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Treatment options
Questions and answers to the various pharmaceutical options. Medical treatments that worked for others.
Liver Presentation and Exercise
- By Aang · Posted February 3, 2009
- 0 replies
- I'm male, 38 and have cirrhosis. I've had multiple bandings; too many to count. I wasn't diagnosed until the age of 31. I'd like to get in better cardio shape and lose 25 pounds. What are my limitations ...
TM
- By mgraper1 · New reply January 25, 2009
- 6 replies
- http://www.reuters.com/article/pressRele ase/idUS43799+29-Nov-2007+MW20071129 ...
Wilson's disease in Mexico
- By Atorres · Posted January 23, 2009
- 0 replies
- My 14 year old daugther was recently diagnosed with wilson´s disease. She is under Penicillamine tretament and about to start Galzin. Any help or recomendations to follow up the treatment and consequences ...
Message for mamaof2
- By Sutopi · Posted January 22, 2009
- 0 replies
- Message for mamaof2. Hi I read that your son is autistic as well. So is my 5 yrs old son. Did the treatment for WD helped at all for his autistic symtoms or it is just an extra disease to have to deal ...
Has any one tried homeopathy for wilson's disease?
- By GH · New reply January 22, 2009
- 21 replies
- Has anybody ever tried homeopathy for cure of wilson's disease? What are results ...
Zinc side effect- loss of smell and taste
- By minmyo · New reply January 20, 2009
- 2 replies
- Does anybody have knowledge on side effect of Zinc; loss of smell and taste? I know that I cannot afford not taking zinc. Has anybody got treated regarding loss of smell and taste? I love food and I cannot ...
Patches on my hands and legs
- By RICHA · New reply December 22, 2008
- 13 replies
- Hi there I am a WD patient. I would like to know that is there some cure for the black patches which WD patients usually have on their body. I discussed this with my Doc but she said that it will be better ...
Penicillamine from internet in Canada
- By GabsMom · Posted August 19, 2008
- 0 replies
- I found your group and hope you can help me. Our dear 8 year old lab Gabby, has just been diagnosed with doggie Wilson's Disease. The liver biopsy is full of copper, her liver enzymes are 5 to 6 fold ...
Zinc Gluconate vs. Zinc Actetate (Galzin)
- By sonny · New reply June 29, 2008
- 11 replies
- I've been on Galzin since I was diagnosed in 1999 and doing great. I recently moved over seas and Galzin is not available (at least that's what they're telling me). The local doctor prescribed Zinc Gluconate ...
Trietene?
- By alysa88 · New reply May 28, 2008
- 3 replies
- Okay, so I was diagnosed with WD when I 13. I went on the double blind study at the University of Michigan with Dr. Brewer, after being on the study for eight weeks I was released and put on Zinc Accetate ...
Use of Vitamin E orally
- By mamaof2 · New reply April 21, 2008
- 3 replies
- Hi all, My 9year old son has Wilson's. He has been on T for almost a year with no changes in any of his levels. In the last week the GI put him on a vitamin e supplament and all of a sudden he started ...
Shower filters?
- By Bronwyn · New reply February 15, 2008
- 1 reply
- Hi there! I was just wondering if anyone uses a shower filter to minimize copper absorbtion through the skin?! Does this option strike people as a good one, or over the top? ~Bronwyn ...
trientine (syprine) is not sold in Canada?
- By mic · New reply February 5, 2008
- 2 replies
- trientine (syprine) is not sold in Canada? Is it true ...
FDA rejects Pipex's application for TM
- By Bronwyn · Posted January 29, 2008
- 0 replies
- Devastating news for the Wilson's community. Today the FDA rejected the application for TM's approval. Press release: http://news.moneycentral.msn.com/ticker/ article.aspx?Feed=MW&Date=20080129&ID=81 ...
Carnosine?
- By Bronwyn · Posted January 15, 2008
- 0 replies
- Hello, A friend just told me of an amino acid said to help with chelating copper, carnosine. Ay body know of it, or use it? Feedback would be appreciated. Bronwyn ...
Any Australians in here or know of any with WD?
- By Rose5 · New reply November 18, 2007
- 6 replies
- The reason I ask is................where are you/they getting your medicine from?? We have red tape on everything ...... Did your doc tell you that you cant have anything else apart from penecillamine ...
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