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Parents Group for newly dx'd family

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Hi;

I am e-mailing for a friend who is still in Boston Children's. Her daughter just got the dx subsequent to a fair amount of liver failure. My son also has a very rare chronic illness and 4 years ago I found a parents group which, as you all know, is invaluable to helping families and parents cope. Is there a parents discussion group I can refer her to? Thanks! Ctottenham in Maine

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