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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Discussion topics
Newly diagnosed
Start here for help! Discuss what to expect and where to look for help.
Brother with WD is really bad
- By AmyKofKS · New reply November 14, 2009
- 17 replies
- I posted a message a few weeks ago concerning my brother who was recently diagnosed with WD. I received responses with encouraging words but am posting now because it seems like overnight the disease ...
All 37 discussions...
Getting a diagnosis
Challenges you have, or are, going through in obtaining a proper diagnosis.
Anemic
- By Scribner · Posted November 13, 2009
- 0 replies
- My daughter has been on Syprine for over a year and her copper levels are all over the place. They are down from what they were when she started, but still almost 700. NOW.... her labs have went backwards ...
All 21 discussions...
Finding a doctor
Help finding a healthcare professional or institution familiar with Wilson's disease
Finding the right doctor
- By WDmommy · New reply November 15, 2009
- 2 replies
- Finding the right doctor is half the challenge with any disorder or illness. You need someone who will listen and who is willing to admit when they don't know the answers. Since WD is such a rare thing ...
All 10 discussions...
Personal stories
Introduce yourself and tell your story.
Wilson's Disease - how long does it take to de-copper
- By Stacey221 · New reply November 10, 2009
- 10 replies
- I was recently diagnosed with WD. I was prescribed syprine (trientine) 3 times a day. My doctor mentioned being on that 1-2 years then switching to zinc acetate. I was diagnosed before symptoms showed ...
All 22 discussions...
Parenting issues
Family relationships, compliance, guiding a child with Wilson's disease.
AAHD Scholarship Program
- By Kimberly5 · Posted August 13, 2009
- 0 replies
- Dear Friends, The American Association on Health and Disability (AAHD) is proud to announce the creation of the 2009 AAHD Scholarship Program. The AAHD Scholarship Program will support students with disabilities ...
All 5 discussions...
Teen chat
Discuss issues which are important to you.
Sick of it
- By alysa88 · New reply October 5, 2008
- 22 replies
- Has anyone gotten sick of taking their meds? I need help..I was diagnosed with WD when I was 13 years old and I am now 19.. When I was first diagnosed I had alot of the neurologic systems i.e. tremors ...
All 2 discussions...
Genetics and diagnosis
Wilson's disease genetics, being diagnosed with Wilson's disease, and carrier testing.
Wilson's patient's children
- By Stacey221 · New reply November 4, 2009
- 4 replies
- I am a mother of 2 who just found out I have Wilson's. I am getting my children's blood work done this week to see what the ceruloplasmin and liver enzymes are. My children are 3 and 6. If anyone else ...
All 4 discussions...
Depression
Questions and input from individuals with Wilson's disease who deal with depression.
does depression lead to a person hearing voices in their head?
- By mom61 · New reply September 18, 2009
- 4 replies
- my daughter was diagnosed at age 27, with WD in '96 ,she is now 40 and has been on different meds for years,some she takes for WD and some for depression,but now she is experiencing hearing voices and ...
All 4 discussions...
Pregnancy
Questions and input from women who want to be, are, or have been pregnant.
can a wilsons disease sufferer have children
- By Nikkii · New reply November 15, 2009
- 13 replies
- I was told by my doctor that I can't have children and if I did fall pregnant it would be dangerouse so my husband had a vesetomey. I have seen a few parents on here and am confused and a bit up set because ...
All 8 discussions...
Treatment options
Questions and answers to the various pharmaceutical options. Medical treatments that worked for others.
Galzin zinc acetate v.s. OTC zinc
- By Stacey221 · New reply November 18, 2009
- 28 replies
- Is over the counter zinc gluconate (or something similar to that) as effective as Galzin? I was wondering what types of zinc everyone was on and how effective it has been for them. If you have bought ...
All 35 discussions...
Transplantation
Share your liver transplant experience with fellow transplant recipients and those who may be awaiting a transplant.
Would I still have Wilson's Disease after a Transplant?
- By Lady2009 · New reply June 7, 2009
- 2 replies
- Hello, I had a transplant when I was 12 years old. I am 28 now have only had two rejections and that was after the transplant and one when I was 20 as far as I can recall. I have had a very rough between ...
All 2 discussions...
Loving memories
Please feel free to begin a topic with the name of your loved one. Share your grief, memories, and comfort.
Wanted to say Thank you
- By kitcat629 · New reply June 25, 2008
- 8 replies
- Just wanted to say thank you for your responses. My son got his new liver last week on wed. Everything was looking good and then he passed away on thursday due to a heart attack from high potassium ...
All discussions...
Help desk
Have a question about using the site? An idea for making it better? Post here and let us know how we can help.
I have a low platelet count
- By Nikkii · New reply November 12, 2009
- 4 replies
- I have a low platelet count from having an enlarged spleen and due to religious and personal reasons don't want a platelet transfusion I am going to have an operation and heard of a medication that can ...
