Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Personal stories
Introduce yourself and tell your story.
Wilson's Disease - how long does it take to de-copper
- By Stacey221 · New reply November 10, 2009
- 10 replies
- I was recently diagnosed with WD. I was prescribed syprine (trientine) 3 times a day. My doctor mentioned being on that 1-2 years then switching to zinc acetate. I was diagnosed before symptoms showed ...
My husband has WD
- By evelyn123 · New reply November 6, 2009
- 4 replies
- My husband was diagnosed with WD, 2 years ago and is currently taking Syprine (trientine hydrochloride) on a daily basis. We have been trying to conceive for the past 1 year+ but to no avail. I'm worried ...
Music
- By Scribner · Posted October 27, 2009
- 0 replies
- Just a peacful note to share with all the Mom's on here that have a son with Wilson's (I have adaughter with Wilson's as well but haven't found one for her yet), my daughter knows I love music and found ...
Wilsons disease
- By beechmom · New reply October 17, 2009
- 13 replies
- Our oldest son 28 now has been not improving at all,what are we to do? The doctors told us with time and zinc he would get better. I have seen nothing but his body getting worse like he had a stroke,sleeping ...
CONFIDENCE DISTURBANCE....
- By junaidshahs · New reply September 14, 2009
- 3 replies
- Hi, I am Junaid Shah from Pakistan..... Until i have reached 16th year i was a very confident guy.... I was diagnosed as wilson's disease patient in august 2005.... and my date of birth is 13th feb 1984 ...
Wilson's Patients in St. Louis, Missouri
- By Sis2WD · New reply September 9, 2009
- 1 reply
- I am trying to help my sister who has WD find a support system in St. Louis, Missouri. I am reaching out to anyone who has either been diagnosed or has someone close to them diagnosed with WD to please ...
feeding tube
- By MollysMom · New reply August 16, 2009
- 8 replies
- Have any of you been able to have a feeding tube removed after regaining the ability to swallow food, or do you know of someone who has had this victory? I have not been able to find where someone with ...
Stories of people who have removed feeding tubes
- By moontester · New reply July 27, 2009
- 3 replies
- Could a few people who have had their feeding tubes removed and are now eating and drinking again please post their stories here. We need hope. Molly has had a PEG feeding tube in her stomach since April ...
Research
- By Needhelpplease · New reply May 9, 2009
- 8 replies
- Please excuse my intrusion of your board. My son needs to interview someone with Wilson's disease. He is a freshman in high school. He is doing the paper in his biology class. Would any of you be willing ...
Canadian WDers?
- By Bronwyn · New reply April 11, 2009
- 15 replies
- Hello-- I would like to connect with fellow Canadians on the list who've got WD......and curious if any of you are out West! I'm a 29 year old, female patient diagnosed last April, and spent my 6 weeks ...
In Tennessee Memphis-Tipton Area
- By AngieJo · New reply April 3, 2009
- 3 replies
- I'm curious to know who else in my area has been affected by Wilson's. My little brother died at 21 and was not diagnosed until the autopsy, so we're still learning about this, and want to connect. I'm ...
Hey there
- By QueenofCopper · Posted February 5, 2009
- 0 replies
- Where do i start? Guess i start with hello my name is Denise, and all i can say is God bless you .. I am a trooper when it comes to WD.. i've been living with this since i was born but found out when ...
Need help
- By LearningaboutWD · New reply January 19, 2009
- 16 replies
- Hi I'm a student that just found out that I have wilson's disease. I would like to know how you got throught these hard times. I would like to know how you got through it. My parents don't really know ...
I'm a student in need of info
- By LearningaboutWD · New reply January 11, 2009
- 6 replies
- Sup people. I'm a student that needs help with personal stories. If you could share some that would be really nice. I learned a few things doing some looking on the internet. I need a really good grade ...
facebook group
- By sismeliss · New reply December 22, 2008
- 2 replies
- Hi all, Just wanted to let you know that a friend of mine started a wilson's group on facebook. Maybe it could start a little more awareness for it and organ donation and such. I told her I would spread ...
REAL HOPE - and a Miracle - PLEASE READ
- By junebug23 · New reply November 29, 2008
- 1 reply
- I am 32 years old and have been diagnosed with Wilson's since I was 15. I was diagnosed after a liver biopsy during hospitilization from acute liver failure. I was treated with Penicillamine and responded ...
Come and Say 'Hello'
- By Rose5 · New reply September 26, 2008
- 25 replies
- Hi All x I noticed there are a few that havent come in and said hello in the community since joining - not that you have to but we all have a story or something that is on our mind and the reason we joined ...
To Test or Not To test?
- By bamartin · New reply July 17, 2008
- 3 replies
- My 7 year old 2nd cousin passed away yesterday due to complications from Wilson's Disease. To be honest, it's not a disease I am very familiar with, but I do sympathize with her father (my cousin). Losing ...
the $$$ problem
- By mic · New reply July 6, 2008
- 15 replies
- the price of penicillamine has triple! i am currently taking 2 in the morning and 2 at night plus one 50mg VB6. the price of meds is putting big stress in my family. We don't have any health plans, we ...
What's the use in treatment
- By dvdbrian · New reply February 7, 2008
- 11 replies
- I know there are so very little of you who have any idea of who I am, or what makes me tic (or not tic). I've been being treated for Wilsons' Disease' (WD) for what seems like forever, even though it's ...
