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Can't swallow, using feeding tube, what do I put in feeding tube?

moontester
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My daughter has a peg tube because she can't swallow food of drink without choking. All the liquid drinks like boost and ensure have 25% reccomended daily allowance of copper. I don't want any copper in her drink. Does anyone else have this problem and what did you do to fix it?
Also we are taking Syprine (Trientine) 1 hour before meals and Gazxin(zinc acitate) 2 hours after meals. Is this correct or should we take the zinc before meals and the trientine after?
Thanks for any help

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Syprine

2 replies

Amy4

Hey, My son has a feeding tube as well. We went to Michigan for treatment in Sept. 2007. Clay needed a feeding tube by Dec. 2007. In Michigan, they designed a special low copper diet for the feeding tube. He is still on the feeding tube and has not lost any weight. You might need to find out exactly how much calorie count your daughter needs for growth. He was 17. He is 6ft.
The ingredients are:
3 cans of Vanilla optima Slim Fast
1Cup Vitamin D Milk
1Cup Water
1/2 a can of evaporated milk (12oz can)
1/4 Cup of Olive Oil
1/8 t of salt
1 stage 2 green bean baby food
1 stage 2 applesauce baby food
4 jars of chicken baby food
2 1/2 cups of Polycose by ross

I put everything in a blender except the 3 cans of slim fast. Pour it all together in a 3 liter container. It keeps for 24 hours. Make it everyday. There is one really expensive can of Renecal you can use that is approved too. Plus protein extra. the protein made him sick. He hasn't lost any weight.
The way the meds are being taken are correct. Both are 1 hour before or 2 hours after food. There's never enough hours in a day. My email is akc_n_nc@hotmail.com if you need more info.
Thanks Amy

moontester

Thank you so much! This is a God send. We will pray for you and your son.
God Bless
Paul and Lisa

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