The Wilson Disease Association Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group
All new and active discussions & journals
my 20 yrs w/ WD
- By datiger33 · New reply 11:35 am
- Journal · 6 replies
- i was diagnosed w/ WD at age 19, it showed in my liver, i was jaundiced & severly anemic, my dr put me on d-pens... in about 6 mos t\ime i was back to normal, i have perfect liver functions...when my ...
How long does it take to get pregnant with WD?
How to get Syprine in Hongkong
Low Ceruloplasmin & Blood CU, Normal 24 hr urine???
- By JRobles · New reply 4:31 am
- Discussion in Genetics and diagnosis · 20 replies
- I am newly diagnosed (1 1/2 months) and pre-symptomatic. I was diagnosed because my sister is symptomatic, I have the same genetic mutations she has. My ceruloplasmin and blood copper are very low (6 ...
help...feeling lost
- By Terrasita · New reply 1:28 am
- Discussion in Newly diagnosed · 52 replies
- My 20 year old son was just diagnosed with WD after going into emerg. He is borderline in need of a liver transplant. He is currently seeing a liver specialist. We don't really have any other info except ...
Life insurance for person with WD
- By Stacey221 · New reply yesterday at 10:56 am
- Discussion in Personal stories · 6 replies
- I was wondering if anyone in the US had had any luck with getting life insurance after they found out they had WD. I have a term life ins. that I got awhile ago (before I knew I had WD) that runs out ...
Usefull information
- By RuiAlves · New reply July 29, 2010
- Discussion in Newly diagnosed · 3 replies
- I've started this discussion to give some help to eachothers - in this one we all can post our reading on the matter - our specialist or suggested doctors, researchs,studies, and whatsoever we may think ...
Will To LIVE
- By rbab4life · New reply July 28, 2010
- Discussion in Finding a doctor · 5 replies
- All, Do not take this deadly disease lightly, I have and I am now regretting it. I was diagnosed 6 years ago in 2004, I am now almost 37 years old and really feeling the neuro symptoms now. Do not let ...
Do I have WD
- By saviourrahul · New reply July 25, 2010
- Discussion in Newly diagnosed · 7 replies
- hello everyone my celuroplasmin lvel is <5.0 and 24 hr urinary copper is also out of range .... I have been suffering from tremors(both hands,head) since i was 4 and its getting worse with time am i having ...
Worsening of symptoms
- By Baccus · New reply July 24, 2010
- Discussion in Treatment options · 10 replies
- Dear all, I'm a new member and I would like to write to you about my boyfriend's story. My boyfriend has been diagnosed less than 2 months ago. He is 30 years old and has been having symptoms for 4-5 ...
My Experience
- By passion62 · New reply July 22, 2010
- Journal · 5 replies
- WOW!! I’ve never met or heard experiences from anyone with this disease. I didn’t realize the effects could be so severe and long lasting. I’m a new member here as of this morning, July 18. I’m ...
This my story!!
- By Lola_89 · New reply July 22, 2010
- Journal · 9 replies
- Hi there guys my name is, Najma Durrani. I'm 21 years old. I was diagnosed with Wilson’s disease at the age of 19. My story is kind of interesting. After graduation, ’07, I started working for my ...
can nueropshychic WD patient return to normal?
Hey There!
- By MasonAOwings · Posted July 13, 2010
- Discussion in Teen chat · 0 replies
- Hey guys I'm doing rehab 3-4times a day staying from 9 till 2 and then I have an OT/PT take me home and she continues the rehab by reminding me to stand tall and to slurp and swallow! She is alot of fun ...
Really abusive episodes
- By Jeecker · New reply July 11, 2010
- Discussion in Depression · 11 replies
- Hi, my boyfriend, George, has all the bad neurological symptoms of WD. Tremors, drooling, slurred speech, he can't walk anymore without assistance. But lately, he's become really abusive; both verbally ...
Ammonium Tetrathiomolybdate
- By Jeecker · New reply July 9, 2010
- Discussion in Treatment options · 7 replies
- Has anyone here been treated with this? Especially WD pateints with neuro symptoms? Dr. Brewer published this article: Treatment of Wilson Disease With Ammonium Tetrathiomolybdate: IV. Comparison of Tetrathiomolybdate ...
fatty liver
- By RuiAlves · Posted July 8, 2010
- Discussion in Treatment options · 0 replies
- Today i made a new eco and my liver still has a part that it appears to be fatty. This part was like in previous eco (made 3 years ago) i've changed my alimentation and started avoiding some juicy foods ...
alcohol and wlson's/ don't mix
- By JasonF · New reply July 7, 2010
- Discussion in Personal stories · 3 replies
- My older brother was in his early twenties when he was first diagnosed with wilson's disease. Up to that point he had been a social drinker. When he was diagnosed though his world seemed to turn upside ...
Scared, Newly diagnosed, what do i do?
- By wildcat6910911 · New reply July 6, 2010
- Journal · 19 replies
- Hi I was just newly Diagnosed, I have high copper levels in my blood, and have most of the symptoms of wilsons disease, although i havent had all the tests yet to see how my body is functioning and what ...
CPM, (Central Pontine Myelinolysis) never again
- By WhataBreeze · New reply July 6, 2010
- Journal · 3 replies
- Just like Bret Michaels except I won't be a fool like I was this time!!!! Thank God for his blessing's for in NO way would I still be here per these Top Doc's and a Top Ten Hospital System. Yes, who can ...
- More »
- New
- Active
- Discussions
- Journals
Sign in to see more
Inspire others
Group leaders
Discussion topics
You
About this group
The Wilson Disease Association Support Community connects patients, families, friends and caregivers for support and inspiration. The Wilson Disease Association Support Community is sponsored by the Wilson Disease Association in partnership with Inspire.
About · Explore groups · Community guidelines · Our principles · Privacy · Terms of use · Start a group · Help · Feedback · Follow us on: 
Copyright © 2005-2010 Inspire · All rights reserved