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Newly diagnosed

Start here for help! Discuss what to expect and where to look for help.

ascites/edema is horrible

By Gina001 · New reply May 8, 2008
9 replies
Hi everyone. I was wondering if anyone else has had similar problems and has any advice for me. My cirrhosis is pretty bad and has been giving me these fluid problems on a regular basis. My edema is pretty ...

New diagnosis with Wilson's disease

By jhgood · New reply April 28, 2008
2 replies
Have K-F rings in both eyes, Cirosis, Psychiatric problems,Biopsy comfirmed . Also Toxic exposure. Its alot to take right now. Who would of known I just thought I was going crazy. I just wanted to say ...

WD at 47 years old

By buddynusa · New reply March 17, 2008
4 replies
I have read most of the posts and profiles here .and others on different sites . And have not found a case like mine. At my age 47 I see most find out they have WD becase liver failure or other common ...

1-3 hour med

By kalapi · New reply March 15, 2008
2 replies
hi eshthaer and mom2six i was 8 when i was diagnised with W D. I am now 48. I was on medication for 40 years without any major problems, apart from the side efects of D-Pen. As you asked if one should ...

Drooling

By mic · New reply January 28, 2008
7 replies
Anyone one know a good way to stop it ...

Dr. Furtado

By mic · New reply January 21, 2008
1 reply
anyone seeing this doctor ...

How are you all??

By Rose5 · New reply January 16, 2008
6 replies
Well here we are in 2008 - hope we are all enjoying this new year :) Lauren has been doing well - she had a visit to the specialist and her platelets are heading UP back to normal so thats a good sign ...

Doctors

By mic · New reply January 13, 2008
1 reply
doctors i think they seen too much that they don't look things from the patients postion. my example: age 18, don't drive, have to eat pure aid food (3 spoon of rice with a cup of water blend) they ask ...

Questions my doc couldn't anwser

By James3 · New reply January 12, 2008
4 replies
Hi all, I saw my doctor last week and everything seemed to be running smoothly except he couldn't properly anwser a few questions i had. So i thought the best place to ask them would be here. :) Does ...

MRI and CT scan

By mic · New reply January 11, 2008
2 replies
does anyone found copper in their MRI and CT scan ...

WD update info

By mic · Posted January 11, 2008
0 replies
http://www.nature.com/ncpneuro/journal/v 2/n9/pdf/ncpneuro0291.pdf;jsessionid=75A 4545C8BFDAD7359F6E8C8AD9BA370 ...

being diagnosed?

By terryboberry · New reply December 19, 2007
3 replies
Hello - I'm a mom of an almost 13 year old son who may have Wilson's. I'm doing the research beforehand so I know what to ask. My son may be presenting with Psychological issues as well as some liver ...

path to getting well

By mic · New reply December 17, 2007
8 replies
I have copper in my brain. I am losing a lot of weight because I am not able to eat. I am have emotion problems too. My family is finding it hard to help me out because I have a lot of behaviour problems ...

WD name in chinese

By mic · Posted December 17, 2007
0 replies
Hi, my family is chinese so I was wondering what the name of WD is in chinese, so i can get some information to them ...

Low Copper DITE

By buddynusa · New reply December 12, 2007
2 replies
I have'nt seen anyone here talk about low copper dite.I guess we are all just doing it already. It is very important. here is a site that shows foods low in copper and foods very rich in copper that we ...

swallowing difficulties

By Amy4 · New reply December 2, 2007
2 replies
Has anyone experienced difficulty swallowing with WD. Our son who is 17 has many neurological symptoms. He was diagnosed in Aug. 07. Has been on study drug (TM) and zinc galzin. He is also taking artane ...