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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Active journals
new to group, info please
- By jas · New reply November 13, 2008
- 6 replies
- Hello to all: I was diagnosed with WD last week and I'm so depressed. I also have severe gastro paresis and have a pacemaker implanted to work my stomach that has no peristolic movement. My question is ...
Biopsy gone wrong
- By pinkflowers24 · New reply September 26, 2008
- 9 replies
- I had a needle core biopsy done on August 25th. I did what they told me to do, but when the sterrie strips came off it got infected. I had red streaks coming from it, so I went to my doctor and they put ...
son with WD
- By pedsrn9999 · New reply September 19, 2008
- 4 replies
- My 21 year old son who was previously very healthy suddenly presented with jaundice about 5 weeks ago. I took him to the ER and he was admitted and diagnosed with WD. They are pushing to place him on ...
I've been told I was crazy for years
- By genniboe · New reply September 3, 2008
- 3 replies
- Last month I started having bad seizures/spasms. My dr. sent me to a neurologist who did heavy metal testing, incl the 24 hour copper test. I felt like the dr. was going to tell me once more that it was ...
Privacy and control
- By Brian · New reply September 1, 2008
- 48 replies
- At Inspire, we think about privacy all the time. Virtually every web site has a privacy policy; you can read ours here: http://www.inspire.com/about/privacy/. But simply following the letter of a privacy ...
Welcome!
- By Brian · New reply August 31, 2008
- 19 replies
- I am pleased to present Inspire 2.0 -- the result of many months of fun and hard work. We have made numerous improvements to your community, the vast majority of which are ideas that came from you! We ...
Web address for AU source of D-Penamine
- By GabsMom · New reply August 27, 2008
- 2 replies
- This requires an AU script to purchase. Not sure how someone in the US gets one. But here is the web URL for the AU D-Penamine. http://www.myshopping.com.au/PT--219_Dpe namine__fs_s68378_e ...
Why is D-Penamine cheap in AU and expensive in the US?
- By GabsMom · Posted August 22, 2008
- 0 replies
- I have been researching the cost of D-Penamine (penicillamine) since my dog Gabby has been diagnosed with copper storage disease. I was amazed to find that I could buy brand name (D-Penamine) in AU for ...
Lucky Rosepetal
- By Schwebke · New reply July 23, 2008
- 3 replies
- You are a lucky and determined lady Rosepetal. Just remember to be vigilant about your care and treatment. You have succeeded brilliantly. Never let depression or self pity overwhelm you. You are a winner ...
Trientine
- By Casca · New reply July 21, 2008
- 6 replies
- How long will it take to see the effect of using Trientine? I started two weeks ago with 400 mg 3 times a day. I'm also taking Wilzin (zinc) 50mg 3 times a day for more than 7 months now. Still have no ...
From the beginning till now
- By Casca · New reply July 12, 2008
- 15 replies
- December 2006: - My colleagues have said that i had changed in my behaviour. Spring 2007: - Able to walk, but only at one speed - Difficulties with orientation - Tired most of the time Summer 2007 ...
Sometimes we make mistakes
- By Brian · New reply May 27, 2008
- 34 replies
- Two months ago, when we launched Inspire 2.0, we added a group called 'Team Inspire'. We did this with the best intentions: we wanted the group to be a space for new members to get oriented, ask questions ...
New feature - additional reply notifications
- By Walter · New reply May 9, 2008
- 19 replies
- Hello everyone. We just added a new feature to help you follow the conversations that you are participating in. You will now get a notification whenever someone replies directly to one of your replies ...
New feature - See what you've replied to
- By Walter · New reply April 30, 2008
- 26 replies
- Hello everyone. We just added a feature that many of you have requested - a list of all of the posts that you have replied to. To get to your list, all you need to do is: 1. Sign in 2. Click "Me" in the ...
Being Diagnosed with WD
- By bluetree · New reply April 21, 2008
- 8 replies
- I am new to this, and would like to say hi to everyone. I am in the middle of diagnoses for WD. I am having severe nuerological problems over the last six weeks. My spelling and writing was bad before ...
Changes that you have requested are on the way
- By Beth · New reply April 7, 2008
- 15 replies
- Hello everyone. We've been hard at work on many of the great suggestions that you've sent us. This week we've been cooking up some changes to the group home page, and hope to make them public very soon ...
Welcome from TeamInspire!
- By TeamInspire · New reply April 7, 2008
- 35 replies
- Hello, old friends and new. Today is a big day for us! We have made numerous improvements to your community, most that were suggestions from you. As you can see the site is very different then before ...
Lost my Mother
- By grieving_son · New reply March 18, 2008
- 5 replies
- Well, my name is Tim. I lost my mother just last week from Wilson's disease. We knew she had been sick, but due to a lack of insurance for my parents she was not diagnosed until very late. She saw a doctor ...
I Would like some advice please.
- By Ali2 · New reply March 17, 2008
- 6 replies
- Hello hope this is the right place, any way.. Hello my name is Alistair and from England and in need of some advice on WD, i am 16 and have been going in and out of hospital for a few months now with ...
Getting a transplant
- By Gina001 · New reply March 12, 2008
- 2 replies
- So follow up tests have been done. My drug therapy is working well. I never miss a dose. The copper is coming off just as it should. But even as the copper copper comes off ,my cirrhosis and liver damage ...
