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Still trying to determine if Wilson's
- By moocow5598 · New reply yesterday at 10:21 am
- Discussion in Genetics and diagnosis · 6 replies
- My 14 y.o. recently ran the gambit of test again to see where her ceruplasmin and copper levels were. They also sent out for a genetic test for Wilson's but this has not returned. Our doctor has also ...
Bruising
- By KelsyD · New reply May 24, 2013
- Discussion in Treatment options · 1 reply
- I have noticed the last few day that my six year old has lots of strange bruising that is unexplained. Some of the bruises are lumpy and he says they hurt. He has been diagnosed with WD for exactly one ...
Wilson's Patients in Australia
- By Glithen · New reply May 24, 2013
- Discussion in Personal stories · 2 replies
- Hi I noticed at least two or three other people from Down Under who are on this group. Wilsons is so rare, and often a local support group of people who are going through the same thing really helps ...
Is It Time To Change?
- By mugaza01 · New reply May 23, 2013
- Discussion in Treatment options · 2 replies
- Hello everyone, It has been 6 months now since my 15yr old son started taking penicillamine. As a continuation of his medication plan the doctor has now prescribed zinc after the 6 month period was over ...
Stability of Trientine?
- By Michelle_Strachan · New reply May 22, 2013
- Discussion in Treatment options · 23 replies
- Greetings! After numerous attempts, my daughter was unable to swallow Trientine capsules, so we now take the capsules to a pharmacy, and they put them into a suspension for her. She gets to pick her flavor ...
How long should we take trientine
- By Mark1972 · New reply May 22, 2013
- Discussion in Treatment options · 9 replies
- Dear friends, My daughter, 9-year-old, was diagnosed with WD an year ago and she is on trientine since last October. Now her symptoms subsidized and she is doing perfectly alright. Her LFT and blood results ...
Dealing with WD or Some other Rare Disease/Disorder
- By h51martin · New reply May 19, 2013
- Journal · 2 replies
- First off, what everyone should know is that WD can manifest itself in many-many different ways and can present itself from a very early age of 5 & under to ages in 40’s or 50’s. If you have WD, you have ...
Does it take both parents to pass on WD?
- By Moh25 · New reply May 18, 2013
- Discussion in Genetics and diagnosis · 11 replies
- Please can I have answers to the following questions about how one gets Wilson Disease (WD)? Does it take both the parents to be Wilsons Disease (WD) trait carriers to pass on WD to their children? If ...
Five million
- By Brian · New reply May 18, 2013
- Journal · 205 replies
- Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...
Help
- By Earle · New reply May 17, 2013
- Journal · 1 reply
- My mother had Parkinson's disease, I have now on the top been told to be tested for hepatitis Never use drugs or used needles not a heavey drinker ect but doctor wants me to have at test I'm in my 50's ...
anyone from turkey
- By bilaldincer · New reply May 16, 2013
- Discussion in Teen chat · 5 replies
- hi. I am 27 years old and diagnosed WD 14 years ago. i am using zinc and penicillamine. my childhood past in hospitals and i decided to be doctor. now i work in şırnak / turkey. I am planning to start ...
New complicated case
- By TerrorMom · New reply May 15, 2013
- Discussion in Getting a diagnosis · 31 replies
- My 16 year old son began this journey about a year ago. It began with pain in his upper right side under his ribs. He was diagnosed with Fatty Liver, H Pylori (twice) and his liver biopsy confirmed Fatty ...
Can't Get Galzin Where I Am
- By connection2luv · New reply May 9, 2013
- Discussion in Treatment options · 6 replies
- I live in Reno, NV and I was told that no distributor on the west coast carries Galzin. Then I searched and found a Wilson's expert/MD who would bend the rules and get my two children their meds in the ...
MRSA and ME
- By GENIVADIANE · New reply May 9, 2013
- Journal · 2 replies
- My life was normal like many others were, I had my kids, my family, my friends we were always togethere, my health was good, theirs as well, just a normal everyday life. I never thought my life would ...
Help me
- By chargersfan · New reply May 8, 2013
- Journal · 14 replies
- Our 8 year old son was recently diagnosed with Wilson's. Lately his behavior has been awful. Is this part of Wilson's? Please let me know ...
Help
- By chargersfan · New reply May 8, 2013
- Journal · 3 replies
- My 8 year old son was recently diagnoised with Wilson's Disease and he has to have a Low Copper Diet. I found that USDA Link and I am confused is that all the foods that shows the total amount of copper ...
Wilson's Disease
- By cheesecake · New reply May 7, 2013
- Journal · 10 replies
- At the age of five I had sharp stomach pain, nausea,etc. I went to doctor after doctor with my mom. They all said the same thing - I was faking it or the flu. Age eight, had heppatitis. Kept having relapses ...
Misdiagnosis of schizophrenia for 20 years
- By Juz · New reply May 6, 2013
- Journal · 19 replies
- I was diagnosed with schizophrenia at 15. I have been on 7 different antipsychotic medication to control it. Was diagnosed with Wilson's 6 years ago. I am now 34 and have just been told that I don't have ...
Does this sound like Wilson's to you
- By LaChoka · New reply May 6, 2013
- Journal · 4 replies
- Hello I am 33 years old and I am currently suffering from tremors on both sides pretty much all over. I have had iron- deficiency anemia my whole life however, iron does not seem to fix it. I have headaches ...
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