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In Tennessee Memphis-Tipton Area

AngieJo
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I'm curious to know who else in my area has been affected by Wilson's. My little brother died at 21 and was not diagnosed until the autopsy, so we're still learning about this, and want to connect. I'm hoping to maybe start something out here to get the word out about this disease, since so many are clueless. I've had several medical professionals ask me, "Wilson's? What's that?"

please help me, just by letting me know you're out there, and sharing your story. Thanks!

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Wilson disease

3 replies

-Melissa-

If your little brother died from WD, then I hope that you and any other siblings have been tested to make sure that none of you have it too.

AngieJo

Yes, my older brother and I have been tested. Not for the gene itself, though, just for the actual Wilson's Disease. My 6-yr-old has also been tested, but I'm waiting until my other 2 babies get a little older before we do them.

-Melissa-

So I assume that neither you or your brother have WD? How were you tested? 24 hour urine copper? Ceruloplasmin? I hope that you were tested by a knowledgable doctor who knows how to test for it.

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