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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
What a week makes...
- By Aang · Posted February 5, 2009
- 0 replies
- I've been out of the hospital for a week, now. I was admitted because of a small GI bleed (again). I'm so in tune with my body that I knew during the night that it was happening by how restless I was ...
Living the dream
- By QueenofCopper · Posted February 5, 2009
- 4 replies
- Hello all.. I am happy to be a part of this website.. Finally i have arrived! I was diagnosed with Wilson's Disease back in 1974.. Everyday i think of why i am still here, and his name is Frank, my oldest ...
First Entry
- By Aang · Posted February 4, 2009
- 3 replies
- Hi, Aang's not my real name, but there is a play on words between Aang, Avatar and what the computer definition of avatar is from the author Neal Stephenson. I was diagnosed in 2002 at the age of 31 ...
KF Rings Discovered in both eyes
- By epsiloneb · Posted January 23, 2009
- 3 replies
- Hello; I had my eyes examined Friday and my eye doctor found KF rings in both of my eyes. I have spent a lot of time on the internet this weekend seeking information on Wilson's Disease and I must admit ...
Status: 1/2009
- By espower · Posted January 19, 2009
- 7 replies
- Ben, 8, is on Trientine and will probably go directly to long term zinc treatment with a fully functional liver. Gwen, 10, suffers from cirrhosis of the liver, was on Penacillamine until recently, and ...
Happy New Year
- By RICHA · Posted December 28, 2008
- 3 replies
- Dear friends, I wish all of you a very happy new yea. May the year 2009 brings hope, happiness and peace in our lives! Love to all! Rosepetal, India ...
hi
- By 15andconfused · Posted December 6, 2008
- 0 replies
- if u hav a myspace and want to add me n tlk to me thru ther my myspace is myspace.com/ilytjb im jus rele lookn for sum1 to help me get thru this tuff time ...
ughh
- By 15andconfused · Posted December 6, 2008
- 3 replies
- hi im 15 was pregnant and had an abortion help im hurtn n hav no1 to tlk to tht undrstands i need sum1 ne1 help ...
New group in Inspire: The National Body Challenge
- By Brian · Posted December 4, 2008
- 25 replies
- I am pleased to announce that today we added a new group to Inspire: The National Body Challenge. nationalbodychallenge We created this group in partnership with Discovery Health. The group focuses on ...
Hello and hugs to all:
- By jas · Posted November 13, 2008
- 2 replies
- Hello to all who have been so kind and supportive. I recently wrote and told you all of my diagnosis of Wilsons which really scared me. But for some reason, my copper fell about 50 points in just 7 days ...
new to group, info please
- By jas · Posted November 2, 2008
- 6 replies
- Hello to all: I was diagnosed with WD last week and I'm so depressed. I also have severe gastro paresis and have a pacemaker implanted to work my stomach that has no peristolic movement. My question is ...
Parents Group for newly dx'd family
- By ctottenham · Posted October 23, 2008
- 6 replies
- Hi; I am e-mailing for a friend who is still in Boston Children's. Her daughter just got the dx subsequent to a fair amount of liver failure. My son also has a very rare chronic illness and 4 years ago ...
transplant
- By pedsrn9999 · Posted October 11, 2008
- 16 replies
- Well, after two months of trying everything to save Dimitri's liver it appears we have lost the race. He is decompensating quickly and has been placed on the transplant list. Hopefully it will not be ...
Biopsy gone wrong
- By pinkflowers24 · Posted September 22, 2008
- 9 replies
- I had a needle core biopsy done on August 25th. I did what they told me to do, but when the sterrie strips came off it got infected. I had red streaks coming from it, so I went to my doctor and they put ...
son with WD
- By pedsrn9999 · Posted September 18, 2008
- 4 replies
- My 21 year old son who was previously very healthy suddenly presented with jaundice about 5 weeks ago. I took him to the ER and he was admitted and diagnosed with WD. They are pushing to place him on ...
I've been told I was crazy for years
- By genniboe · Posted September 2, 2008
- 3 replies
- Last month I started having bad seizures/spasms. My dr. sent me to a neurologist who did heavy metal testing, incl the 24 hour copper test. I felt like the dr. was going to tell me once more that it was ...
Privacy and control
- By Brian · Posted August 27, 2008
- 48 replies
- At Inspire, we think about privacy all the time. Virtually every web site has a privacy policy; you can read ours here: http://www.inspire.com/about/privacy/. But simply following the letter of a privacy ...
Web address for AU source of D-Penamine
- By GabsMom · Posted August 22, 2008
- 2 replies
- This requires an AU script to purchase. Not sure how someone in the US gets one. But here is the web URL for the AU D-Penamine. http://www.myshopping.com.au/PT--219_Dpe namine__fs_s68378_e ...
Why is D-Penamine cheap in AU and expensive in the US?
- By GabsMom · Posted August 22, 2008
- 0 replies
- I have been researching the cost of D-Penamine (penicillamine) since my dog Gabby has been diagnosed with copper storage disease. I was amazed to find that I could buy brand name (D-Penamine) in AU for ...
Lucky Rosepetal
- By Schwebke · Posted July 19, 2008
- 3 replies
- You are a lucky and determined lady Rosepetal. Just remember to be vigilant about your care and treatment. You have succeeded brilliantly. Never let depression or self pity overwhelm you. You are a winner ...
