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Treatment options
Questions and answers to the various pharmaceutical options. Medical treatments that worked for others.
Taking Syprine & Zinc
- By chadsmom · New reply July 1, 2009
- 20 replies
- Can you take syprine and zinc together and both work ...
Stopping copper
- By chadsmom · New reply June 26, 2009
- 9 replies
- Has anyone found a way to stop the copper being pulled out of the blood from going in the brain and causing the neuro problems. There has to be a way to do both without causing more problems or making ...
Zinc
- By chadsmom · New reply June 16, 2009
- 2 replies
- Does anyone know where to find zinc acetate. I can only find the gluconate and Galzin is to expensive. I am worried the increased dosage of zinc will hurt the stomach ...
Liver failure possibilities in WD patients
- By Atorres · New reply June 15, 2009
- 9 replies
- I have been learning a lot from all the comments in this community that helps me very much to deal with my daughter’s disease treatment. Recently several questions are rising up my mind constantly. Since ...
Drooling
- By chadsmom · New reply June 6, 2009
- 5 replies
- Hello, I have a teenage with W/D. He was diagnosed about three years ago. He has been taking Syprine for over 2 years now. He seems to be getting worse than better with the neurological problems especially ...
WD neurological symptoms
- By Atorres · New reply April 29, 2009
- 4 replies
- My 15 year old daughter was diagnosed WD 7 months ago and is under penicillamine treatment since then. Her main symptoms are neurological. Her biggest concerna are slow talking issues and some swallowing ...
Can't swallow, have peg tube, what to eat?
- By moontester · New reply April 22, 2009
- 1 reply
- My daughter has a peg tube because she can't swallow food of drink without choking. All the liquid drinks like boost and ensure have 25% reccomended daily allowance of copper. I don't want any copper ...
HELP wanted URGENT
- By Lenko · New reply April 9, 2009
- 4 replies
- Dear All, My name is Elena , with Wilson decease and I'm pregnant. Looking urgently for drug named Zincteral, from Poland. Is there anyone from Poland who could help me ...
Galzin (zinc acetate) and vomiting!
- By WDdiag04 · New reply February 4, 2009
- 11 replies
- Is anyone else taking Galzin. You have to take it 2 hours after food or 30 minutes before food but it has minimal side effects--only vomiting....and darn it! i keep vomiting! i try to take it closer to ...
Liver Presentation and Exercise
- By Aang · Posted February 3, 2009
- 0 replies
- I'm male, 38 and have cirrhosis. I've had multiple bandings; too many to count. I wasn't diagnosed until the age of 31. I'd like to get in better cardio shape and lose 25 pounds. What are my limitations ...
TM
- By mgraper1 · New reply January 25, 2009
- 6 replies
- http://www.reuters.com/article/pressRele ase/idUS43799+29-Nov-2007+MW20071129 ...
Wilson's disease in Mexico
- By Atorres · Posted January 23, 2009
- 0 replies
- My 14 year old daugther was recently diagnosed with wilson´s disease. She is under Penicillamine tretament and about to start Galzin. Any help or recomendations to follow up the treatment and consequences ...
Message for mamaof2
- By Sutopi · Posted January 22, 2009
- 0 replies
- Message for mamaof2. Hi I read that your son is autistic as well. So is my 5 yrs old son. Did the treatment for WD helped at all for his autistic symtoms or it is just an extra disease to have to deal ...
Has any one tried homeopathy for wilson's disease?
- By GH · New reply January 22, 2009
- 21 replies
- Has anybody ever tried homeopathy for cure of wilson's disease? What are results ...
Zinc side effect- loss of smell and taste
- By minmyo · New reply January 20, 2009
- 2 replies
- Does anybody have knowledge on side effect of Zinc; loss of smell and taste? I know that I cannot afford not taking zinc. Has anybody got treated regarding loss of smell and taste? I love food and I cannot ...
Patches on my hands and legs
- By ROSEPETAL · New reply December 22, 2008
- 13 replies
- Hi there I am a WD patient. I would like to know that is there some cure for the black patches which WD patients usually have on their body. I discussed this with my Doc but she said that it will be better ...
Penicillamine from internet in Canada
- By GabsMom · Posted August 19, 2008
- 0 replies
- I found your group and hope you can help me. Our dear 8 year old lab Gabby, has just been diagnosed with doggie Wilson's Disease. The liver biopsy is full of copper, her liver enzymes are 5 to 6 fold ...
Zinc Gluconate vs. Zinc Actetate (Galzin)
- By sonny · New reply June 29, 2008
- 11 replies
- I've been on Galzin since I was diagnosed in 1999 and doing great. I recently moved over seas and Galzin is not available (at least that's what they're telling me). The local doctor prescribed Zinc Gluconate ...
Trietene?
- By alysa88 · New reply May 28, 2008
- 3 replies
- Okay, so I was diagnosed with WD when I 13. I went on the double blind study at the University of Michigan with Dr. Brewer, after being on the study for eight weeks I was released and put on Zinc Accetate ...
Use of Vitamin E orally
- By mamaof2 · New reply April 21, 2008
- 3 replies
- Hi all, My 9year old son has Wilson's. He has been on T for almost a year with no changes in any of his levels. In the last week the GI put him on a vitamin e supplament and all of a sudden he started ...
