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New discussions
Music
- By Scribner · Posted October 27, 2009
- In Personal stories · 0 replies
- Just a peacful note to share with all the Mom's on here that have a son with Wilson's (I have adaughter with Wilson's as well but haven't found one for her yet), my daughter knows I love music and found ...
Wilson's patient's children
- By Stacey221 · Posted October 27, 2009
- In Genetics and diagnosis · 4 replies
- I am a mother of 2 who just found out I have Wilson's. I am getting my children's blood work done this week to see what the ceruloplasmin and liver enzymes are. My children are 3 and 6. If anyone else ...
Galzin zinc acetate v.s. OTC zinc
- By Stacey221 · Posted October 27, 2009
- In Treatment options · 24 replies
- Is over the counter zinc gluconate (or something similar to that) as effective as Galzin? I was wondering what types of zinc everyone was on and how effective it has been for them. If you have bought ...
Seeking doctor
- By bb3907 · Posted October 26, 2009
- In Finding a doctor · 2 replies
- I live in north jersey and am looking for doctor to treat my condition. I am tired of going to doctor after doctor who I can tell as a lay person, they don't have a clue. I am beginning to develop severe ...
My husband has WD
- By evelyn123 · Posted October 20, 2009
- In Personal stories · 4 replies
- My husband was diagnosed with WD, 2 years ago and is currently taking Syprine (trientine hydrochloride) on a daily basis. We have been trying to conceive for the past 1 year+ but to no avail. I'm worried ...
Books about Wilson's Disease
- By Andrie · Posted October 20, 2009
- In Newly diagnosed · 5 replies
- I just ordered the book "Wilson's Disease for the Patient and Family: A Patient's Guide to Wilson's Disease and Frequently Asked Questions about Copper" by George J. Brewer M.D. Has anyone else read this ...
Wilson's Disease - how long does it take to de-copper
- By Stacey221 · Posted October 18, 2009
- In Personal stories · 9 replies
- I was recently diagnosed with WD. I was prescribed syprine (trientine) 3 times a day. My doctor mentioned being on that 1-2 years then switching to zinc acetate. I was diagnosed before symptoms showed ...
losing my health insurance
Wilsons disease
- By beechmom · Posted October 13, 2009
- In Personal stories · 13 replies
- Our oldest son 28 now has been not improving at all,what are we to do? The doctors told us with time and zinc he would get better. I have seen nothing but his body getting worse like he had a stroke,sleeping ...
can a wilsons disease sufferer have children
BETTER TREATMENT
- By RICHA · Posted September 30, 2009
- In Treatment options · 2 replies
- Dear Friends, Though I have recovered a lot by the treatment I am on since the last two decades but side - effects of the treatment also show. Dark patches on my body, constant regidity and pain and many ...
Finding the right doctor
- By WDmommy · Posted September 18, 2009
- In Finding a doctor · 1 reply
- Finding the right doctor is half the challenge with any disorder or illness. You need someone who will listen and who is willing to admit when they don't know the answers. Since WD is such a rare thing ...
does depression lead to a person hearing voices in their head?
- By mom61 · Posted September 15, 2009
- In Depression · 4 replies
- my daughter was diagnosed at age 27, with WD in '96 ,she is now 40 and has been on different meds for years,some she takes for WD and some for depression,but now she is experiencing hearing voices and ...
CONFIDENCE DISTURBANCE....
- By junaidshahs · Posted September 11, 2009
- In Personal stories · 3 replies
- Hi, I am Junaid Shah from Pakistan..... Until i have reached 16th year i was a very confident guy.... I was diagnosed as wilson's disease patient in august 2005.... and my date of birth is 13th feb 1984 ...
Seeking pure D-Penicillamine & Zn Acetate available in India.
- By anupam · Posted September 11, 2009
- In Treatment options · 8 replies
- Dear friends, I, a medical student from W.B., India, was diagnosed to have Wilson's Disease in Dec 23rd 1999. My treatment was in a hapazard way upto this February, Now, I'm in contact with Dr. Ashis ...
Doctor referral
- By kld05 · Posted September 7, 2009
- In Finding a doctor · 7 replies
- We found a specialist in Ann Arbor, Michigan thanks to help through this website, but now the doctors my goddaughter is going to refuse to refer her saying they have to run more tests. She is in stage ...
Treating with chemo
- By kld05 · Posted September 7, 2009
- In Treatment options · 2 replies
- My goddaughter is in stage 2 liver failure and the doctors (who admit that they have never treated this disease before) have doubled her chemo treatments and refuse to refer her to a specialist we found ...
health insurance
- By divinemissem · Posted September 5, 2009
- In Help desk · 10 replies
- Hello, I do not get health insurance through my job and so I am looking for private insurance that will cover my wilson's disease meds and check ups. Any ideas? Thank you, Emily ...
Galzin treatment working so far!
- By WDmommy · Posted August 30, 2009
- In Treatment options · 0 replies
- My 6-yr old daughter recently started taking Galzin (25mg) three times a day. Her urine copper is almost to "normal" values and she has had NO side-effects. The hardest part has been making sure it is ...
Update since starting zinc maintenance therapy
- By Maya · Posted August 25, 2009
- In Treatment options · 6 replies
- Hi there all, Sometime time back i wrote about my son Remo starting zinc therapy, commenced in January 2009 with zinc picolinate 150mgs daily, well tolerated, after about 6 weeks did 24hr urine test for ...
