Having kids? Informing your kids? Helping manage your children's health? Parents share experiences and support one another here.
- By batley · New reply November 10, 2008
- 12 replies
- ive read some things on here about people bein tested for vhl and it commin back no vhl but they do have it , im confused , i have vhl and my daughter my son come back with a no but do i really beleave ...
- By carmel · New reply March 6, 2008
- 13 replies
- Hi there my 3 year old son was diognosed genetically when he was 1 1/2 and I feel as though my heart is breaking ever since then. My husband has VHL and is badly affected. I have a feeling of complete ...
- By alyssa06 · New reply February 28, 2008
- 5 replies
- Just a quick question. I have heard of some people describing that they have these distinct birth marks that are associated with VHL. I myself have two small birth marks that lack pigmentation. I was ...
- By kez02m · New reply October 30, 2007
- 4 replies
- i live in australia and i thought i was alone but after reading your blogs i have learnt alot and that i'am not alone. Until recently i was lead to believe that children dont have as many problems until ...
- By pizza · New reply August 29, 2007
- 6 replies
- Interesting article I just read on Yahoo news under the health section. Discusses the connection of VHL with the famous Mc Coy family and explains about vhl. Click on Yahoo news and go to the health section ...
- By marie3 · New reply March 4, 2007
- 7 replies
- My 5 year old is having lower GI issues. A specialist recommended he have an MRI of his abdomen and pelvis to rule out blockages and tumors. I called Radiology to get information. The Prescreening Nurse ...
- By heathers322 · New reply February 26, 2007
- 1 reply
- Well i just found out that im pregnant and i have vhl. i know that there is a 50-50 chance that my child might have this, is there anything else i can do the help or just anything? im scared that my child ...
