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Getting a diagnosis
Challenges you have, or are, going through in obtaining a proper diagnosis.
Anemic
- By Scribner · Posted November 13, 2009
- 0 replies
- My daughter has been on Syprine for over a year and her copper levels are all over the place. They are down from what they were when she started, but still almost 700. NOW.... her labs have went backwards ...
Wilson's Disease
- By pathik · New reply August 6, 2009
- 24 replies
- Hi to Everyone, I have been found a low celuroplasmin for .15 and 24-hour urinary copper tests are also positive. But i have not been found with any k.f. ring. I have many nurological problems as tremors ...
is this a Kayser-Fleischer ring? [photo]
- By th0mas · New reply June 10, 2009
- 4 replies
- Hello. My name is Thomas. I'm waiting to see an eye doctor to determine if I have K-F ring. But I'd like to see your opinions. This is link to photography of my eye: http://tv.eia.pl/~vertigo/eyes.jpg ...
Could it really be tourettes????
- By bandgeek72391 · New reply June 6, 2009
- 3 replies
- i am 17 years old and am currently dealing with motor and vocal tics. it has been 5 months since they started getting really bad but we think i have had it my whole life. i sometimes feel alone and i ...
Cat scan findings
- By starryeyes · New reply June 1, 2009
- 7 replies
- I have recently spent many many hours in emergency for pain in the liver area, only to be sent home with nothing. They found metal in my liver on the cat scan (which was repeated because they didn't believe ...
Tourettes?
- By Chubz64 · New reply May 25, 2009
- 4 replies
- When I went in to the doctors initial testing, I first thought my condition could be explained by tourettes. She never ruled out it either, is this a common thing? I've also been reading around on the ...
Im the process of being diagnosed.
- By Chubz64 · New reply April 24, 2009
- 5 replies
- Well, my story goes, I have been having twitches in my head/arms since freshman year of high school (A freshman in collage now). I just ignored them at first, people gave me weird looks, but it didn't ...
Can lab results depend on diet?
- By yorksoldat · Posted March 10, 2009
- 0 replies
- I feel a little out of place on this website but maybe someone could give me some advice. I have had difficulties for years and years and the only relief I get is from a restricted diet. Because of some ...
My son is slipping away
- By acutedistress · New reply March 7, 2009
- 29 replies
- My son, age 20, started having severe neurological/psychological symptoms around Nov. 1, 2008. He was going to college and living in a town 30 miles away at the time. His ceruloplasmin test this month ...
anxiously waiting
- By anxiousATL · New reply February 28, 2009
- 7 replies
- Well, I haven't been diagnosed yet, and I don't seem to have any symptoms. An insurance-related blood test revealed high indirect bilirubin, though AST and ALT were fine. My doctor referred me to a gastro ...
Could this be Wilsons
- By whoknows · New reply February 2, 2009
- 12 replies
- Nice to find this forum, In a routine test, my SGPT(ALT) was slightly raised in December 08 at 75 up from around 30 in April 08. Doctor additionally tested my copper levels as the ALT was high. The Plasma ...
What Test Results Indicate WD?
- By SearchingforAnswers · New reply January 24, 2009
- 7 replies
- What results did you get that indicated WD? Ceruloplasim? Serum Copper? 24 hr Urine Copper? Liver Tests? Thank you ...
help 5 yrs old huuuuge copper excretion-Liver steak?
- By Sutopi · New reply January 21, 2009
- 4 replies
- I am the mother of a 5 years old autistic son that has mercury toxicity. I would appreciate if you could advise me on the following. We measured his Fecal Toxic Metal Excretion after administering him ...
Does this sound like WD or just copper overload?
- By leanguy · New reply January 9, 2009
- 9 replies
- I'm a 34yo male in otherwise good health. Over the past year I've developed some neurological symptoms like insomnia, anxiety, mild tremor, mild tingling extremeties. I noticed the faucet I've been drinking ...
Waiting for an official diagnosis
- By Sili · New reply December 22, 2008
- 8 replies
- Last Friday I was called into my doctor's office to hear that my ceruloplasmin level was low and my AST/LST levels were high. My doctor mentioned that it could be Wilson's and sent me in for a sonogram ...
LIVER BIOPSIES-Placed in Formalin-Does it damage sample??
- By JACKOSPADE · New reply November 5, 2008
- 2 replies
- First, I want to say a VERY BIG THANK YOU! to Eva Roberts & DR. Michael Schilsky for your "Diagnosis & Treatment of Wilson's Disease" AASLD Practice Guidelines. It has answered so many questions for me ...
my daughter is believed to have wilsons please advise me!!!!!!
- By crose · New reply August 29, 2008
- 9 replies
- my daughter has had seizures since she was about 7 all the things of wilsons has 12 doctors thinking maybe its wilsons waiting on last tests .well hayley was admitted in convulsive and non-convulsive ...
Colon problems with WD?
- By alysa88 · New reply June 15, 2008
- 2 replies
- so my doc is pretty confused with me saying im one of his most complicated patients, and suggested i asked on here if any one else had colon problems, right now there is currently blood when ever i have ...
Hepatic Function Panel
- By BABYGIRL2 · New reply March 20, 2008
- 3 replies
- Hi, I came across this website by doing a search for liver disease. I have not been diagnosed with anything but I am concerned about my results. I am 24 years old, 5 feet, 174 lbs. My doctor of course ...
Opthamologist on Wednesday...
- By katie4 · New reply March 15, 2008
- 3 replies
- Hi :) my name is Katie, and next Wednesday I have an appointment with an opthamologist who is going to look for Kayser Fleischer rings, after the blood test a neurologist ordered (I have a bit of a problem ...
