Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Active journals
what do i do?
- By a_powerfully_mind · New reply November 14, 2009
- 19 replies
- i just found out that i can't play sports any more and i have nothing to focus all the bad energy on ...
Denial gets you nowhere
- By bb3907 · New reply November 4, 2009
- 2 replies
- For years I was in denial about WD until more and more symptoms started to surface. I'm glad I found this site because it helps to share your knowledge and exeriences with others like you ...
Inspire members featured
- By Brian · New reply November 4, 2009
- 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
1st blog
- By mel9300 · Posted November 3, 2009
- 0 replies
- All in all, things for me have been going steady and well for a while. I am here to see if I might be able to help others ...
Finally a Diagnosis
- By Andrie · New reply October 19, 2009
- 1 reply
- In August 2009, my 19 year old son started having physical symptoms that were not normal for his personality. His hands would tremble. Within 10 days he was having severe insomnia, and lack of appetite ...
Sceduling of meds
- By kc89 · New reply October 17, 2009
- 5 replies
- Hi everyone, I was recently diagnosed of WD about three months ago and am now seeing a specialist in Chicago. I am taking syprine twice a day along with Galzin three times a day. Since they have to be ...
Feeling overwhelmed
- By Friend_for_life · New reply October 15, 2009
- 13 replies
- My best friend of 23 years has recently been diagnosed with W.D. She is so ill and I can't help her! I fear that she may die. I am not over exagerating about her condition, she is really sick. I only ...
Rejection
- By Scribner · New reply October 11, 2009
- 3 replies
- My son did have some rejection. We knew it pretty much because of his labs being so bad. What a rough month August was! We went to Mayo for his 1 year post transplant check up and they did a biopsy ...
Galzin is working!
- By WDmommy · Posted August 30, 2009
- 0 replies
- My daughter is on Galzin and so far it seems to be working. It was difficult to swallow at first, but now she's a "pro" and does it with minimal effort. Also, we've had no side-effects so far. I am so ...
what about trientine?
- By AnjaB7 · New reply August 17, 2009
- 10 replies
- hi again people! this is how my story goes further... i started treatment with artamin (d-penicillamin) on the 1st of may. since then my lab results have shown a great improvement, thank god! everything's ...
Guestbooks are now live!
- By TeamInspire · New reply August 15, 2009
- 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
Scheduled maintenance this evening
- By TeamInspire · New reply August 12, 2009
- 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
Severe WD/Feeding Tube Diet
- By AmyKofKS · New reply August 6, 2009
- 3 replies
- My brother was diagnosed with WD late last summer. In March of this year he took a drastic slide down hill in health. At this time he is no longer able to walk, talk, swallow, etc. He has been in and ...
My Life
- By pathik · Posted August 4, 2009
- 0 replies
- Life has been a challenge for me.I was much sick during my life's first five years that I was told by my parents that I was lucky that I saved my life. I had a very bright mind in my school life, but ...
Just got the news... I'm being put on a list
- By Aang · New reply July 30, 2009
- 7 replies
- I knew the time was coming after my last hospital stay. Two bleeds in 8 months are not signs of an improving condition. I got the call today that I'm to be evaluated for a transplant and will be put on ...
Cuprimine Available in Canada Again
- By Schwebke · New reply July 29, 2009
- 4 replies
- To all WD patients using Cuprimine in Canada. Health Canada has approved Cuprimine and it is fully available through your pharmacist again. Linda Ottawa, Ontario Canada ...
Very trying times
- By Scribner · New reply July 29, 2009
- 11 replies
- My (20 year old) son "missed" a day and a half of his anti-rejection meds (I don't know how , but it happened - can't change it now). He gets labs every 2 weeks. The labs from a couple weeks ago were ...
New to this!
- By kate63 · New reply July 14, 2009
- 4 replies
- What a great idea this is. I hope to find answers regarding insurance and doctors, and also for pain management; and in return to provide inspiration with my own experiences. The best medicine, in my ...
meds
- By cocolone · New reply July 11, 2009
- 2 replies
- My 6 year old dog has Wilson's and I have been giving him syprine as he had a horrible lung reaction with the cupramine that almost killed him. My business, like so many other people I know took a 75 ...
WITH WD
- By RICHA · New reply July 8, 2009
- 12 replies
- Friends, I am from India and I'm living with WD since my early childhood. Fighting with this disease is not easy. I was having a very tough childhood. My parents thought that I am spoiling or getting ...
