Discussions
- By leanguy · Posted November 19, 2008
- In Getting a diagnosis · 1 reply
- I'm a 34yo male in otherwise good health. Over the past year I've developed some neurological symptoms like insomnia, anxiety, mild tremor, mild tingling extremeties. I noticed the faucet I've been drinking ...
- By Margus · Posted November 10, 2008
- In Newly diagnosed · 12 replies
- Hi! My name is Margus. I�m 26 year old guy from Estonia. I have a fiancee and no kids yet. So looks like I have it. I found out the lab results for the blood and the 24h urine test. Urine test showed ...
- By JACKOSPADE · Posted October 30, 2008
- In Getting a diagnosis · 2 replies
- First, I want to say a VERY BIG THANK YOU! to Eva Roberts & DR. Michael Schilsky for your "Diagnosis & Treatment of Wilson's Disease" AASLD Practice Guidelines. It has answered so many questions for me ...
- By ronen · Posted October 19, 2008
- In Newly diagnosed · 2 replies
- Thanks again for everyone who responded to my first posting! :) It meant a lot. Tomorrow I'm going to my first Liver Doc appointment, I'm really nervous and feel like just telling him to give me those ...
- By ronen · Posted October 18, 2008
- In Newly diagnosed · 10 replies
- Hi Everyone! First off, I want to say just how appreciative I am for whoever came up with this website and all the supporters who are here answering questions for all of us newly diagnosed and scared ...
- By alysa88 · Posted October 12, 2008
- In Help desk · 3 replies
- I'm almost 20 years old and my boyfriend and I are seriously considering getting married next summer. The only thing that is really holding me back right now is losing the insurance I have for my medical ...
- By junebug23 · Posted October 5, 2008
- In Pregnancy · 3 replies
- I am 7 weeks pregnant and it is a miracle. It's a good story - it's on my profile. Anyway I am on Zinc maintenance and have weaned off of the 20 medications I was on for neurological complications. I ...
- By junebug23 · Posted October 5, 2008
- In Personal stories · 0 replies
- I am 32 years old and have been diagnosed with Wilson's since I was 15. I was diagnosed after a liver biopsy during hospitilization from acute liver failure. I was treated with Penicillamine and responded ...
- By minmyo · Posted September 21, 2008
- In Finding a doctor · 6 replies
- I live in Santa Barbara. I am looking for a doctor who has treated some Wilson's disease patient. I was on a trial with Dr. Brewer but Michigan is a bit too far... Could you recommend anybody around here ...
- By ornela · Posted September 20, 2008
- In Newly diagnosed · 3 replies
- I am ornela, I live in the U.S. with my husband. My brother lives in albania and was diagnosed with wilsons disease. The hospital there does not have and cannot get the medicine syprine that he needs ...
- By baffoon11 · Posted September 17, 2008
- In Newly diagnosed · 6 replies
- Hi, My best friend was recently diagnosed with Wilson's Disease. He is 32 and had been having neurological symptoms for about 8 months. The symptoms have worsened in the past few months to the point were ...
- By GH · Posted September 16, 2008
- In Treatment options · 20 replies
- Has anybody ever tried homeopathy for cure of wilson's disease? What are results ...
- By GH · Posted August 27, 2008
- In Parenting issues · 3 replies
- I am from India . My son is diagnosed for WD 3 yrs back. In India , normally we use tap water for drinking after processing it through a water filter/purifier. Which type of water purifier is suitable ...
- By GabsMom · Posted August 19, 2008
- In Treatment options · 0 replies
- I found your group and hope you can help me. Our dear 8 year old lab Gabby, has just been diagnosed with doggie Wilson's Disease. The liver biopsy is full of copper, her liver enzymes are 5 to 6 fold ...
- By McVeggie · Posted August 17, 2008
- In Pregnancy · 25 replies
- hiya all, I took two over counter pregnancy test kit myself the first one was unclear but show possitive. Second one I took show a more clear result of positive. Yesterday, went to gyn positive as well ...
- By crose · Posted August 16, 2008
- In Getting a diagnosis · 9 replies
- my daughter has had seizures since she was about 7 all the things of wilsons has 12 doctors thinking maybe its wilsons waiting on last tests .well hayley was admitted in convulsive and non-convulsive ...
- By GH · Posted July 27, 2008
- In Parenting issues · 3 replies
- Are there any special precautions required if a WD patient needs external blood in case of emergency,accedent etc ...
- By Nicabonita · Posted July 26, 2008
- In Newly diagnosed · 2 replies
- Dear All, While studying on a scholarship in the USA, the doctor suspected Wilson's disease and later, a liver biopsy result confirmed the diagnoses after I left to settle in my home country, Ghana in ...
- By bamartin · Posted July 14, 2008
- In Personal stories · 3 replies
- My 7 year old 2nd cousin passed away yesterday due to complications from Wilson's Disease. To be honest, it's not a disease I am very familiar with, but I do sympathize with her father (my cousin). Losing ...
- By kitcat629 · Posted June 23, 2008
- In Loving memories · 8 replies
- Just wanted to say thank you for your responses. My son got his new liver last week on wed. Everything was looking good and then he passed away on thursday due to a heart attack from high potassium ...
