Inspire connects patients, families, friends and caregivers for support and inspiration... More about this group

Checking In

  • By SeeGirlLive · New reply 10:19 pm
  • Journal · 15 replies
  • 4/17: I tried just now to stand up and walk to the lamp so that I could turn it off. I got dizzy and started seeing flashing lights in front of my eyes. It’s like in Speed Racer! Now I’m laying back down ...

This Girl kicked Cancers Ass !!!

  • By Trishyff · New reply 9:10 pm
  • Journal · 48 replies
  • I did it, I did it....Today I got the results of my CT scan, NED baby !!! I am so freaking happy, I cant control my emotions. One second I am laughing then I am crying. This has been the craziest, most ...

Which surgery would be best

  • By ciom2023 · New reply 3:09 pm
  • Journal · 7 replies
  • I had my biopsies on Tuesday, where the urologist took from 4 locations in the bladder. Now while I wait for the results, I'm beginning to think about the type of surgery I'll be having. I'm wondering ...

Completely Drained

  • By SeeGirlLive · New reply 12:17 pm
  • Journal · 82 replies
  • I am extremely tired. Impossibly exhausted. I haven't been online much because of it, so if I haven't replied to you, communicated with you, or updated anyone on something, I swear I'm not ignoring you ...

Force Feeding

  • By SeeGirlLive · New reply 11:24 am
  • Journal · 25 replies
  • Today is Chemo 5 Day 1 My WBCs were still low, but higher than they were last week. My RBCs were almost normal. I did have some random bruising. I'm still having some electrolyte imbalance issues which ...

Be VERY careful about your DR.

  • By armywife199 · Posted yesterday at 12:42 pm
  • Discussion in Finding a doctor/second opinion · 0 replies
  • 2014/04/16/Brain-Surgery-Patient-s-Obama care-Plan-Denies-Meds-Drops-Doctors A New York woman suffering from a neurological disease that has required four brain ...

Is three times the charm?

  • By ciom2023 · New reply yesterday at 9:44 am
  • Journal · 12 replies
  • On April 15 I'll be undergoing a biopsy of my bladder where my urologist will take tissue from 4 sections of my bladder. Then I will be having surgery to hopefully remove the upper portion of my bladder ...

First Journal Entry of many, I hope.

  • By AmyJeanDev · New reply yesterday at 3:44 am
  • Journal · 4 replies
  • Hello everyone, I hope you are all feeling great today and have the courage to fight and win this terrible GSB. I am not having any passive days for the last two seats. I am newly diagnosed, in the end ...

Maybe I want to stay positive...

  • By Trishyff · New reply yesterday at 1:40 am
  • Journal · 14 replies
  • I know I can call my ONC and get the results from my CT scan but I have an appointment on Thursday. I know it sounds silly but I know on Thursday when I find out the scan will be clean ...

Caring for lymphedema

  • By dribrook · New reply April 16, 2014
  • Journal · 3 replies
  • Lymphedema, is a common complication of radiation and surgery for head and neck cancer as well as breast cancer. It is an abnormal accumulation of protein-rich fluid in the space between cells which causes ...

"A wake-up call from a young e-patient: 'I need to be heard'”

  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Forewarning- America I am on my way!!

  • By snettie · New reply April 15, 2014
  • Journal · 30 replies
  • What a difference a whole twelve months can make to your life. Last year I was regularly visiting this wonderful site gaining support, wisdom and more importantly friendship across the atlantic. Worried ...

The Wait Begins .....

  • By Trishyff · New reply April 14, 2014
  • Journal · 19 replies
  • I had my CT scan yesterday to find out where this cough is coming from and made a decision to not tell anyone in my family (only my husband). Wow, was that a huge mistake, my daughter came to the house ...

Yucky cough....

  • By Trishyff · New reply April 11, 2014
  • Journal · 10 replies
  • So i have been experiencing a dry cough for the last few weeks and my oncologist decided today he wanted a CT scan scheduled for tomorrow. I have to say I am pretty nervous about this and in fact it pretty ...

A new journey begins

  • By 7Traine · New reply April 10, 2014
  • Journal · 4 replies
  • So I posted a month ago about my brother being diagnosed with stage 3 colons cancer.. He started his first treatment of Folfox today. I know he will do great. 2 weeks ago I had surgery to remove a mass ...

Update on my New Normal...

  • By Trishyff · New reply April 9, 2014
  • Journal · 9 replies
  • First let me get this out...LUNG CANCER SUCKS!! ( I feel better already) BUT I started my week trying to find my New Normal which was a little interrupted by a little drama at work but I was still able ...

I'm Happy For You?

  • By SeeGirlLive · New reply April 8, 2014
  • Journal · 15 replies
  • I've waited a little to write about this, but I can write about it now. My sister is pregnant again. Now, this was not exactly intentional, but neither was my niece, and she is the best thing that has ...

Eating Dusty Socks

  • By SeeGirlLive · New reply April 8, 2014
  • Journal · 29 replies
  • My calcium is extremely low. That may be why the tingly feelings and not neuropathy? That's an easier fix. I guess I will find out once this calcium is done. If anyone knows a way to make food taste less ...

One Year Annivesary

  • By FMiller · New reply April 7, 2014
  • Journal · 5 replies
  • Rest in Peace, Hilda Reese “Love you around the world and back ...


  • By Trishyff · New reply April 7, 2014
  • Journal · 8 replies
  • Okay so I have a silly question....I was born with 2 birthmarks both of which was on my leg. Since going through my chemo treatments they have both disappeared. Is this common? Will they come back? Kinda ...