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Alone
- By Breeanna10139 · New reply yesterday at 11:15 pm
- Journal · 5 replies
- I am a happy person(: i have friends and have good grades, dont do drugs, i am a pretty normal 16 year old, but.. i have Wilsons disease. This in some ways effects every aspect of my life, and in others ...
Looking for Understanding
- By mesal · New reply yesterday at 5:25 pm
- Discussion in Newly diagnosed · 9 replies
- My spouse (33) was diagnosed with Wilson's in Oct '11. In Nov, my brother in-law (30) had a liver transplant due to Wilson's. In Jan, my spouse started Trientine for two months. In March, my spouse's ...
A case of Wilsons?
- By PSA · New reply yesterday at 3:58 pm
- Discussion in Getting a diagnosis · 23 replies
- Hi, I'm a 25 year old male from Finland and have been battling against supposed WD symptoms since 2005 and they've gradually gotten worse. In finland doctors didn't take me seriously for years so I had ...
Trying Galzin now
low urinary copper
- By suman · New reply yesterday at 1:14 pm
- Discussion in Treatment options · 3 replies
- My daughter is on treatment for WD since jan 10. She had been taking 500 mg x 2 / day d-pen and her urinary copper level were around 600 micro gram / 24 hours. Her liver enzimes and blood counts also ...
Liver enzymes elevated
My six year old's labs
- By staylor0808 · New reply May 14, 2012
- Discussion in Getting a diagnosis · 11 replies
- My six your old son started to have difficulty with his handwriting in Jan. We realized that he was having difficulty with coordination and hand tremors. MRI was negative. He has some abnormal labs as ...
23andme
- By Newfriend · Posted May 11, 2012
- Discussion in Getting a diagnosis · 0 replies
- Has anyone had an exerperience with 23andme? This is a company that test genes I think through saliva ...
Weight gain & no menstruation? Any advice
- By ams123 · New reply May 10, 2012
- Discussion in Personal stories · 3 replies
- Because of an older sister’s diagnosis with WD, my younger daughter was diagnosed with WD at the age of 2. Other than elevated liver enzymes, she (the younger daughter) was asymptomatic for most of her ...
genetics
- By Newfriend · New reply May 7, 2012
- Discussion in Getting a diagnosis · 21 replies
- Does being homozygotous mean a definitive diagnosis of WD? Does being heterozygotous defintively exclude WD ...
dystonia treatments
- By madforthemouse · New reply May 7, 2012
- Discussion in Treatment options · 8 replies
- We have one rehab dr really pushing a phenol block - has anyone had one? It is for the muscles that turn his feet in and drop his foot. (really bad dystonia) I'm hesitant because we have 2 neurologists ...
Homes or facilities for Wilson' patients
- By sunsetsonthebeach · New reply May 5, 2012
- Discussion in Personal stories · 10 replies
- I am in need of finding a nursing facility or group home for my son. He is 23 and his neurological problems are so bad that he cannot come home. He needs 24 hr nursing care. If anyone knows of a good ...
When testing a young child for WD are the tests the same?
- By Superstan84 · New reply May 5, 2012
- Discussion in Genetics and diagnosis · 5 replies
- I have WD & now I'm concerned that my 9 year old nephew may. His mom does not have WD however he is having some symptoms that are the same as mine when I was his age and a couple others that I didn't ...
Ceruloplasmin
- By Newfriend · New reply May 2, 2012
- Discussion in Getting a diagnosis · 4 replies
- Has anyone had a diagnosis of WD with Ceruloplasim within the normal lab range? If so, what was your 24 hr urine ...
Mild Wilson's?
- By jrg27 · New reply May 2, 2012
- Discussion in Getting a diagnosis · 5 replies
- I've had a series of digestive and neurological ailments (balance, coordination, tremors, muscle rigidity/stiffness, cognitive deficits) over the last couple of years and my search for an explanation ...
Ever heard of this?
- By Newfriend · New reply April 27, 2012
- Discussion in Getting a diagnosis · 5 replies
- Anyone ever heard of having WD with a normal 24hr urine copper ...
Looking for a doctor in SF Bay Area!!!
- By Lubatab · Posted April 27, 2012
- Discussion in Finding a doctor · 0 replies
- My son has some abnormal ceruloplasmin and cooper on a lower normal side. Also some neurological symptoms. Mostly problems with handwriting. I saw some recommendation for Dr. Bass from UCSF, but he retired ...
Level of platelet count during penicillamine treatment
WD Positive dinamic and transplantation
- By daila · New reply April 25, 2012
- Discussion in Newly diagnosed · 12 replies
- Hi, my name is Marina. I am 30 yo now. I was diagnosed with WD when I was 26 ( In Russia) I have esophageal varices, splenomegaly, portal hypertension. Russian doctor said I have early stadium of cirrhosium ...
wilsons disease
- By lathan123 · New reply April 25, 2012
- Discussion in Getting a diagnosis · 12 replies
- I was just told that i have signs of wilsons disease but i am 56 is'nt this too old to just get this ...
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