My father and his side of the family do have heart disease as well as lung disease, so it is in my family.
Anyway, any words of wisdom and reassurance will help!

4 replies

Welcome Katie! I have no personal experience at all that could help you, but I can say good luck, there are lots of ladies on here able to give good advice and reassurance, which I'm sure they will!
Hugs, lidia xx

I'm leaving for Denver today and have my cardia cath on Tuesday.
Keep me in your prayers, send me good thoughts and positive energy....
I hope they can at least find a solution, so I can stop feeling so crappy and get on with my life!
Thanks to you all, I'll let you know my results!

Safe journey Katie and good luck, I hope you'll back very soon with good news!
Sending positive vibes to you from across the pond,
Hugs,
Lidia xx

I wish you all the best. I am anxious to hear all about this as I am so similar. I am suppose to have a cath to check my pressures also. I also have the respiratory mystery.
Good Luck,
Annie

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