Finally a Diagnosis

In August 2009, my 19 year old son started having physical symptoms that were not normal for his personality. His hands would tremble. Within 10 days he was having severe insomnia, and lack of appetite. He soon started drooling, slurring words, pacing, obsessing about minor things, and would follow me around all day, having panic attacks (manic state) and difficulty swallowing. He lost 40 lbs in one month.
I took him to see his primary care physician who highly recommended that I take him to an emergency psychiatric hospital. He was admitted there for 4 days and released with a diagnosis of General Anxiety Disorder and a prescription of Xanax. I was not satisfied with that diagnosis and made an appointment with another psychiatrist. He recommened that we get a CAT scan and MRI. The MRI came back abnormal and he was admitted into the hospital for another 4 days and diagnosed as having had a series of strokes. The neurologist told me that at some point my son had been exposed to something toxic, such as heavy drug use. I knew my son did not take drugs. He's never even tried alcohol. I asked if he would transfer him to UT Southwestern Zale Lipshy hospital in Dallas Texas. He agreed and transferred my son that day.
We arrived at Zale Lipshy and was in ICU for 3 days. He was evaluated by the "stroke team." MRI's, and every other kind of test you can think of was performed. They evaluated him and recommended that he be seen by the Neurology team to determine if he had some type of genetic disorder. The neurologist evaulated him and recommended that the Hepatology team take a look at him. A liver scan determined cirrohsis and a liver biopsy was performed. (We are still waiting on those tests results)
After 10 days in the hospital, he was diagnosed with Wilson's disease.
He has a great doctor. Dr. Dwain Theile (who has 2 other Wilson cases). Dr. Theile prescribed Syprine 500 mg 3 times a day. He advised to avoid foods high in copper and to be very patient over the next 3-6 months. He also will see a "movement" specialist and continue seeing a psychiatrist to treat the neurological symptoms. As Dr. Theile thinks the Parkinsonian symptoms will get worse before they start to improve.
My son has moved back home from college and will have to postpone his education for a year.
We are very hopeful that he will make a full recovery.

We are interested in your story about how you found out about Wilson's disease, the treatment plan being used and how long it took you to recover.