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From the beginning till now

3 Recommendations

December 2006:
- My colleagues have said that i had changed in my behaviour.

Spring 2007:
- Able to walk, but only at one speed
- Difficulties with orientation
- Tired most of the time

Summer 2007:
- Less control over muscles
- Other symptoms worsened

My boyfriend and I thought that i maybe had Lyme disease.

After summer 2007 i went to the neurologist for these symptoms. They made an MRI scan of my brain. After a week they came with the results. The scan showed some white places in my brain on both sides. Left as well as right. In a symetric way. After some tests of blood, urine and fluid from bone marrow they diagnosed me for Wilson Disease.

Went to an Academic hospital in Amsterdam. Stayed there for a week weeks. They started with zinc treatement. Zinc acetate (Wilzin). Three times 50 mg a day. After a few days i wasn't unable to walk on my own any more. All my symptoms worsened a bit.

Now we are in may 2008 and i still have treatement with Zinc. Nothing changed actually. Soon we are going to start with an extra medicine. A treatment of Trientine for 4 months with zinc as well. Hopefully this will help.

Symptoms at the moment:
- unable to walk by myself
- unable to write
- unable to be alone actually
- tremors in arms and legs
- trouble with swallowing
- drooling a lot
- loosing weight

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