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Medical treatments that worked for me
Discuss your experiences with medical treatments.
For Women who have been in clinical trials
- By joyceg98 · Posted April 26, 2007
- 0 replies
- For a Redbook article on women and clinical trials, a reporter is looking for women in their 20s, 30s or early 40s who participated in a clinical trial in the past three years of a treatment for a common ...
Parial Adrenalectomy with Pheo
- By MichelleC · New reply April 9, 2007
- 3 replies
- My son, 15 years old, has a pheo on his left adreanl gland. At this point, we believe this 2cm tumor is the only one. Three doctors want to remove the left adrenal gland, since the right adrenal gland ...
Metastasic Disorder
- By Paco · New reply March 5, 2007
- 5 replies
- Hello! My name is Paco. I'm from Valencia in Spain. I'm worried because my sister has VHL metastasic disorder. First she had two nefrectomies (left no radical), after she has removed a cerebelus hemangioblastoma ...
Clinical Trials versus local off-label use
- By joyceg98 · Posted February 19, 2007
- 0 replies
- I was contacted recently by a lady who is taking Sutent, prescribed by her local doctor, for metastatic VHL kidney cancer. She considers it a "miracle cure" -- her mets to lung and brain have not grown ...
Length of MRI
- By joyceg98 · New reply January 27, 2007
- 13 replies
- Hi everyone, After my husband's unbeliveably long sojourn in the MRI last week, I thought I'd do a mini-survey amongst you for the average (or so-called normal) duration of your head and spine MRI scans ...
radiation treatment
- By Sty · New reply January 2, 2007
- 6 replies
- I have yearly MRIs to monitor my brain tumors. I have had two brain surgeries, the last being in 1994. The results of my last MRI (last month) indicated that I had two tumors that had grown significantly ...
Living with no adrenal glands
- By joyceg98 · New reply December 22, 2006
- 8 replies
- I had the honour of having both my adrenal glands removed last December. I got over the op very well, or thought I did. What exhaustion! It's like walking in to a brick wall at about 3pm, and there's ...
Two kinds of retinal detachment - how to treat?
- By joyceg98 · New reply December 13, 2006
- 1 reply
- Right now, I'm dealing with two different kinds of retinal detachments in the only eye I can see out of, and my doctors are debating a course of action. I wanted to get some inpufrom the list There is ...
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