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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Discussion topics
Newly diagnosed
Start here for help! Discuss what to expect and where to look for help.
Books about Wilson's Disease
- By Andrie · New reply October 22, 2009
- 5 replies
- I just ordered the book "Wilson's Disease for the Patient and Family: A Patient's Guide to Wilson's Disease and Frequently Asked Questions about Copper" by George J. Brewer M.D. Has anyone else read this ...
All 37 discussions...
Getting a diagnosis
Challenges you have, or are, going through in obtaining a proper diagnosis.
Wilson's Disease
- By pathik · New reply August 6, 2009
- 24 replies
- Hi to Everyone, I have been found a low celuroplasmin for .15 and 24-hour urinary copper tests are also positive. But i have not been found with any k.f. ring. I have many nurological problems as tremors ...
All 20 discussions...
Finding a doctor
Help finding a healthcare professional or institution familiar with Wilson's disease
Finding the right doctor
- By WDmommy · New reply October 31, 2009
- 1 reply
- Finding the right doctor is half the challenge with any disorder or illness. You need someone who will listen and who is willing to admit when they don't know the answers. Since WD is such a rare thing ...
All 10 discussions...
Personal stories
Introduce yourself and tell your story.
My husband has WD
- By evelyn123 · New reply yesterday at 11:30 pm
- 4 replies
- My husband was diagnosed with WD, 2 years ago and is currently taking Syprine (trientine hydrochloride) on a daily basis. We have been trying to conceive for the past 1 year+ but to no avail. I'm worried ...
All 22 discussions...
Parenting issues
Family relationships, compliance, guiding a child with Wilson's disease.
AAHD Scholarship Program
- By Kimberly5 · Posted August 13, 2009
- 0 replies
- Dear Friends, The American Association on Health and Disability (AAHD) is proud to announce the creation of the 2009 AAHD Scholarship Program. The AAHD Scholarship Program will support students with disabilities ...
All 5 discussions...
Teen chat
Discuss issues which are important to you.
Sick of it
- By alysa88 · New reply October 5, 2008
- 22 replies
- Has anyone gotten sick of taking their meds? I need help..I was diagnosed with WD when I was 13 years old and I am now 19.. When I was first diagnosed I had alot of the neurologic systems i.e. tremors ...
All 2 discussions...
Genetics and diagnosis
Wilson's disease genetics, being diagnosed with Wilson's disease, and carrier testing.
Wilson's patient's children
- By Stacey221 · New reply November 4, 2009
- 4 replies
- I am a mother of 2 who just found out I have Wilson's. I am getting my children's blood work done this week to see what the ceruloplasmin and liver enzymes are. My children are 3 and 6. If anyone else ...
All 4 discussions...
Depression
Questions and input from individuals with Wilson's disease who deal with depression.
does depression lead to a person hearing voices in their head?
- By mom61 · New reply September 18, 2009
- 4 replies
- my daughter was diagnosed at age 27, with WD in '96 ,she is now 40 and has been on different meds for years,some she takes for WD and some for depression,but now she is experiencing hearing voices and ...
All 4 discussions...
Pregnancy
Questions and input from women who want to be, are, or have been pregnant.
can a wilsons disease sufferer have children
- By Nikkii · New reply October 15, 2009
- 12 replies
- I was told by my doctor that I can't have children and if I did fall pregnant it would be dangerouse so my husband had a vesetomey. I have seen a few parents on here and am confused and a bit up set because ...
All 8 discussions...
Treatment options
Questions and answers to the various pharmaceutical options. Medical treatments that worked for others.
Galzin zinc acetate v.s. OTC zinc
- By Stacey221 · New reply yesterday at 11:48 pm
- 24 replies
- Is over the counter zinc gluconate (or something similar to that) as effective as Galzin? I was wondering what types of zinc everyone was on and how effective it has been for them. If you have bought ...
All 34 discussions...
Transplantation
Share your liver transplant experience with fellow transplant recipients and those who may be awaiting a transplant.
Would I still have Wilson's Disease after a Transplant?
- By Lady2009 · New reply June 7, 2009
- 2 replies
- Hello, I had a transplant when I was 12 years old. I am 28 now have only had two rejections and that was after the transplant and one when I was 20 as far as I can recall. I have had a very rough between ...
All 2 discussions...
Loving memories
Please feel free to begin a topic with the name of your loved one. Share your grief, memories, and comfort.
Wanted to say Thank you
- By kitcat629 · New reply June 25, 2008
- 8 replies
- Just wanted to say thank you for your responses. My son got his new liver last week on wed. Everything was looking good and then he passed away on thursday due to a heart attack from high potassium ...
All discussions...
Help desk
Have a question about using the site? An idea for making it better? Post here and let us know how we can help.
losing my health insurance
- By tis2a6 · New reply October 15, 2009
- 1 reply
- iam within 2 weeks of losing my health insurance because of finances. i live in lee county( FORT MYERS,FLORIDA) and am fearful of not being able to see my doctor and get lab tests and all the tests that ...
