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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Active discussions
Galzin zinc acetate v.s. OTC zinc
- By Stacey221 · New reply yesterday at 11:48 pm
- In Treatment options · 24 replies
- Is over the counter zinc gluconate (or something similar to that) as effective as Galzin? I was wondering what types of zinc everyone was on and how effective it has been for them. If you have bought ...
My husband has WD
- By evelyn123 · New reply yesterday at 11:30 pm
- In Personal stories · 4 replies
- My husband was diagnosed with WD, 2 years ago and is currently taking Syprine (trientine hydrochloride) on a daily basis. We have been trying to conceive for the past 1 year+ but to no avail. I'm worried ...
Wilson's patient's children
- By Stacey221 · New reply November 4, 2009
- In Genetics and diagnosis · 4 replies
- I am a mother of 2 who just found out I have Wilson's. I am getting my children's blood work done this week to see what the ceruloplasmin and liver enzymes are. My children are 3 and 6. If anyone else ...
Finding the right doctor
- By WDmommy · New reply October 31, 2009
- In Finding a doctor · 1 reply
- Finding the right doctor is half the challenge with any disorder or illness. You need someone who will listen and who is willing to admit when they don't know the answers. Since WD is such a rare thing ...
Seeking doctor
- By bb3907 · New reply October 27, 2009
- In Finding a doctor · 2 replies
- I live in north jersey and am looking for doctor to treat my condition. I am tired of going to doctor after doctor who I can tell as a lay person, they don't have a clue. I am beginning to develop severe ...
Music
- By Scribner · Posted October 27, 2009
- In Personal stories · 0 replies
- Just a peacful note to share with all the Mom's on here that have a son with Wilson's (I have adaughter with Wilson's as well but haven't found one for her yet), my daughter knows I love music and found ...
Seeking pure D-Penicillamine & Zn Acetate available in India.
- By anupam · New reply October 26, 2009
- In Treatment options · 8 replies
- Dear friends, I, a medical student from W.B., India, was diagnosed to have Wilson's Disease in Dec 23rd 1999. My treatment was in a hapazard way upto this February, Now, I'm in contact with Dr. Ashis ...
Books about Wilson's Disease
- By Andrie · New reply October 22, 2009
- In Newly diagnosed · 5 replies
- I just ordered the book "Wilson's Disease for the Patient and Family: A Patient's Guide to Wilson's Disease and Frequently Asked Questions about Copper" by George J. Brewer M.D. Has anyone else read this ...
Wilson's Disease - how long does it take to de-copper
- By Stacey221 · New reply October 20, 2009
- In Personal stories · 9 replies
- I was recently diagnosed with WD. I was prescribed syprine (trientine) 3 times a day. My doctor mentioned being on that 1-2 years then switching to zinc acetate. I was diagnosed before symptoms showed ...
Wilsons disease
- By beechmom · New reply October 17, 2009
- In Personal stories · 13 replies
- Our oldest son 28 now has been not improving at all,what are we to do? The doctors told us with time and zinc he would get better. I have seen nothing but his body getting worse like he had a stroke,sleeping ...
losing my health insurance
can a wilsons disease sufferer have children
Taking Syprine & Zinc
- By chadsmom · New reply October 7, 2009
- In Treatment options · 22 replies
- Can you take syprine and zinc together and both work ...
health insurance
- By divinemissem · New reply October 6, 2009
- In Help desk · 10 replies
- Hello, I do not get health insurance through my job and so I am looking for private insurance that will cover my wilson's disease meds and check ups. Any ideas? Thank you, Emily ...
Doctor referral
- By kld05 · New reply October 3, 2009
- In Finding a doctor · 7 replies
- We found a specialist in Ann Arbor, Michigan thanks to help through this website, but now the doctors my goddaughter is going to refuse to refer her saying they have to run more tests. She is in stage ...
BETTER TREATMENT
- By RICHA · New reply October 3, 2009
- In Treatment options · 2 replies
- Dear Friends, Though I have recovered a lot by the treatment I am on since the last two decades but side - effects of the treatment also show. Dark patches on my body, constant regidity and pain and many ...
does depression lead to a person hearing voices in their head?
- By mom61 · New reply September 18, 2009
- In Depression · 4 replies
- my daughter was diagnosed at age 27, with WD in '96 ,she is now 40 and has been on different meds for years,some she takes for WD and some for depression,but now she is experiencing hearing voices and ...
CONFIDENCE DISTURBANCE....
- By junaidshahs · New reply September 14, 2009
- In Personal stories · 3 replies
- Hi, I am Junaid Shah from Pakistan..... Until i have reached 16th year i was a very confident guy.... I was diagnosed as wilson's disease patient in august 2005.... and my date of birth is 13th feb 1984 ...
First time user- I am pregnant
Wilson's Patients in St. Louis, Missouri
- By Sis2WD · New reply September 9, 2009
- In Personal stories · 1 reply
- I am trying to help my sister who has WD find a support system in St. Louis, Missouri. I am reaching out to anyone who has either been diagnosed or has someone close to them diagnosed with WD to please ...
