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- By Walter · New reply 4:04 pm
- Journal · 53 replies
- Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...
can any one help us !!
- By admin1234 · New reply 1:04 pm
- Discussion in Getting a diagnosis · 12 replies
- hello every one my name is rasha iam from jordan well, i am so happy to find this website Six month ago my aunt's son affected with willson disease after discovering this his situation getting worse and ...
Muscle Contractions
- By Andrie · New reply yesterday at 4:57 am
- Discussion in Personal stories · 3 replies
- I've noticed the last 5 days my son's toes are contracting. I've been soaking them in warm water and massaging them. Today he was limping and saying that it was painful to walk. Has anyone else experienced ...
Syprine $$$
- By cocolone · New reply March 9, 2010
- Discussion in Treatment options · 14 replies
- I have a 6 year old furry dog son with WD and since he is a dog...insurance won't cover Syprine so I have been paying out of pocket. He had a life threatening lung reaction to Cupramine and is doing well ...
Has anyone heard of alternative treatments
- By chadsmom · New reply March 9, 2010
- Discussion in Treatment options · 15 replies
- We have a Doctor here in our area that says he has had success with many different treatment options such as oxygen chamber treatments, IV and ect...for copper, lead and other mineral overloads. We are ...
suffering with fatigue
- By specialks · New reply March 8, 2010
- Journal · 5 replies
- i have been struggling with constant fatigue. i don't know whether its from my wd or my syprine, it has caused me to cut my hours back at work and i miss 3-4 days per month from it. it hs also interfered ...
24 Hour Copper Urine Results
- By Andrie · New reply March 6, 2010
- Discussion in Newly diagnosed · 2 replies
- My son just got his 24 hour copper urine results back. THE RESULT IS 3993 mcg/24 h. Can anyone tell me what that means ...
World Rare Disease Day
- By Brian · New reply March 4, 2010
- Journal · 14 replies
- In recognition of Rare Disease Day 2010, Inspire and the National Organization for Rare Disorders conducted a survey of Inspire members with rare disorders. The results are enlightening, and I encourage ...
Ceruloplasmin
- By Andrie · New reply March 3, 2010
- Discussion in Personal stories · 5 replies
- My son's ceruloplasmin has gone from a <3 to <8. Do you know what that means? He started Trientine 5 months ago. Does this mean it's working ...
I am wiped! I could use a hug.
- By dhollcaft · New reply March 3, 2010
- Journal · 9 replies
- While my eyes are busy doing there twitchy thing and my ears ring louder than anything around me. I remember a time when I was better and physically active. Oh the times they change. Tears begin rushing ...
WDA Membership
- By mgraper1 · Posted March 3, 2010
- Discussion in Newly diagnosed · 0 replies
- Nice to see so many new faces on here. If you haven't joined the WDA yet, please consider doing so. You will have even more access to all the best and latest information. http://www.wilsonsdisease.org/patients/m ...
How to import Syprine/ Trientine in India.
- By Tushar · New reply March 1, 2010
- Discussion in Newly diagnosed · 21 replies
- Just 15 days before my yonger brother has been identified having WD. He is being treated in Pune (India). Our doctor suggested that we should go for Trientine or Syprine. As per the primary information ...
A good doctor is extremely necessary in WD
- By RuiAlves · New reply February 28, 2010
- Discussion in Finding a doctor · 5 replies
- I got freaked out seing what lucky i was - because i'm seing that there's only a few doctors that know anything from this disease - And some of them are playing with the life's of some of us. Is there ...
Penicillamine side affects
- By JustinD · New reply February 27, 2010
- Discussion in Treatment options · 20 replies
- I have been on Penicillamine for 32 years. I am concerned about the side affects. I am starting to see either side affects from Penicillamine, or symptoms of WD, they are very minor so maybe it is age ...
Over the Counter Zinc
- By Heron · New reply February 26, 2010
- Discussion in Treatment options · 7 replies
- Hi Everyone, I wrote awhile back that I had switched from Galzin to OTC zinc in August and that my labs were good. In addition, my stomach was less irritated. However, I got tested again two weeks ago ...
botox
- By specialks · New reply February 26, 2010
- Discussion in Treatment options · 10 replies
- has anyone tried botox injections to treat mouth, tongue tremors and or drooling ...
Can WD affected person be given Iron Supplement to raise hemoglobin level
- By suman · New reply February 25, 2010
- Discussion in Treatment options · 10 replies
- My daughter is affected with WD with nueropsychic symtom. She has been on D-pen 250 mg thrice a day for the last 3 months. She is also taking Zinc aceatate 20 mg twice a day and b-long once a day. Her ...
Income Tax Saving(India)
how to get insured......
- By soniya · New reply February 24, 2010
- Discussion in Parenting issues · 7 replies
- how can one can get insured(in india) who is suffering with WD ...
Dont know what to do anymore
- By beechmom · New reply February 22, 2010
- Discussion in Personal stories · 13 replies
- Our son age 28 has been fighting wilsons disease since he was diagnosed at age 12. I have written our story on here before but now everything has progresses with his disease and us wondering where to ...
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