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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
I want to have a healthy baby!
- By Lady2009 · Posted June 2, 2009
- 1 reply
- I have WD, I received a Transplant in '92 I was 12 now I am 28. My clock is ticking! I need advice on the proper procedures I should take, I already met with the OB/GYN Doctor he recommended me to the ...
Guestbooks are now live!
- By TeamInspire · Posted May 26, 2009
- 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
a typical day
- By bandgeek72391 · Posted May 25, 2009
- 0 replies
- I have what doctors believe to be tourettes syndrome but i can't be officially diagnosed for a year. i also have OCD. every morning, before they diagnosed and started treating me for OCD, i would perform ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · Posted May 20, 2009
- 35 replies
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
disturbing 3 months for a 20yr old girl
- By AnjaB7 · Posted May 5, 2009
- 4 replies
- so, here's how it all started: it was almost three months ago when i woke up and noticed severe unexplained edemas on my legs, so i immediately went to my doctors. they took a blood and urine sample and ...
Moms, you rock!
- By TeamInspire · Posted May 1, 2009
- 0 replies
- Looking for a unique and extraordinary way to say "thank you" to your mom? In honor of Mother's Day, good friend of Inspire Dr. Gwenn (of http://www.PediatricsNow.com and http://www.DrGwennIsIn.com) will ...
WD 1952
- By sisandbros · Posted April 29, 2009
- 4 replies
- In 1952 one of my sibs was diagnosed with WD and had portacaval shunt at SFU Hospital. The shunt did not work and he continued to have symptoms, vomiting blood, headaches, weakness, fatigue. He continued ...
Wilson's Disease changed my life....
- By Bree_C · Posted April 23, 2009
- 6 replies
- In a matter of a few weeks I went from a normal 19 year old college student to a gravely ill girl. I first started feeling ill when i went home for my spring break march 7-15, 2009. Im, normally a morning ...
Intro
- By VBJunkee · Posted April 22, 2009
- 1 reply
- My name is Rob and I’m 37 years old. I was initially diagnosed with ADHD and depression because of severe fatigue, memory issues, and trouble concentrating [misdiagnosis?] after returning from Iraq a ...
Living with WD
- By Marta1983 · Posted April 21, 2009
- 1 reply
- I am from Poland. I am 26 right know. I was diagnosed with WD 4 years ago. I was the first one in my family, because none of us knew that we have some kind of genetic disease in our family. At the beginning ...
EGD (again)
- By Aang · Posted April 12, 2009
- 0 replies
- I've got another EGD scheduled this coming week. I'll be having them every four to six weeks until the varicies are under control. There was a time in 2003-2007 where I was going six months to a year ...
I got a fever and it ain't cowbell
- By Aang · Posted March 18, 2009
- 0 replies
- I had the weirdest set of symptoms yesterday and last night. It was 80 degrees here (VERY warm for Kansas and March) and I was cold all day. I got home and was clearly running a fever. Took 2 Tylenol ...
Transplant List Evaluation Week - Post
- By Aang · Posted March 8, 2009
- 1 reply
- We live over an hour away from the transplant hospital. It was grueling to make that drive for five days in a row through rush hour traffic and be there before 7:00 AM. I couldn't make that commute for ...
Doctor Search
- By Manickmutt · Posted March 7, 2009
- 2 replies
- I had previously posted a message looking for a WD doctor near Bethlehem, Pa. I could easily get to NYC, if anyone knows of someone there. Philadelphia is far more difficult transportation-wise. I know ...
Looking for a doctor
- By Manickmutt · Posted March 6, 2009
- 4 replies
- I was diagnosed about 32 years ago after losing my speech, ability to walk, balance, swallow and being overcome with tremors. After about 15 years, and a number of hospitalizations, including some for ...
A medication question
- By Manickmutt · Posted March 6, 2009
- 19 replies
- I have been doing well, first on cuprimine, and now on zinc, for about 30 years, after having been devastatingly ill for nearly 15. I am currently doing my student teaching late in life toward an elementary ...
Transplant List Evaluation Week
- By Aang · Posted March 1, 2009
- 1 reply
- I've been filling out some of the forms before my first day of transplant evaluation. The first forms are for the financial evaluation to see if my income and insurance will be enough to make me a viable ...
Home again
- By Aang · Posted February 25, 2009
- 1 reply
- My EGD went very smoothly and fast this morning. They were on time and my liver specialist was actually down in the EGD center. I overheard him telling the nurses that if he didn't do at least one scope ...
My next EGD
- By Aang · Posted February 23, 2009
- 1 reply
- I have another EGD scheduled for tomorrow. Should be uneventful since I just had one in the hospital last month. Endoscopy has moved recently at KU Med from the basement in the old part of the hospital ...
Just got the news... I'm being put on a list
- By Aang · Posted February 12, 2009
- 7 replies
- I knew the time was coming after my last hospital stay. Two bleeds in 8 months are not signs of an improving condition. I got the call today that I'm to be evaluated for a transplant and will be put on ...
