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Active discussions
Galzin zinc acetate v.s. OTC zinc
- By Stacey221 · New reply November 18, 2009
- In Treatment options · 28 replies
- Is over the counter zinc gluconate (or something similar to that) as effective as Galzin? I was wondering what types of zinc everyone was on and how effective it has been for them. If you have bought ...
Finding the right doctor
- By WDmommy · New reply November 15, 2009
- In Finding a doctor · 2 replies
- Finding the right doctor is half the challenge with any disorder or illness. You need someone who will listen and who is willing to admit when they don't know the answers. Since WD is such a rare thing ...
can a wilsons disease sufferer have children
Brother with WD is really bad
- By AmyKofKS · New reply November 14, 2009
- In Newly diagnosed · 17 replies
- I posted a message a few weeks ago concerning my brother who was recently diagnosed with WD. I received responses with encouraging words but am posting now because it seems like overnight the disease ...
Drooling as a WD symptom
- By Atorres · New reply November 14, 2009
- In Treatment options · 9 replies
- Does anyone have experience dealing with drooling? My daughter has shown a lot of improvements on her dystonia and speaking issues since treatment has evolved almost a year from now when she was diagnosed ...
Anemic
- By Scribner · Posted November 13, 2009
- In Getting a diagnosis · 0 replies
- My daughter has been on Syprine for over a year and her copper levels are all over the place. They are down from what they were when she started, but still almost 700. NOW.... her labs have went backwards ...
I have a low platelet count
Wilson's Disease - how long does it take to de-copper
- By Stacey221 · New reply November 10, 2009
- In Personal stories · 10 replies
- I was recently diagnosed with WD. I was prescribed syprine (trientine) 3 times a day. My doctor mentioned being on that 1-2 years then switching to zinc acetate. I was diagnosed before symptoms showed ...
My husband has WD
- By evelyn123 · New reply November 6, 2009
- In Personal stories · 4 replies
- My husband was diagnosed with WD, 2 years ago and is currently taking Syprine (trientine hydrochloride) on a daily basis. We have been trying to conceive for the past 1 year+ but to no avail. I'm worried ...
Wilson's patient's children
- By Stacey221 · New reply November 4, 2009
- In Genetics and diagnosis · 4 replies
- I am a mother of 2 who just found out I have Wilson's. I am getting my children's blood work done this week to see what the ceruloplasmin and liver enzymes are. My children are 3 and 6. If anyone else ...
Seeking doctor
- By bb3907 · New reply October 27, 2009
- In Finding a doctor · 2 replies
- I live in north jersey and am looking for doctor to treat my condition. I am tired of going to doctor after doctor who I can tell as a lay person, they don't have a clue. I am beginning to develop severe ...
Music
- By Scribner · Posted October 27, 2009
- In Personal stories · 0 replies
- Just a peacful note to share with all the Mom's on here that have a son with Wilson's (I have adaughter with Wilson's as well but haven't found one for her yet), my daughter knows I love music and found ...
Seeking pure D-Penicillamine & Zn Acetate available in India.
- By anupam · New reply October 26, 2009
- In Treatment options · 8 replies
- Dear friends, I, a medical student from W.B., India, was diagnosed to have Wilson's Disease in Dec 23rd 1999. My treatment was in a hapazard way upto this February, Now, I'm in contact with Dr. Ashis ...
Books about Wilson's Disease
- By Andrie · New reply October 22, 2009
- In Newly diagnosed · 5 replies
- I just ordered the book "Wilson's Disease for the Patient and Family: A Patient's Guide to Wilson's Disease and Frequently Asked Questions about Copper" by George J. Brewer M.D. Has anyone else read this ...
Wilsons disease
- By beechmom · New reply October 17, 2009
- In Personal stories · 13 replies
- Our oldest son 28 now has been not improving at all,what are we to do? The doctors told us with time and zinc he would get better. I have seen nothing but his body getting worse like he had a stroke,sleeping ...
losing my health insurance
Taking Syprine & Zinc
- By chadsmom · New reply October 7, 2009
- In Treatment options · 22 replies
- Can you take syprine and zinc together and both work ...
health insurance
- By divinemissem · New reply October 6, 2009
- In Help desk · 10 replies
- Hello, I do not get health insurance through my job and so I am looking for private insurance that will cover my wilson's disease meds and check ups. Any ideas? Thank you, Emily ...
Doctor referral
- By kld05 · New reply October 3, 2009
- In Finding a doctor · 7 replies
- We found a specialist in Ann Arbor, Michigan thanks to help through this website, but now the doctors my goddaughter is going to refuse to refer her saying they have to run more tests. She is in stage ...
BETTER TREATMENT
- By RICHA · New reply October 3, 2009
- In Treatment options · 2 replies
- Dear Friends, Though I have recovered a lot by the treatment I am on since the last two decades but side - effects of the treatment also show. Dark patches on my body, constant regidity and pain and many ...
