My name is Mat. My ex girlfriend Katie (25) was diagnosed with WD a few months ago. She as been taking everything in stride and has been so strong, but I've noticed a big change lately. We all know how much WD affects everyones lives, actually I'm just starting to learn. She needs someone to talk that has WD. She's thinks she is complaining when she voices her struggles and think's she is becoming a nuescence with her lack of independence. I.... we've tried everything to convince her otherwise, but it's just not helping. She needs someone who has been in her shoes, or is in her shoes. I would love to have another woman with WD be her "new friend" but will take anything I can. PLEASE HELP! It's killing me to watch her go through this alone, and I feel like I'm drowning trying to save her.
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SOS.... I'm over my head here!!!
- By 4KatieB83
- Posted January 15, 2009 at 4:24 pm · 3 replies
- In Newly diagnosed
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- By -Melissa-
- Posted January 15, 2009 at 5:53 pm
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Hi Mat,
Its so nice that you're trying to find support for Katie. Getting the diagnosis of WD is very overwhelming at first. I too felt like I was complaining a lot, but mostly because the medical community is so uneducated on WD.
Is Katie wanting/open to talking to other people with WD? If so, you can feel free to pass on my email address to her mjaffeldt@hotmail.com
I'm 26 years old, was diagnosed at 24. I was diagnosed 2 years ago and felt so overwhelmed and lost, especially since no one else in my family had WD. I had been having weird symptoms for a couple years prior to being diagnosed and none of my doctors could figure them out. I think most of the time they thought I was making it up. I went on with my life, got married in September 2006 and while my husband and I were on our honeymoon I got sick. Came home and the testing for WD started. I was diagnosed in January 2007. I had a really hard time with the diagnosis and just wanted to be back to my "normal" self and I didn't want to have to take medication everyday. It's a big adjustment. It took me about 7 months before I decided that I was going to start seeing a counselor to help with my "grieving" because I felt like everyone was so sick of hearing about "poor melissa and her medical problems". That was probably the best decision that I ever made.
When was Katie diagnosed? The changes that you've noticed recently are they good or bad? Increase in symptoms? Or what do you mean?
Again, good for you for trying to find her some support. If you have any other questions, feel free to ask.
~Melissa
- By 4KatieB83
- Posted January 15, 2009 at 11:50 pm
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WOW, your story is earily similar to Katies. She had been having slight tremors for a couple of years and had been getting diff dr.s to look at it, but most of them mis-diagnosed it as a nuerological problem. She was just diagnosed in Nov. 08. The changes in her attitude have been in a bad way. She feels down all the time, embaressed, and in a rotten mood. Usually she is the most happy go lucky person I know. Her symptoms .... I can't speak for that. I know she's on meds.... it's not the chemistry I'm worried about. It's her soul and mental health that concerns me. I don't know if she is willing to talk to others with WD or not. I'm doing this "behind her back", for a lack of a better phrase. I'm just a concerned friend wingin' it. I'll try to send your info her way...... If that's alright with you?
- By -Melissa-
- Posted January 16, 2009 at 12:59 am
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Thanks, Mat. She did email me, so I'll be in touch with her. You're a good friend.
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