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Tips for caregivers
Caring for and about someone with VHL has its joys and frustrations. Share your experiences and get support if you are a caregiver yourself, or if you want help taking good care of your caregiver.
Any spouses/significant others of VHL patients here?
- By Michelle76 · New reply October 10, 2009
- 13 replies
- I don't know if this discussion board is mostly for patients, but I've been really stressed lately, and a friend found the site for me and told me I had to join or she was going to email someone for me ...
Spinal Tumor Surgery at NIH
- By ohana4 · New reply September 7, 2009
- 7 replies
- It's been awhile since I've been on here and my son's spinal tumor's are ready to be removed. He has multiple tumor's on his spine and they've grown slowly over the year's with a growth spurt in the last ...
Cyber knife surgey recovery
- By Mara · New reply July 4, 2009
- 11 replies
- Hi There - My mother had Cyber Knife Surgery last August and was back to work in 5 weeks. Then in January 07 she was feeling tingling in the legs and arms and nausea. She was told it was from brain swelling ...
Caregiving is hard
- By Debby3 · New reply June 9, 2008
- 8 replies
- I don't know if this is the right place to post this or not. I need encouragement. I have been a caregiving for V HL since 1987 when my husband was first diagnosed. He passed away from VHL on year ago ...
Understanding VHL and care for my cousin
- By Sheilin · New reply April 16, 2008
- 8 replies
- My cousin was born with VHL of which she inherited from her father's family. She is not fimiliar with his family at all. Although she had her first brain operation at the age of 10 she was only diagnosed ...
BRAIN CYSTS + TUMORS NEED INFORMATION PLEASE
- By djay41 · New reply January 7, 2008
- 12 replies
- Let me start with saying I am new to the community here, I have lived with someone for 11 years who has vhl, A couple weeks ago he was diagnosed with 2 brain tumors ont he brain stem that both have cysts ...
VHL
- By Spobear123 · New reply June 10, 2007
- 1 reply
- Can someone give me true meaning of this VHL from what I"M reading it sound like therer a tumor. I doing a research I am a caregiver to my Husband He had a cancer brain tumor remove 31 year ago and in ...
