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Taking Syprine & Zinc
- By chadsmom · New reply July 1, 2009
- Discussion in Treatment options · 20 replies
- Can you take syprine and zinc together and both work ...
Stopping copper
- By chadsmom · New reply June 26, 2009
- Discussion in Treatment options · 9 replies
- Has anyone found a way to stop the copper being pulled out of the blood from going in the brain and causing the neuro problems. There has to be a way to do both without causing more problems or making ...
Share your story via video!
- By TeamInspire · New reply June 23, 2009
- Journal · 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
Support your group and raise awareness with badges
- By Walter · New reply June 22, 2009
- Journal · 39 replies
- Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...
kld05
- By kld05 · New reply June 19, 2009
- Discussion in Finding a doctor · 2 replies
- How do you find a doctor who knows how to treat Wilson's disease? The ones I've come in contact with are flying blindly and don't seem to know much about it. I'd like to find someone who has treated it ...
alert for Aussies in Sydney area - cu levels high in WATER
- By Bel · New reply June 19, 2009
- Journal · 1 reply
- If you are living in, or travelling around Sydney please take special care - purchase water, get your home water levels tested...... Am only assuming there would be market gardens in vicinity?? Geographically ...
Iron Deficiency
- By Schwebke · New reply June 19, 2009
- Journal · 7 replies
- Does anyone who is taking cuprimine have iron deficiency? If so, is there any danger to taking iron suppplements? Any advice would be welcome. Thanks, Linda Ottawa, Ontario ...
Cuprimine Available in Canada Again
- By Schwebke · New reply June 18, 2009
- Journal · 3 replies
- To all WD patients using Cuprimine in Canada. Health Canada has approved Cuprimine and it is fully available through your pharmacist again. Linda Ottawa, Ontario Canada ...
Wilson's Patients in St. Louis, Missouri
- By Sis2WD · Posted June 16, 2009
- Discussion in Personal stories · 0 replies
- I am trying to help my sister who has WD find a support system in St. Louis, Missouri. I am reaching out to anyone who has either been diagnosed or has someone close to them diagnosed with WD to please ...
Zinc
- By chadsmom · New reply June 16, 2009
- Discussion in Treatment options · 2 replies
- Does anyone know where to find zinc acetate. I can only find the gluconate and Galzin is to expensive. I am worried the increased dosage of zinc will hurt the stomach ...
Liver failure possibilities in WD patients
- By Atorres · New reply June 15, 2009
- Discussion in Treatment options · 9 replies
- I have been learning a lot from all the comments in this community that helps me very much to deal with my daughter’s disease treatment. Recently several questions are rising up my mind constantly. Since ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · New reply June 12, 2009
- Journal · 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Prenatal Vitamins
is this a Kayser-Fleischer ring? [photo]
- By th0mas · New reply June 10, 2009
- Discussion in Getting a diagnosis · 4 replies
- Hello. My name is Thomas. I'm waiting to see an eye doctor to determine if I have K-F ring. But I'd like to see your opinions. This is link to photography of my eye: http://tv.eia.pl/~vertigo/eyes.jpg ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · New reply June 9, 2009
- Journal · 36 replies
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
Would I still have Wilson's Disease after a Transplant?
- By Lady2009 · New reply June 7, 2009
- Discussion in Transplantation · 2 replies
- Hello, I had a transplant when I was 12 years old. I am 28 now have only had two rejections and that was after the transplant and one when I was 20 as far as I can recall. I have had a very rough between ...
sports and enlarged spleen
- By TJ1 · New reply June 7, 2009
- Discussion in Parenting issues · 2 replies
- I have a 16 year old son who was diagnosed January 2007. In the past 11 months his spleen has continued to be enlarged. He wants to race on his High School ski team but can't get clearance because of ...
Could it really be tourettes????
- By bandgeek72391 · New reply June 6, 2009
- Discussion in Getting a diagnosis · 3 replies
- i am 17 years old and am currently dealing with motor and vocal tics. it has been 5 months since they started getting really bad but we think i have had it my whole life. i sometimes feel alone and i ...
Drooling
- By chadsmom · New reply June 6, 2009
- Discussion in Treatment options · 5 replies
- Hello, I have a teenage with W/D. He was diagnosed about three years ago. He has been taking Syprine for over 2 years now. He seems to be getting worse than better with the neurological problems especially ...
I want to have a healthy baby!
- By Lady2009 · New reply June 4, 2009
- Journal · 1 reply
- I have WD, I received a Transplant in '92 I was 12 now I am 28. My clock is ticking! I need advice on the proper procedures I should take, I already met with the OB/GYN Doctor he recommended me to the ...
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The Wilson Disease Association Support Community connects patients, families, friends and caregivers for support and inspiration. The Wilson Disease Association Support Community is sponsored by the Wilson Disease Association in partnership with Inspire.