Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Discussions
kld05
- By kld05 · Posted June 18, 2009
- In Finding a doctor · 2 replies
- How do you find a doctor who knows how to treat Wilson's disease? The ones I've come in contact with are flying blindly and don't seem to know much about it. I'd like to find someone who has treated it ...
Wilson's Patients in St. Louis, Missouri
- By Sis2WD · Posted June 16, 2009
- In Personal stories · 0 replies
- I am trying to help my sister who has WD find a support system in St. Louis, Missouri. I am reaching out to anyone who has either been diagnosed or has someone close to them diagnosed with WD to please ...
Zinc
- By chadsmom · Posted June 15, 2009
- In Treatment options · 2 replies
- Does anyone know where to find zinc acetate. I can only find the gluconate and Galzin is to expensive. I am worried the increased dosage of zinc will hurt the stomach ...
Prenatal Vitamins
Taking Syprine & Zinc
- By chadsmom · Posted June 10, 2009
- In Treatment options · 20 replies
- Can you take syprine and zinc together and both work ...
Would I still have Wilson's Disease after a Transplant?
- By Lady2009 · Posted June 4, 2009
- In Transplantation · 2 replies
- Hello, I had a transplant when I was 12 years old. I am 28 now have only had two rejections and that was after the transplant and one when I was 20 as far as I can recall. I have had a very rough between ...
Liver failure possibilities in WD patients
- By Atorres · Posted June 1, 2009
- In Treatment options · 9 replies
- I have been learning a lot from all the comments in this community that helps me very much to deal with my daughter’s disease treatment. Recently several questions are rising up my mind constantly. Since ...
Stopping copper
- By chadsmom · Posted May 28, 2009
- In Treatment options · 9 replies
- Has anyone found a way to stop the copper being pulled out of the blood from going in the brain and causing the neuro problems. There has to be a way to do both without causing more problems or making ...
Could it really be tourettes????
- By bandgeek72391 · Posted May 24, 2009
- In Getting a diagnosis · 3 replies
- i am 17 years old and am currently dealing with motor and vocal tics. it has been 5 months since they started getting really bad but we think i have had it my whole life. i sometimes feel alone and i ...
Does anyone know WD doctor in Connecticut or near by?
- By Marta1983 · Posted May 10, 2009
- In Finding a doctor · 3 replies
- I am looking for a WD doctor in CT. Right know I am only going to my primary doc. and to an gastroenerology doc, but I would like to see one who specialize in WD. If anyone knows one in CT please let ...
Trying to find a fundraising event...
Drooling
- By chadsmom · Posted May 4, 2009
- In Treatment options · 5 replies
- Hello, I have a teenage with W/D. He was diagnosed about three years ago. He has been taking Syprine for over 2 years now. He seems to be getting worse than better with the neurological problems especially ...
Research
- By Needhelpplease · Posted April 30, 2009
- In Personal stories · 8 replies
- Please excuse my intrusion of your board. My son needs to interview someone with Wilson's disease. He is a freshman in high school. He is doing the paper in his biology class. Would any of you be willing ...
WD neurological symptoms
- By Atorres · Posted April 24, 2009
- In Treatment options · 4 replies
- My 15 year old daughter was diagnosed WD 7 months ago and is under penicillamine treatment since then. Her main symptoms are neurological. Her biggest concerna are slow talking issues and some swallowing ...
Tourettes?
- By Chubz64 · Posted April 22, 2009
- In Getting a diagnosis · 4 replies
- When I went in to the doctors initial testing, I first thought my condition could be explained by tourettes. She never ruled out it either, is this a common thing? I've also been reading around on the ...
Im the process of being diagnosed.
- By Chubz64 · Posted April 21, 2009
- In Getting a diagnosis · 5 replies
- Well, my story goes, I have been having twitches in my head/arms since freshman year of high school (A freshman in collage now). I just ignored them at first, people gave me weird looks, but it didn't ...
Can't swallow, using feeding tube, what do I put in feeding tube?
- By moontester · Posted April 17, 2009
- In Newly diagnosed · 2 replies
- My daughter has a peg tube because she can't swallow food of drink without choking. All the liquid drinks like boost and ensure have 25% reccomended daily allowance of copper. I don't want any copper ...
Can't swallow, have peg tube, what to eat?
- By moontester · Posted April 17, 2009
- In Treatment options · 1 reply
- My daughter has a peg tube because she can't swallow food of drink without choking. All the liquid drinks like boost and ensure have 25% reccomended daily allowance of copper. I don't want any copper ...
In Tennessee Memphis-Tipton Area
- By AngieJo · Posted April 3, 2009
- In Personal stories · 3 replies
- I'm curious to know who else in my area has been affected by Wilson's. My little brother died at 21 and was not diagnosed until the autopsy, so we're still learning about this, and want to connect. I'm ...
HELP wanted URGENT
- By Lenko · Posted April 3, 2009
- In Treatment options · 4 replies
- Dear All, My name is Elena , with Wilson decease and I'm pregnant. Looking urgently for drug named Zincteral, from Poland. Is there anyone from Poland who could help me ...
