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Newly diagnosed
Start here for help! Discuss what to expect and where to look for help.
Brother with WD is really bad
- By AmyKofKS · New reply November 14, 2009
- 17 replies
- I posted a message a few weeks ago concerning my brother who was recently diagnosed with WD. I received responses with encouraging words but am posting now because it seems like overnight the disease ...
Books about Wilson's Disease
- By Andrie · New reply October 22, 2009
- 5 replies
- I just ordered the book "Wilson's Disease for the Patient and Family: A Patient's Guide to Wilson's Disease and Frequently Asked Questions about Copper" by George J. Brewer M.D. Has anyone else read this ...
WD and Autoimmune Hepatitis
- By Ryn · Posted July 20, 2009
- 0 replies
- My 17 year old daughter has been diagnosed with both diseases. I'm wondering if there is anyone else out there with both ...
Just started losing balance and REALLY weak!
- By ronen · New reply May 5, 2009
- 16 replies
- Hi Everyone! First off, I want to say just how appreciative I am for whoever came up with this website and all the supporters who are here answering questions for all of us newly diagnosed and scared ...
Can't swallow, using feeding tube, what do I put in feeding tube?
- By moontester · New reply April 20, 2009
- 2 replies
- My daughter has a peg tube because she can't swallow food of drink without choking. All the liquid drinks like boost and ensure have 25% reccomended daily allowance of copper. I don't want any copper ...
Son w/ possiable WD
- By Nessaberg · New reply March 7, 2009
- 21 replies
- Hello, I just have some questions about WD. My 15 yrs old son has been sick for about 4 weeks. His symptoms are very tired, jaundice, pains in the stomach. We have had 3 cbc and liver panels. His belirubin ...
Newly diadnosed..sort of
- By debbay54 · New reply February 22, 2009
- 2 replies
- I have liver disease and went to UNC here in NC and the lab work there says Wilsons due to copper in my blood work. Was sent for an MRI and it says possible MS...my main symptom is I can hardly walk ...
doc told me the news today
- By Margus · New reply February 9, 2009
- 28 replies
- Hi! My name is Margus. I´m 26 year old guy from Estonia. I have a fiancee and no kids yet. So looks like I have it. I found out the lab results for the blood and the 24h urine test. Urine test showed ...
Waiting for KF test, Wilson's likely
- By Neven · New reply February 5, 2009
- 22 replies
- Hi everyone, I don't believe I qualify as a newly diagnosed member yet, but I thought I'd post here anyway. Here's my story: When I was 23, I started a vegetarian diet which soon turned pescatarian, i.e ...
Traveling with WD
- By Ryn · Posted January 17, 2009
- 0 replies
- My 16 year old daughter has recently been diagnosed with WD and is taking Syprine. She has a school trip planned to Costa Rica. Any travel suggestions/travel tips on keeping Syprine refrigerated/temperature ...
SOS.... I'm over my head here!!!
- By 4KatieB83 · New reply January 16, 2009
- 3 replies
- My name is Mat. My ex girlfriend Katie (25) was diagnosed with WD a few months ago. She as been taking everything in stride and has been so strong, but I've noticed a big change lately. We all know how ...
Going to my first Hepatology appointment tomorrow
- By ronen · New reply October 21, 2008
- 2 replies
- Thanks again for everyone who responded to my first posting! :) It meant a lot. Tomorrow I'm going to my first Liver Doc appointment, I'm really nervous and feel like just telling him to give me those ...
Hello everyone
- By ornela · New reply September 21, 2008
- 3 replies
- I am ornela, I live in the U.S. with my husband. My brother lives in albania and was diagnosed with wilsons disease. The hospital there does not have and cannot get the medicine syprine that he needs ...
Wilson's diagnosis
- By baffoon11 · New reply September 19, 2008
- 6 replies
- Hi, My best friend was recently diagnosed with Wilson's Disease. He is 32 and had been having neurological symptoms for about 8 months. The symptoms have worsened in the past few months to the point were ...
Help With Treatment
- By Nicabonita · New reply July 27, 2008
- 2 replies
- Dear All, While studying on a scholarship in the USA, the doctor suspected Wilson's disease and later, a liver biopsy result confirmed the diagnoses after I left to settle in my home country, Ghana in ...
meds 1-3 hrs before or after eating important?
- By mic · New reply July 22, 2008
- 21 replies
- Is it truly important to take meds 11-3 hrs before or after eating ...
polycystic ovarian syndrome
- By mic · New reply July 8, 2008
- 16 replies
- I was told by my family doctor that I have polycystic ovarian syndrome and to on birth control pills in 2001 and in 2007 I was told I have WD. the doctors don't really have the answer to whether i have ...
How much lab work are you doing?
- By mic · New reply June 20, 2008
- 5 replies
- I was told I have WD 6 months ago. My doctor is ordering for me to do bloods work and 24 urine every 2 week. Isn't that a little too much? How much are u doing? I wouldn’t mind them if I don't have to ...
Kidney Damage and Very Low copper levels
- By kc1392jesus · New reply June 16, 2008
- 4 replies
- I was diagnosed with kidney damage they aren't sure why yet, however, I loss protein my kidneys are just dumpping it out. I was diagnosed with wilson's diease at the age of 8 years old and i'm almost ...
Wilson's disease
- By kitcat629 · New reply June 15, 2008
- 3 replies
- My son was just diagnosed with wilsons. Can anyone tell me how the meds react at first. They keep telling me they are hopeful that his test numbers will start to increase, however, they have placed him ...
