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I just ordered the book "Wilson's Disease for the Patient and Family: A Patient's Guide to Wilson's Disease and Frequently Asked Questions about Copper" by George J. Brewer M.D.
Has anyone else read this book? If so, was it helpful? Do you have any other recommendations on gaining more information about the disease? Any help is greatly appreciated.
Hi Andrie
Yep an excellent book with alot of knowledge to do with the disease. I recommend it. Best thing I bought.
I found it very helpful with information, plus helped me with the doctors when they wouldnt listen
All the best
Rose
I have the clinician's guide instead: "Wilson's Disease: A Clinician's Guide to Recognition, Diagnosis, and Management" by George J. Brewer. It's more pricey as I remember but has lots of interesting info for docs and us...
Jeanne
I've written a book about me experiences, I'm in the "explore the possibilities" phase of finding a publisher.
Anyone interested?
(I had a pre-diagnosis splenectomy, then the copper went to my brain. Not a pretty sight!)
I was just diagnosed this month and had a ton of questions. I saw several people recommended Brewer's book so I bought it. It was VERY helpful and I feel much more educated about Wilson's. After reading it I have several questions for my dr at my next appt. that I would not have thought of asking if I had not read this book.
Excellent book - great wealth of information. You dont need to buy the books though - you can go to your local library and they can get them from other libraries - takes about the same amount of time as it does when you order them-but no cost. I would also contact your local water dept and ask what the copper content level in your "city" water is and ask for a kit to check your house - if it is too high - you may want to check into a filtering system. Otherwise, check into bottled water - but watch - some of them have copper. Ice Mountain doesn't. You could also talk to a dietician about what foods have copper and get a list. Ms. Dash carriers a wide variety of flavorings for the low sodium diet-hopefully your dr told you that also. Have you done a 24 hr urine copper? Results? How about siblings getting tested? I am only a carrier, but I take zinc - I asked my kids specialist and he said I have more copper than I should but not at a lethal level and that I could just take zinc to help eliminate some.
I wrote this post in reply to several different posts on here. Hopefully helpful. Prayers to you all. Best advice - ask a lot of questions - the more you know - the less you are afraid of with the newness of the disease.
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