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Drooling as a WD symptom
- By Atorres · New reply 2:10 am
- Discussion in Treatment options · 11 replies
- Does anyone have experience dealing with drooling? My daughter has shown a lot of improvements on her dystonia and speaking issues since treatment has evolved almost a year from now when she was diagnosed ...
Galzin zinc acetate v.s. OTC zinc
- By Stacey221 · New reply November 18, 2009
- Discussion in Treatment options · 28 replies
- Is over the counter zinc gluconate (or something similar to that) as effective as Galzin? I was wondering what types of zinc everyone was on and how effective it has been for them. If you have bought ...
Finding the right doctor
- By WDmommy · New reply November 15, 2009
- Discussion in Finding a doctor · 2 replies
- Finding the right doctor is half the challenge with any disorder or illness. You need someone who will listen and who is willing to admit when they don't know the answers. Since WD is such a rare thing ...
can a wilsons disease sufferer have children
Brother with WD is really bad
- By AmyKofKS · New reply November 14, 2009
- Discussion in Newly diagnosed · 17 replies
- I posted a message a few weeks ago concerning my brother who was recently diagnosed with WD. I received responses with encouraging words but am posting now because it seems like overnight the disease ...
what do i do?
- By a_powerfully_mind · New reply November 14, 2009
- Journal · 19 replies
- i just found out that i can't play sports any more and i have nothing to focus all the bad energy on ...
Anemic
- By Scribner · Posted November 13, 2009
- Discussion in Getting a diagnosis · 0 replies
- My daughter has been on Syprine for over a year and her copper levels are all over the place. They are down from what they were when she started, but still almost 700. NOW.... her labs have went backwards ...
I have a low platelet count
Wilson's Disease - how long does it take to de-copper
- By Stacey221 · New reply November 10, 2009
- Discussion in Personal stories · 10 replies
- I was recently diagnosed with WD. I was prescribed syprine (trientine) 3 times a day. My doctor mentioned being on that 1-2 years then switching to zinc acetate. I was diagnosed before symptoms showed ...
My husband has WD
- By evelyn123 · New reply November 6, 2009
- Discussion in Personal stories · 4 replies
- My husband was diagnosed with WD, 2 years ago and is currently taking Syprine (trientine hydrochloride) on a daily basis. We have been trying to conceive for the past 1 year+ but to no avail. I'm worried ...
Denial gets you nowhere
- By bb3907 · New reply November 4, 2009
- Journal · 2 replies
- For years I was in denial about WD until more and more symptoms started to surface. I'm glad I found this site because it helps to share your knowledge and exeriences with others like you ...
Inspire members featured
- By Brian · New reply November 4, 2009
- Journal · 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
Wilson's patient's children
- By Stacey221 · New reply November 4, 2009
- Discussion in Genetics and diagnosis · 4 replies
- I am a mother of 2 who just found out I have Wilson's. I am getting my children's blood work done this week to see what the ceruloplasmin and liver enzymes are. My children are 3 and 6. If anyone else ...
1st blog
- By mel9300 · Posted November 3, 2009
- Journal · 0 replies
- All in all, things for me have been going steady and well for a while. I am here to see if I might be able to help others ...
Seeking doctor
- By bb3907 · New reply October 27, 2009
- Discussion in Finding a doctor · 2 replies
- I live in north jersey and am looking for doctor to treat my condition. I am tired of going to doctor after doctor who I can tell as a lay person, they don't have a clue. I am beginning to develop severe ...
Music
- By Scribner · Posted October 27, 2009
- Discussion in Personal stories · 0 replies
- Just a peacful note to share with all the Mom's on here that have a son with Wilson's (I have adaughter with Wilson's as well but haven't found one for her yet), my daughter knows I love music and found ...
Seeking pure D-Penicillamine & Zn Acetate available in India.
- By anupam · New reply October 26, 2009
- Discussion in Treatment options · 8 replies
- Dear friends, I, a medical student from W.B., India, was diagnosed to have Wilson's Disease in Dec 23rd 1999. My treatment was in a hapazard way upto this February, Now, I'm in contact with Dr. Ashis ...
Books about Wilson's Disease
- By Andrie · New reply October 22, 2009
- Discussion in Newly diagnosed · 5 replies
- I just ordered the book "Wilson's Disease for the Patient and Family: A Patient's Guide to Wilson's Disease and Frequently Asked Questions about Copper" by George J. Brewer M.D. Has anyone else read this ...
Finally a Diagnosis
- By Andrie · New reply October 19, 2009
- Journal · 1 reply
- In August 2009, my 19 year old son started having physical symptoms that were not normal for his personality. His hands would tremble. Within 10 days he was having severe insomnia, and lack of appetite ...
Wilsons disease
- By beechmom · New reply October 17, 2009
- Discussion in Personal stories · 13 replies
- Our oldest son 28 now has been not improving at all,what are we to do? The doctors told us with time and zinc he would get better. I have seen nothing but his body getting worse like he had a stroke,sleeping ...
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About this group
The Wilson Disease Association Support Community connects patients, families, friends and caregivers for support and inspiration. The Wilson Disease Association Support Community is sponsored by the Wilson Disease Association in partnership with Inspire.