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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Active journals
A medication question
- By Manickmutt · New reply March 19, 2009
- 19 replies
- I have been doing well, first on cuprimine, and now on zinc, for about 30 years, after having been devastatingly ill for nearly 15. I am currently doing my student teaching late in life toward an elementary ...
I got a fever and it ain't cowbell
- By Aang · Posted March 18, 2009
- 0 replies
- I had the weirdest set of symptoms yesterday and last night. It was 80 degrees here (VERY warm for Kansas and March) and I was cold all day. I got home and was clearly running a fever. Took 2 Tylenol ...
Doctor Search
- By Manickmutt · New reply March 12, 2009
- 2 replies
- I had previously posted a message looking for a WD doctor near Bethlehem, Pa. I could easily get to NYC, if anyone knows of someone there. Philadelphia is far more difficult transportation-wise. I know ...
Transplant List Evaluation Week - Post
- By Aang · New reply March 10, 2009
- 1 reply
- We live over an hour away from the transplant hospital. It was grueling to make that drive for five days in a row through rush hour traffic and be there before 7:00 AM. I couldn't make that commute for ...
Transplant List Evaluation Week
- By Aang · New reply March 4, 2009
- 1 reply
- I've been filling out some of the forms before my first day of transplant evaluation. The first forms are for the financial evaluation to see if my income and insurance will be enough to make me a viable ...
Home again
- By Aang · New reply February 25, 2009
- 1 reply
- My EGD went very smoothly and fast this morning. They were on time and my liver specialist was actually down in the EGD center. I overheard him telling the nurses that if he didn't do at least one scope ...
My next EGD
- By Aang · New reply February 23, 2009
- 1 reply
- I have another EGD scheduled for tomorrow. Should be uneventful since I just had one in the hospital last month. Endoscopy has moved recently at KU Med from the basement in the old part of the hospital ...
transplant
- By pedsrn9999 · New reply February 10, 2009
- 16 replies
- Well, after two months of trying everything to save Dimitri's liver it appears we have lost the race. He is decompensating quickly and has been placed on the transplant list. Hopefully it will not be ...
Status: 1/2009
- By espower · New reply February 6, 2009
- 7 replies
- Ben, 8, is on Trientine and will probably go directly to long term zinc treatment with a fully functional liver. Gwen, 10, suffers from cirrhosis of the liver, was on Penacillamine until recently, and ...
What a week makes...
- By Aang · Posted February 5, 2009
- 0 replies
- I've been out of the hospital for a week, now. I was admitted because of a small GI bleed (again). I'm so in tune with my body that I knew during the night that it was happening by how restless I was ...
KF Rings Discovered in both eyes
- By epsiloneb · New reply February 4, 2009
- 3 replies
- Hello; I had my eyes examined Friday and my eye doctor found KF rings in both of my eyes. I have spent a lot of time on the internet this weekend seeking information on Wilson's Disease and I must admit ...
First Entry
- By Aang · New reply February 4, 2009
- 3 replies
- Hi, Aang's not my real name, but there is a play on words between Aang, Avatar and what the computer definition of avatar is from the author Neal Stephenson. I was diagnosed in 2002 at the age of 31 ...
New group in Inspire: The National Body Challenge
- By Brian · New reply January 12, 2009
- 25 replies
- I am pleased to announce that today we added a new group to Inspire: The National Body Challenge. nationalbodychallenge We created this group in partnership with Discovery Health. The group focuses on ...
Happy New Year
- By RICHA · New reply January 7, 2009
- 3 replies
- Dear friends, I wish all of you a very happy new yea. May the year 2009 brings hope, happiness and peace in our lives! Love to all! Rosepetal, India ...
MAKE WILSON DISEASE AS DIABETES TYPE 2
- By NARENDRA_LIMAYE · New reply January 1, 2009
- 3 replies
- IF DIAGNOSED EARLIER AND TREATED WITH ZINC THERAPY CAN THIS DISEASE BE EASILY TREATABLE AND BROUGHT WITHIN CONTROL LIKE DIABETES 2AND NOT TO BE FEARED AS FATAL OR PERMANENTLY DISABLING FOR LIFE? I was ...
Why are we here?
- By Brian · New reply December 16, 2008
- 135 replies
- When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...
ughh
- By 15andconfused · New reply December 15, 2008
- 3 replies
- hi im 15 was pregnant and had an abortion help im hurtn n hav no1 to tlk to tht undrstands i need sum1 ne1 help ...
hi
- By 15andconfused · Posted December 6, 2008
- 0 replies
- if u hav a myspace and want to add me n tlk to me thru ther my myspace is myspace.com/ilytjb im jus rele lookn for sum1 to help me get thru this tuff time ...
Parents Group for newly dx'd family
- By ctottenham · New reply November 28, 2008
- 6 replies
- Hi; I am e-mailing for a friend who is still in Boston Children's. Her daughter just got the dx subsequent to a fair amount of liver failure. My son also has a very rare chronic illness and 4 years ago ...
Hello and hugs to all:
- By jas · New reply November 20, 2008
- 2 replies
- Hello to all who have been so kind and supportive. I recently wrote and told you all of my diagnosis of Wilsons which really scared me. But for some reason, my copper fell about 50 points in just 7 days ...
