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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
Denial gets you nowhere
- By bb3907 · Posted November 3, 2009
- 2 replies
- For years I was in denial about WD until more and more symptoms started to surface. I'm glad I found this site because it helps to share your knowledge and exeriences with others like you ...
1st blog
- By mel9300 · Posted November 3, 2009
- 0 replies
- All in all, things for me have been going steady and well for a while. I am here to see if I might be able to help others ...
Inspire members featured
- By Brian · Posted October 28, 2009
- 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
Finally a Diagnosis
- By Andrie · Posted October 18, 2009
- 1 reply
- In August 2009, my 19 year old son started having physical symptoms that were not normal for his personality. His hands would tremble. Within 10 days he was having severe insomnia, and lack of appetite ...
what do i do?
- By a_powerfully_mind · Posted September 16, 2009
- 19 replies
- i just found out that i can't play sports any more and i have nothing to focus all the bad energy on ...
Sceduling of meds
- By kc89 · Posted September 15, 2009
- 5 replies
- Hi everyone, I was recently diagnosed of WD about three months ago and am now seeing a specialist in Chicago. I am taking syprine twice a day along with Galzin three times a day. Since they have to be ...
Rejection
- By Scribner · Posted September 3, 2009
- 3 replies
- My son did have some rejection. We knew it pretty much because of his labs being so bad. What a rough month August was! We went to Mayo for his 1 year post transplant check up and they did a biopsy ...
Galzin is working!
- By WDmommy · Posted August 30, 2009
- 0 replies
- My daughter is on Galzin and so far it seems to be working. It was difficult to swallow at first, but now she's a "pro" and does it with minimal effort. Also, we've had no side-effects so far. I am so ...
Feeling overwhelmed
- By Friend_for_life · Posted August 22, 2009
- 13 replies
- My best friend of 23 years has recently been diagnosed with W.D. She is so ill and I can't help her! I fear that she may die. I am not over exagerating about her condition, she is really sick. I only ...
what about trientine?
- By AnjaB7 · Posted August 11, 2009
- 10 replies
- hi again people! this is how my story goes further... i started treatment with artamin (d-penicillamin) on the 1st of may. since then my lab results have shown a great improvement, thank god! everything's ...
Scheduled maintenance this evening
- By TeamInspire · Posted August 10, 2009
- 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
Severe WD/Feeding Tube Diet
- By AmyKofKS · Posted August 5, 2009
- 3 replies
- My brother was diagnosed with WD late last summer. In March of this year he took a drastic slide down hill in health. At this time he is no longer able to walk, talk, swallow, etc. He has been in and ...
My Life
- By pathik · Posted August 4, 2009
- 0 replies
- Life has been a challenge for me.I was much sick during my life's first five years that I was told by my parents that I was lucky that I saved my life. I had a very bright mind in my school life, but ...
Very trying times
- By Scribner · Posted July 23, 2009
- 11 replies
- My (20 year old) son "missed" a day and a half of his anti-rejection meds (I don't know how , but it happened - can't change it now). He gets labs every 2 weeks. The labs from a couple weeks ago were ...
New to this!
- By kate63 · Posted July 11, 2009
- 4 replies
- What a great idea this is. I hope to find answers regarding insurance and doctors, and also for pain management; and in return to provide inspiration with my own experiences. The best medicine, in my ...
meds
- By cocolone · Posted July 6, 2009
- 2 replies
- My 6 year old dog has Wilson's and I have been giving him syprine as he had a horrible lung reaction with the cupramine that almost killed him. My business, like so many other people I know took a 75 ...
alert for Aussies in Sydney area - cu levels high in WATER
- By Bel · Posted June 18, 2009
- 1 reply
- If you are living in, or travelling around Sydney please take special care - purchase water, get your home water levels tested...... Am only assuming there would be market gardens in vicinity?? Geographically ...
Iron Deficiency
- By Schwebke · Posted June 16, 2009
- 7 replies
- Does anyone who is taking cuprimine have iron deficiency? If so, is there any danger to taking iron suppplements? Any advice would be welcome. Thanks, Linda Ottawa, Ontario ...
Share your story via video!
- By TeamInspire · Posted June 15, 2009
- 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · Posted June 10, 2009
- 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
