Already a member? Sign in
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Hi all,
My 9year old son has Wilson's. He has been on T for almost a year with no changes in any of his levels. In the last week the GI put him on a vitamin e supplament and all of a sudden he started dumping much more copper in his urine. Has anyone else use vitamin e to help with treatment?
Hello!
My 16 year old daughter (with WD) is having slow results with T. I'm curious what the dosage of vitamin E is. I'd like to give it a try.
The GI told me to do 400IU per day with a meal. I am not really sure how it's supposed to work, but they said his numbers got better, so who knows I'm willing to do anything at this point. : )
Hi Mama
my daughter is on vitamin E as well as a few other vitamins which she has with her breakfast every morning - she only has one a day now but was on 3 tablets a day...
Lauren was diagnosed in November 2007 - her LFT is back to normal and i am hoping to get some levels at the end of this month but she has been excreting enough...
Lauren is on trientine 2 morning and 2 night and zinc sulfate one late morning and one late afternoon..
I am in Australia - we dont have galzin but the sulfate does the same thing...
her dry weight copper was 959 - she presented with liver failure presentation...and KF rings
stay safe
Rose
xx
Add to the discussion