Finding a doctor

Help finding a healthcare professional or institution familiar with Wilson's disease

Discussions

Wilson's Disease and High Copper in Kansas City

milica89
  • By milica89 · New reply 1:06 am
  • 7 replies
  • I'm looking for a doctor with experience in diagnosing and treating high copper and/or Wilson's Disease in the Kansas City or St. Louis area. I have not yet been diagnosed but strongly suspect that this ...

WDA Centers of Excellence? Tell me more...

WDmom99
  • By WDmom99 · New reply March 18, 2014
  • 8 replies
  • I am wondering what the Centers of Excellence offer that we do not have access to with her current health care team. My daughter was diagnosed, after hospitalization with liver failure, as having WD by ...

severe fits

santosh_shaolin
  • By santosh_shaolin · New reply March 16, 2014
  • 2 replies
  • I am in search of a doctor in India where I can treat my brother who is suffering from severe fits, he fells down every day and we have shown it to so many doctor and not getting good result ...

Greetings From Spain

raffar
  • By raffar · New reply March 9, 2014
  • 3 replies
  • Good morning, I'm writing on behalf of a Russian born Spanish friend who is finding it incredibly difficult to meet either face to face or online anyone who speaks either of those two languages in order ...

Greetings From Spain

raffar
  • By raffar · Posted March 8, 2014
  • 0 replies
  • Good morning, I'm writing on behalf of a Russian born Spanish friend who is finding it incredibly difficult to meet either face to face or online anyone who speaks either of those two languages in order ...

About Wilson Disease

NareSargsyan
  • By NareSargsyan · New reply February 25, 2014
  • 10 replies
  • Hi, my name is Nare, I am from Armenia...I have a friend with Wilson's disease. She found out about it a year ago, but Armenian doctors dont know about this disease and despite the treatment she is in ...

WD doctor in Los Angeles Area please!!!

byul08
  • By byul08 · New reply February 14, 2014
  • 11 replies
  • My 5 year old son is diagnosed with WD and looking to find a knowledgeable doctor in LA area preferably in orange county. thanks in advance ...

Someone please help me?

mb7646
  • By mb7646 · New reply January 3, 2014
  • 2 replies
  • I've still not got a diagnosis, looking through past test results, my ceruloplasmin has been even lower than what i realised before; My other results; 2013: (recovering drastically, highly limiting foods ...

speech therapist in wilson's disease needed

cns00
  • By cns00 · New reply November 4, 2013
  • 2 replies
  • I lost the ability to speak clearly when I was diagnosed with Wilson’s disease when I was 21 in 2001. I was given a high dose of d-penicillamine and that messed me up even more neurologically. My tongue ...

anybody with WD living in scotland?

lenka
  • By lenka · New reply November 3, 2013
  • 3 replies
  • Hello there! is there anybody living in scotland and have a specialist for WD? thanks ...

WD

Kirti
  • By Kirti · Posted August 29, 2013
  • 0 replies
  • Hello everyone, can anyone recommend a WD doc in Malaysia please ...

My Brother Adriaan

Adriaan
  • By Adriaan · New reply August 10, 2013
  • 2 replies
  • Hi, I don't know if you remember Adriaan's (44) story, but for the last 3 weeks it is not going well with him at all, he is starting to wet himself, as if the message is not going through to his bladder ...

Seeking doctors

oolgah
  • By oolgah · New reply May 4, 2013
  • 3 replies
  • Does anyone know of any doctors in the Chicago land area? Or all Illinois, Michigan, Wisconsin, Indiana area. I want to find a doctor that specializes in Wilson's disease and not make us the "guinea pig ...

recommend St Louis area opthamologist

voto23
  • By voto23 · New reply April 9, 2013
  • 4 replies
  • Hi everyone, I am being sent to check for Kayser-Fleischer rings. Just wondering if anyone has a recommendation for an opthamologist in the St. Louis area that has experience with this? Thanks, Kathy ...

Please Recommend a UK Doctor

bluebell342 (Inactive)
  • By bluebell342 (Inactive) · New reply February 17, 2013
  • 4 replies
  • I am going around in circles with this, wondering if I have WD. I have many symptoms, but of course WD is so rare. I know this group is not for diagnosis. I think I just need to get tested and settle ...

Help w/liver biopsy -Now 14 y.o. Being treated with ivig since liver biopsy

moocow5598
  • By moocow5598 · New reply December 3, 2012
  • 4 replies
  • I have been on discussions b4 regarding my 13 y.o. , has since turned 14 in the months we have been dealing with this. My question is we have gone since June working on a diagnosis of Wilson's. Liver ...

Best Doctor ever!

lorenwang
  • By lorenwang · New reply September 22, 2012
  • 6 replies
  • My doctor is very expecial because he got me medications alot cheap. He recommend me to order Online with a pharmacy. The pharmacy is called Medicines Mexico ...

Georgia WD specialist

daila
  • By daila · New reply August 28, 2012
  • 5 replies
  • Hello, everybody Please, help to find a WD specialist in Georgia.. I have a specialist in USA, GA but his specialisation is liver desease doctor, but I need especially WD specialist, who can treat me ...

Henrietta Salazar left UCLA

WendyFrem
  • By WendyFrem · New reply August 6, 2012
  • 5 replies
  • Henrietta Salazar left UCLA in Los Angeles Does anyone have a suggestion who I might see to get help with a diagnosis.Thank you, Wendy ...

doctors for wd

ome
  • By ome · New reply July 26, 2012
  • 2 replies
  • please any body can help to inform about the doctors who are specialists in wilson disease in KOLKATA or in DELHI. INDIA PLEASE URGENT ...

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