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Has any one tried homeopathy for wilson's disease?

GH
  • By GH
  • Posted September 16, 2008 at 12:06 pm · 21 replies
  • In Treatment options
  • Shared with the public
0 Recommendations

Has anybody ever tried homeopathy for cure of wilson's disease? What are results?

Explore topics in this discussion:

Wilson disease Cirrhosis Tetrathiomolybdate Syprine Bruises Penicillamine Liver transplant

21 replies

br

Wilson's disease being a rare disease, the normal treatment comprising of zinc and Syprine must continue under medical advice.

HOWEVER, it may be useful to take recourse to certain Yoga practices that have been shown to work very well even in physical conditions considered hard to treat by western medicine. WD, though it could be genetic, is primarily concerned with the liver.

Two primary Yoga practices which are covered under the broad category of "Pranayam" i.e. regulation of breath, can be tried. These are:
1. Anulom Vilom
2. Kapalbhati

These are basic but powerful practices.

Once the basics are learnt, they are not difficult to practice. When the normal treatment is continued simultaneously, there is no risk also that the disease may become uncontrolled.

These practices, at the very least, will augment the medicine regime by strengthening the body system functions including liver.

It can be done by the individual himself/herself and above all, it is FREE, it does not cost anything to practice it.

espower

I stand corrected.

I should have said that a liver transplant will not remove the effects that WD has already caused, specifically in terms of neuropsychiatric illness, or the eventual diagnosis due to previous copper accumulation -- in the brain for this case.

Was attempting (poorly) to make the point that even with a liver transplant, you still need the recomended meds to get the copper out of the rest of your body.

-Melissa-

Espower-

If a patient with WD gets a liver transplant, they will no longer have WD, therefore, it is a cure for the disease. It's not recommended unless completely necessary and all other options aren't working though.

espower

A transplant is not a cure, but it will extend the life of your liver. WD would still eventually contaminate you either neurologically or psychologically.

For the most part, I have to agree with what everyone seems to be advocating -- Do what we know will work.

I have to disagree about not using any other therapy than what the doc prescribes. There are a number of studies showing that phosphatylcholine (lecithin) has the ability to actually improve livers with cirrhosis.

For a child who is struggling with a severely damaged liver and as long as the hepatologist agrees that there's no harm in it, I don't even see it as a choice. If I waste my time and my daughter says 'euyuck' then what have we really lost? If, on the other hand, a year or two years from now the Vit E (Dr prescribed) and phosphatylcholine have helped her out just enough that she doesn't hit that tipping point that requires a transplant -- WoooHooo.

dandelion root is suspected to help, but I can't find any studies with concrete evidence, or ones that I would trust. If anyone has any info on it that they could share, I'd appreciate that.

junebug23

I know and I am glad I never had to have one. Who would get a transplant when they can just take medication? silly. But sometimes a transplant is the only option to save someone's life.

-Melissa-

Junebug--

A transplant should be the very last option and when nothing else will work. The risks are far worse than just taking zinc for maintenance.

junebug23

There is a cure for Wilson's. It's a liver transplant. But I'd rather take OTC zinc any day vs. the anti-rejection meds and ticking time-bomb in my tummy. But sometimes it is a life saver and it cannot be underestimated.

Dvora

For treating the Wilson's, I agree with what others have said about ONLY using tested medications for chelating (to remove excess copper) or the zinc (for preventing more zinc from entering your body).

As for homeopathic meds to treat other symptoms, you'd have to talk with a doctor very familiar with homeopathics. Only s/he would know if there are any possible negative interactions to the medications you are taking for the WD.

My knowledge of homepathic drugs is limited but I do use them for other things (for example, arnica montana for bruises or muscle aches, which may or may not occur as a result of WD).

Dvora

Rose5

Nope...and I wouldnt gamble with my daughters health/life
......Wilsons Disease is manageable otherwise as stated above.........can be fatal

good luck
Rose

RICHA

Dear Melissa,
Thank you very much. I am making queries if Syprine is available anywhere in India (as far as I know till now, D-Pecnicillamin, Zinconia/Zincolac are the only drugs for WD available in India. Imported drugs may also be available but they are too expensive). I would like to add here that we, the members of this community are very much benefitted by your knowledge on WD.
Thanks again for that!

Rosepetal

-Melissa-

Rosepetal--
Trientine (Syprine) is also an approved medication for treatment of WD. It's actually preferred over Penicillamine, because the side effects aren't as bad.

GH

Dear ,
Melissa, ROSEPETAL ,McVeggie ,esther2k5 ,RajeshKumar ,

Thank you very much for your reply.
Indeed , this forum will be useful for all of us .
Together we are better!!
Thanks to inspire team also!!

RICHA

Dear GH,
I also fully agree with what Melissa and others are saying. Zinc and Pencillamin are the only known and reliable therapies for WD. Giving any othe medicine would be a gamble with your son's life.
Rosepetal

-Melissa-

Wilsotab is not real. It's a scam. They aren't able to provide any statistical data that it works. It will not "cure" you...it will probably only make you sicker and they'll take your money.

McVeggie

I saw wilsotab.com link pops up somewhere. Think one guy in my ym list gave it to me as well. wanted me to go herb treatment or herb cure. I am sticking to OTC zinc. So far there isn't a cure for WD. Yes, cuprime and srypine can cause long lasting side effect to the stomache. That is something you can work around it. like reducing the doseage once your doctor permits it. or like esther say you can always change to OTC zinc which will be a lot easier on your stomache. Don't do anything that will jeopardize your son's life. Stick to what's known work. That's what I would and will do for my own children.

esther2k5

There is no homeopathy "remedy" for wilson's. I've been on (non-prescription) zinc for years without any problems except for occasional stomach upset that goes away when I eat an hour after taking the zinc. Penicillamine, trientine (syprine), tm (I think that stands for tetrathiomolybdate) and zinc are all know and proven copper chelators.
I have heard that carnosine chelates copper but am not aware of any clinical research in relation to wilson's so I would stick with what is known to work. Melissa is right--wilson's is eventually fatal if left untreated or treated incorrectly so it is not wise to gamble with any unproven "remedies".

RajeshKumar

Hi GH,
I am giving my son homeopathy along with zinc,but I don't know the name of the medicine but the doctor feels it helps.There are two sites which offer homeopathy & herbal cure u can go to it for more details they are: wilsotab.com & ilsitin.com.Hope they are useful.
Regards,
Rajesh.

RICHA

Dear GH,
About homeopathy, I can' t say but when I started developing the symptoms in my childhood, I was given Ayurvedic treatment for some time(my father consulted an internationaly acclaimed specialist (from New Delhi, India). However, that didn' t worked much. And only when I was diagnosed as a patient of WD and treatment for that started, I felt improvement.
I would like to add here that I took ayurvedic medicines for a very short period.

Rosepetal

-Melissa-

Zinc doesn't have nearly as many side effects as D-Pennisilamine (or however you spell it!). The side effects of taking zinc wouldn't even come close to the side effects of not taking any medication or trying a possible homeopathic treatment, since if you don't take medication, the disease is fatal. I would stick to medications that have been tested through clinical trials and are approved as wilson's disease treatments. I wouldn't take a gamble on homeopathic remedies. There isn't a "cure" for wilson's disease, but the disease can be stopped from progressing, by taking medication.

GH

Yes,In fact we are trying D-Pennisilamine for my son who was diagnosed Wilson's disease 3 yrs back & he is doing fine.
But i heard D-pennisilamine or zinc has side effects over a long period , in this context , I would like to know if any other supportive treatment like homeopathy will help my son.

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