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Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

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kld05

kld05
  • By kld05 · Posted June 18, 2009
  • Discussion in Finding a doctor · 2 replies
  • How do you find a doctor who knows how to treat Wilson's disease? The ones I've come in contact with are flying blindly and don't seem to know much about it. I'd like to find someone who has treated it ...

alert for Aussies in Sydney area - cu levels high in WATER

Bel
  • By Bel · Posted June 18, 2009
  • Journal · 1 reply
  • If you are living in, or travelling around Sydney please take special care - purchase water, get your home water levels tested...... Am only assuming there would be market gardens in vicinity?? Geographically ...

Iron Deficiency

Schwebke
  • By Schwebke · Posted June 16, 2009
  • Journal · 7 replies
  • Does anyone who is taking cuprimine have iron deficiency? If so, is there any danger to taking iron suppplements? Any advice would be welcome. Thanks, Linda Ottawa, Ontario ...

Wilson's Patients in St. Louis, Missouri

Sis2WD
  • By Sis2WD · Posted June 16, 2009
  • Discussion in Personal stories · 0 replies
  • I am trying to help my sister who has WD find a support system in St. Louis, Missouri. I am reaching out to anyone who has either been diagnosed or has someone close to them diagnosed with WD to please ...

Share your story via video!

TeamInspire
  • By TeamInspire · Posted June 15, 2009
  • Journal · 28 replies
  • Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...

Zinc

chadsmom
  • By chadsmom · Posted June 15, 2009
  • Discussion in Treatment options · 2 replies
  • Does anyone know where to find zinc acetate. I can only find the gluconate and Galzin is to expensive. I am worried the increased dosage of zinc will hurt the stomach ...

Prenatal Vitamins

mgraper1
  • By mgraper1 · Posted June 11, 2009
  • Discussion in Pregnancy · 1 reply
  • We often are asked which prenatal vitamins are available without copper. I recently posed this question to my own gynecologist. He looked at the 10 different ones he had as samples in his office. Out ...

Follow Inspire on Twitter and Facebook!

TeamInspire
  • By TeamInspire · Posted June 10, 2009
  • Journal · 32 replies
  • We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...

Taking Syprine & Zinc

chadsmom
  • By chadsmom · Posted June 10, 2009
  • Discussion in Treatment options · 20 replies
  • Can you take syprine and zinc together and both work ...

Would I still have Wilson's Disease after a Transplant?

Lady2009
  • By Lady2009 · Posted June 4, 2009
  • Discussion in Transplantation · 2 replies
  • Hello, I had a transplant when I was 12 years old. I am 28 now have only had two rejections and that was after the transplant and one when I was 20 as far as I can recall. I have had a very rough between ...

I want to have a healthy baby!

Lady2009
  • By Lady2009 · Posted June 2, 2009
  • Journal · 1 reply
  • I have WD, I received a Transplant in '92 I was 12 now I am 28. My clock is ticking! I need advice on the proper procedures I should take, I already met with the OB/GYN Doctor he recommended me to the ...

Liver failure possibilities in WD patients

Atorres
  • By Atorres · Posted June 1, 2009
  • Discussion in Treatment options · 9 replies
  • I have been learning a lot from all the comments in this community that helps me very much to deal with my daughter’s disease treatment. Recently several questions are rising up my mind constantly. Since ...

Stopping copper

chadsmom
  • By chadsmom · Posted May 28, 2009
  • Discussion in Treatment options · 9 replies
  • Has anyone found a way to stop the copper being pulled out of the blood from going in the brain and causing the neuro problems. There has to be a way to do both without causing more problems or making ...

Guestbooks are now live!

TeamInspire
  • By TeamInspire · Posted May 26, 2009
  • Journal · 3 replies
  • Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...

a typical day

bandgeek72391
  • By bandgeek72391 · Posted May 25, 2009
  • Journal · 0 replies
  • I have what doctors believe to be tourettes syndrome but i can't be officially diagnosed for a year. i also have OCD. every morning, before they diagnosed and started treating me for OCD, i would perform ...

Could it really be tourettes????

bandgeek72391
  • By bandgeek72391 · Posted May 24, 2009
  • Discussion in Getting a diagnosis · 3 replies
  • i am 17 years old and am currently dealing with motor and vocal tics. it has been 5 months since they started getting really bad but we think i have had it my whole life. i sometimes feel alone and i ...

Guestbooks - An exciting addition to Inspire

TeamInspire
  • By TeamInspire · Posted May 20, 2009
  • Journal · 36 replies
  • Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...

Does anyone know WD doctor in Connecticut or near by?

Marta1983
  • By Marta1983 · Posted May 10, 2009
  • Discussion in Finding a doctor · 3 replies
  • I am looking for a WD doctor in CT. Right know I am only going to my primary doc. and to an gastroenerology doc, but I would like to see one who specialize in WD. If anyone knows one in CT please let ...

disturbing 3 months for a 20yr old girl

AnjaB7
  • By AnjaB7 · Posted May 5, 2009
  • Journal · 4 replies
  • so, here's how it all started: it was almost three months ago when i woke up and noticed severe unexplained edemas on my legs, so i immediately went to my doctors. they took a blood and urine sample and ...

Trying to find a fundraising event...

clt44
  • By clt44 · Posted May 4, 2009
  • Discussion in Help desk · 2 replies
  • The guy that I am dating has been diagnosed with Wilson's Disease, and so has his younger brother. We are very interested in finding any run/walk/marathon events that help support WD. However, I have ...

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