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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
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New journals
First urine test
- By buddynusa · Posted January 12, 2008
- 1 reply
- Hello all , well I did my first urine test sences being on syprine trientine.If came back good,Thank you dear God. the numbers from my lab are different then what I see on line, here and on the other ...
feeding tube
- By mic · Posted December 31, 2007
- 1 reply
- I am having so much touble eating, that the doctor say worst case I will need to get a feeding tube in my tummy, I am so scare! I looked some pictures up and they do not look good. Blend up food is not ...
GoodBye 2007 - Hello 2008
- By Rose5 · Posted December 30, 2007
- 0 replies
- Morning All xx Its New Years Eve here - another year coming to an end - and what an end of year that was for us - but the New Year 2008 will be a good one :) Positives all the way :)- One hurdle at a ...
Let it all out
- By mic · Posted December 24, 2007
- 4 replies
- I no longer have friends, my family is sick of me. I have hurt their feeling, lost contact with them and made them suffer with me. I feel like I have no future. I have two more class to get my grade 12 ...
Merry Christmas xx and an update..
- By Rose5 · Posted December 23, 2007
- 9 replies
- Morning All xx and wishing you and your families a very Merry Christmas All has been good here with Lauren - tho she goes up and down. She wont have another visit to the specialist till the 3rd of Jan ...
Dede
- By buddynusa · Posted December 20, 2007
- 0 replies
- dede, I saw you have joined the community, please let us know a little about you . like how long have you know you have WD ,what kinda of signs did you have and so on.I'am interrested because am 47 and ...
XX
- By mic · Posted December 19, 2007
- 5 replies
- I hang on tight today and went to do the blood work, they took 13 tudes, for the first time in my life I saw my dad cry. I very want to thank my dad, he's being taking my all my appointments. The health ...
Its been interesting...
- By Rose5 · Posted December 18, 2007
- 0 replies
- Hi All x Just got back from seeing Laurens specialist Don and all the tests have come up stable which is a good sign.I was concerned about the platelets dropping. We get along well and he shows me on ...
All is moving along .........
- By Rose5 · Posted December 14, 2007
- 3 replies
- Hi All x hope this finds you all well and you are all organized for Christmas :) Mine and my sons Liver function test and a on the spot urine test both came back normal - so therefore we dont have WD ...
All going well...
- By Rose5 · Posted December 6, 2007
- 4 replies
- First time I have taken a deep breath and felt relaxed since Lauren was diagnosed on the 1st of November - she is going well in hospital and her platelets have risen abit - so we have some good news there ...
buddynusa
- By buddynusa · Posted December 4, 2007
- 9 replies
- Hi , My name is Jim, 47 year old male .I was diagnosed with Wilson's disease within the last 3 months. In 2005 my liver function test came back,(ALT) 85 during my yearly physical, 30 over standard. In ...
Updating and Sharing Thoughts
- By Rose5 · Posted December 3, 2007
- 9 replies
- well its been over a month - Lauren is suppose to be going back to the hospital today and I hope to God they tell me the medicine is there - I just get so down and frustrated with this WAITING :( Lauren ...
Making some progress
- By Rose5 · Posted November 26, 2007
- 1 reply
- First of all just want to say a BIG Thankyou to you all in here as you have helped me so much - no matter how small your information was - was alot for me and has helped me and Lauren lots xx we really ...
I Would like some advice please.
- By Ali2 · Posted November 22, 2007
- 6 replies
- Hello hope this is the right place, any way.. Hello my name is Alistair and from England and in need of some advice on WD, i am 16 and have been going in and out of hospital for a few months now with ...
How it all started........
- By Rose5 · Posted November 18, 2007
- 0 replies
- This all started August 2007 - but looking back now that we know - was January of this year because thats when Lauren started retaining fluid 'slowly'. In August she came to me complaining that she was ...
Sharing thoughts........
- By Rose5 · Posted November 18, 2007
- 0 replies
- Morning All xx Just thought I would jot down a few things in my blog - its been a long 2weeks since my daughter Lauren found out she had Wilsons disease. I have learnt so much in the last 2 weeks too ...
Have just been diagnosed with wilson disease
- By lucinda · Posted November 5, 2007
- 7 replies
- Hi can anyone help! I have just been diagnosed with wilson disease, i have just been told to moderate everything and not too worry myself! I have now researched the internet and really worried now. They ...
Daughter just diagnosed at 15yrs old
- By Rose5 · Posted November 4, 2007
- 17 replies
- Hi, I was just told on Thursday that my daughter has Wilsons Disease so i have been scanning the web trying to take in as much information as i can so any feedback would be appreciated. Her doctors have ...
I Have a new Companion, Wilson
- By miny845 · Posted October 14, 2007
- 6 replies
- HI, I am Myrna, 39 years old, diagnosed in Aug 2007 and I am learning to live with Wilson ;o) Somehow the movie "Cast Away" pops in my mind everytime I say Wilson's. My sister was 42 when she died in ...
Lost my Mother
- By grieving_son · Posted October 10, 2007
- 5 replies
- Well, my name is Tim. I lost my mother just last week from Wilson's disease. We knew she had been sick, but due to a lack of insurance for my parents she was not diagnosed until very late. She saw a doctor ...
