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How do you find a doctor who knows how to treat Wilson's disease? The ones I've come in contact with are flying blindly and don't seem to know much about it. I'd like to find someone who has treated it before and knows about it somewhere preferable in the Ohio Valley. Live in Northwest Kentucky. Can travel some ways, but not across the country. If someone can help, would sure appreciate it.
Hi KId05, Have you looked at this link yet, http://www.wilsonsdisease.org/patients/physiciancontacts.html. It is a list of wilson Dr. If they are to far you could contact one and have them work with your curent dr. Hope it helps
Thank you for the link...I will try that. At this point, we are kind of desperate. Thanks again.
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