Hi, I am from Russia and my son 5 years old is diagnosing with WD. He has high blood transaminases (more than 10 times of normal values), low copper and ceruleoplasmin. We started penicilamine, but we have been forced to interrupt it after 10 days because of fever heat and macular eruption all over the body. The doctor said yesterday that there is no other medicine. Regarding zinc, the doctor says that my son has high blood zinc already.
I’ve read that trientine is used for such disease but there is no this medicine in Russia (trientine is not registered in our country). I have not talk about this with our doctor yet, but I am very worried about my son.
I just would like to know, is there any way to get it? Maybe anyone could give me any advice? And what is the price of trientine?