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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Personal stories
Introduce yourself and tell your story.
Wilson's Patients in St. Louis, Missouri
- By Sis2WD · Posted June 16, 2009
- 0 replies
- I am trying to help my sister who has WD find a support system in St. Louis, Missouri. I am reaching out to anyone who has either been diagnosed or has someone close to them diagnosed with WD to please ...
Research
- By Needhelpplease · New reply May 9, 2009
- 8 replies
- Please excuse my intrusion of your board. My son needs to interview someone with Wilson's disease. He is a freshman in high school. He is doing the paper in his biology class. Would any of you be willing ...
Canadian WDers?
- By Bronwyn · New reply April 11, 2009
- 15 replies
- Hello-- I would like to connect with fellow Canadians on the list who've got WD......and curious if any of you are out West! I'm a 29 year old, female patient diagnosed last April, and spent my 6 weeks ...
In Tennessee Memphis-Tipton Area
- By AngieJo · New reply April 3, 2009
- 3 replies
- I'm curious to know who else in my area has been affected by Wilson's. My little brother died at 21 and was not diagnosed until the autopsy, so we're still learning about this, and want to connect. I'm ...
Hey there
- By QueenofCopper · Posted February 5, 2009
- 0 replies
- Where do i start? Guess i start with hello my name is Denise, and all i can say is God bless you .. I am a trooper when it comes to WD.. i've been living with this since i was born but found out when ...
Need help
- By LearningaboutWD · New reply January 19, 2009
- 16 replies
- Hi I'm a student that just found out that I have wilson's disease. I would like to know how you got throught these hard times. I would like to know how you got through it. My parents don't really know ...
I'm a student in need of info
- By LearningaboutWD · New reply January 11, 2009
- 6 replies
- Sup people. I'm a student that needs help with personal stories. If you could share some that would be really nice. I learned a few things doing some looking on the internet. I need a really good grade ...
facebook group
- By sismeliss · New reply December 22, 2008
- 2 replies
- Hi all, Just wanted to let you know that a friend of mine started a wilson's group on facebook. Maybe it could start a little more awareness for it and organ donation and such. I told her I would spread ...
REAL HOPE - and a Miracle - PLEASE READ
- By junebug23 · New reply November 29, 2008
- 1 reply
- I am 32 years old and have been diagnosed with Wilson's since I was 15. I was diagnosed after a liver biopsy during hospitilization from acute liver failure. I was treated with Penicillamine and responded ...
Come and Say 'Hello'
- By Rose5 · New reply September 26, 2008
- 25 replies
- Hi All x I noticed there are a few that havent come in and said hello in the community since joining - not that you have to but we all have a story or something that is on our mind and the reason we joined ...
To Test or Not To test?
- By bamartin · New reply July 17, 2008
- 3 replies
- My 7 year old 2nd cousin passed away yesterday due to complications from Wilson's Disease. To be honest, it's not a disease I am very familiar with, but I do sympathize with her father (my cousin). Losing ...
the $$$ problem
- By mic · New reply July 6, 2008
- 15 replies
- the price of penicillamine has triple! i am currently taking 2 in the morning and 2 at night plus one 50mg VB6. the price of meds is putting big stress in my family. We don't have any health plans, we ...
What's the use in treatment
- By dvdbrian · New reply February 7, 2008
- 11 replies
- I know there are so very little of you who have any idea of who I am, or what makes me tic (or not tic). I've been being treated for Wilsons' Disease' (WD) for what seems like forever, even though it's ...
HI. New here, hubby with WD
- By stedfast93 · New reply November 15, 2007
- 1 reply
- Hi everyone. I'm WYN and my husband BRAD is the one with WD. He's almost 42 yrs old, diagnosed probably when he was about 14 yrs old I think. He almost died because the doctors around here (north of Detroit ...
walk-a-thon
- By abbykate · Posted November 15, 2007
- 0 replies
- Hi everyone! I am planning a walk-a-thon Saturday, April 5th here in beautiful Boone, NC. I would love to meed some of ya'll so I hope many of you can come! I will give an update on how to get to the ...
