Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Treatment options
Questions and answers to the various pharmaceutical options. Medical treatments that worked for others.
Galzin zinc acetate v.s. OTC zinc
- By Stacey221 · New reply November 18, 2009
- 28 replies
- Is over the counter zinc gluconate (or something similar to that) as effective as Galzin? I was wondering what types of zinc everyone was on and how effective it has been for them. If you have bought ...
Drooling as a WD symptom
- By Atorres · New reply November 14, 2009
- 9 replies
- Does anyone have experience dealing with drooling? My daughter has shown a lot of improvements on her dystonia and speaking issues since treatment has evolved almost a year from now when she was diagnosed ...
Seeking pure D-Penicillamine & Zn Acetate available in India.
- By anupam · New reply October 26, 2009
- 8 replies
- Dear friends, I, a medical student from W.B., India, was diagnosed to have Wilson's Disease in Dec 23rd 1999. My treatment was in a hapazard way upto this February, Now, I'm in contact with Dr. Ashis ...
Taking Syprine & Zinc
- By chadsmom · New reply October 7, 2009
- 22 replies
- Can you take syprine and zinc together and both work ...
BETTER TREATMENT
- By RICHA · New reply October 3, 2009
- 2 replies
- Dear Friends, Though I have recovered a lot by the treatment I am on since the last two decades but side - effects of the treatment also show. Dark patches on my body, constant regidity and pain and many ...
Treating with chemo
- By kld05 · New reply September 7, 2009
- 2 replies
- My goddaughter is in stage 2 liver failure and the doctors (who admit that they have never treated this disease before) have doubled her chemo treatments and refuse to refer her to a specialist we found ...
Update since starting zinc maintenance therapy
- By Maya · New reply September 2, 2009
- 6 replies
- Hi there all, Sometime time back i wrote about my son Remo starting zinc therapy, commenced in January 2009 with zinc picolinate 150mgs daily, well tolerated, after about 6 weeks did 24hr urine test for ...
Galzin treatment working so far!
- By WDmommy · Posted August 30, 2009
- 0 replies
- My 6-yr old daughter recently started taking Galzin (25mg) three times a day. Her urine copper is almost to "normal" values and she has had NO side-effects. The hardest part has been making sure it is ...
penicillamine allergy
- By AnjaB7 · New reply August 22, 2009
- 2 replies
- Hi people! I have a question - does anyone know if it is possible for me to test if I'm alergic to penicillamine? Does anyone know some place where these kinds of test are done? I have this unexplained ...
Side Effect of Medication
- By pathik · New reply August 18, 2009
- 4 replies
- Hi to All, I am on four artamins and two zinconia a day. When I started the medication I had my neurological symptoms gone worst. Now, when sometimes I forget to take a medicine, the next day in the night ...
Syprine $$$
- By cocolone · New reply August 6, 2009
- 9 replies
- I have a 6 year old furry dog son with WD and since he is a dog...insurance won't cover Syprine so I have been paying out of pocket. He had a life threatening lung reaction to Cupramine and is doing well ...
Need Advice
- By lostbb · New reply July 10, 2009
- 3 replies
- My brother was diagnosed with WD in the summer of 2007. He is 56 years old. Was able to start his treatment in Michigan Jan. 2008. He experienced a great set back and was hospitalized due to increased ...
Stopping copper
- By chadsmom · New reply June 26, 2009
- 9 replies
- Has anyone found a way to stop the copper being pulled out of the blood from going in the brain and causing the neuro problems. There has to be a way to do both without causing more problems or making ...
Zinc
- By chadsmom · New reply June 16, 2009
- 2 replies
- Does anyone know where to find zinc acetate. I can only find the gluconate and Galzin is to expensive. I am worried the increased dosage of zinc will hurt the stomach ...
Liver failure possibilities in WD patients
- By Atorres · New reply June 15, 2009
- 9 replies
- I have been learning a lot from all the comments in this community that helps me very much to deal with my daughter’s disease treatment. Recently several questions are rising up my mind constantly. Since ...
Drooling
- By chadsmom · New reply June 6, 2009
- 5 replies
- Hello, I have a teenage with W/D. He was diagnosed about three years ago. He has been taking Syprine for over 2 years now. He seems to be getting worse than better with the neurological problems especially ...
WD neurological symptoms
- By Atorres · New reply April 29, 2009
- 4 replies
- My 15 year old daughter was diagnosed WD 7 months ago and is under penicillamine treatment since then. Her main symptoms are neurological. Her biggest concerna are slow talking issues and some swallowing ...
HELP wanted URGENT
- By Lenko · New reply April 9, 2009
- 4 replies
- Dear All, My name is Elena , with Wilson decease and I'm pregnant. Looking urgently for drug named Zincteral, from Poland. Is there anyone from Poland who could help me ...
Galzin (zinc acetate) and vomiting!
- By WDdiag04 · New reply February 4, 2009
- 11 replies
- Is anyone else taking Galzin. You have to take it 2 hours after food or 30 minutes before food but it has minimal side effects--only vomiting....and darn it! i keep vomiting! i try to take it closer to ...
Liver Presentation and Exercise
- By Aang · Posted February 3, 2009
- 0 replies
- I'm male, 38 and have cirrhosis. I've had multiple bandings; too many to count. I wasn't diagnosed until the age of 31. I'd like to get in better cardio shape and lose 25 pounds. What are my limitations ...
