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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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New
Denial gets you nowhere
- By bb3907 · Posted November 3, 2009
- Journal · 2 replies
- For years I was in denial about WD until more and more symptoms started to surface. I'm glad I found this site because it helps to share your knowledge and exeriences with others like you ...
1st blog
- By mel9300 · Posted November 3, 2009
- Journal · 0 replies
- All in all, things for me have been going steady and well for a while. I am here to see if I might be able to help others ...
Inspire members featured
- By Brian · Posted October 28, 2009
- Journal · 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
Music
- By Scribner · Posted October 27, 2009
- Discussion in Personal stories · 0 replies
- Just a peacful note to share with all the Mom's on here that have a son with Wilson's (I have adaughter with Wilson's as well but haven't found one for her yet), my daughter knows I love music and found ...
Wilson's patient's children
- By Stacey221 · Posted October 27, 2009
- Discussion in Genetics and diagnosis · 4 replies
- I am a mother of 2 who just found out I have Wilson's. I am getting my children's blood work done this week to see what the ceruloplasmin and liver enzymes are. My children are 3 and 6. If anyone else ...
Galzin zinc acetate v.s. OTC zinc
- By Stacey221 · Posted October 27, 2009
- Discussion in Treatment options · 24 replies
- Is over the counter zinc gluconate (or something similar to that) as effective as Galzin? I was wondering what types of zinc everyone was on and how effective it has been for them. If you have bought ...
Seeking doctor
- By bb3907 · Posted October 26, 2009
- Discussion in Finding a doctor · 2 replies
- I live in north jersey and am looking for doctor to treat my condition. I am tired of going to doctor after doctor who I can tell as a lay person, they don't have a clue. I am beginning to develop severe ...
My husband has WD
- By evelyn123 · Posted October 20, 2009
- Discussion in Personal stories · 4 replies
- My husband was diagnosed with WD, 2 years ago and is currently taking Syprine (trientine hydrochloride) on a daily basis. We have been trying to conceive for the past 1 year+ but to no avail. I'm worried ...
Books about Wilson's Disease
- By Andrie · Posted October 20, 2009
- Discussion in Newly diagnosed · 5 replies
- I just ordered the book "Wilson's Disease for the Patient and Family: A Patient's Guide to Wilson's Disease and Frequently Asked Questions about Copper" by George J. Brewer M.D. Has anyone else read this ...
Finally a Diagnosis
- By Andrie · Posted October 18, 2009
- Journal · 1 reply
- In August 2009, my 19 year old son started having physical symptoms that were not normal for his personality. His hands would tremble. Within 10 days he was having severe insomnia, and lack of appetite ...
Wilson's Disease - how long does it take to de-copper
- By Stacey221 · Posted October 18, 2009
- Discussion in Personal stories · 9 replies
- I was recently diagnosed with WD. I was prescribed syprine (trientine) 3 times a day. My doctor mentioned being on that 1-2 years then switching to zinc acetate. I was diagnosed before symptoms showed ...
losing my health insurance
Wilsons disease
- By beechmom · Posted October 13, 2009
- Discussion in Personal stories · 13 replies
- Our oldest son 28 now has been not improving at all,what are we to do? The doctors told us with time and zinc he would get better. I have seen nothing but his body getting worse like he had a stroke,sleeping ...
can a wilsons disease sufferer have children
BETTER TREATMENT
- By RICHA · Posted September 30, 2009
- Discussion in Treatment options · 2 replies
- Dear Friends, Though I have recovered a lot by the treatment I am on since the last two decades but side - effects of the treatment also show. Dark patches on my body, constant regidity and pain and many ...
Finding the right doctor
- By WDmommy · Posted September 18, 2009
- Discussion in Finding a doctor · 1 reply
- Finding the right doctor is half the challenge with any disorder or illness. You need someone who will listen and who is willing to admit when they don't know the answers. Since WD is such a rare thing ...
what do i do?
- By a_powerfully_mind · Posted September 16, 2009
- Journal · 17 replies
- i just found out that i can't play sports any more and i have nothing to focus all the bad energy on ...
Sceduling of meds
- By kc89 · Posted September 15, 2009
- Journal · 5 replies
- Hi everyone, I was recently diagnosed of WD about three months ago and am now seeing a specialist in Chicago. I am taking syprine twice a day along with Galzin three times a day. Since they have to be ...
does depression lead to a person hearing voices in their head?
- By mom61 · Posted September 15, 2009
- Discussion in Depression · 4 replies
- my daughter was diagnosed at age 27, with WD in '96 ,she is now 40 and has been on different meds for years,some she takes for WD and some for depression,but now she is experiencing hearing voices and ...
CONFIDENCE DISTURBANCE....
- By junaidshahs · Posted September 11, 2009
- Discussion in Personal stories · 3 replies
- Hi, I am Junaid Shah from Pakistan..... Until i have reached 16th year i was a very confident guy.... I was diagnosed as wilson's disease patient in august 2005.... and my date of birth is 13th feb 1984 ...
