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Medical treatments that worked for me
Discuss your experiences with medical treatments.
after virtrectomy surgery
- By pupa · New reply November 2, 2009
- 2 replies
- 6 months after virtrectomy and all was going well, bingo, I started to experience floaters, the drs say that it could be membrane peelng and they will follow up but the floaters are how last year the ...
Pancreas Growths and the problems to come...HELP..Please!
- By Hope2000 · New reply October 17, 2009
- 9 replies
- Can someone please talk to me if they found out they had a cyst or growth on their pancreas. I m feel all alone and my Docs are giving me the run around and Im paying all my money on tests where they ...
Spinal Tumors
- By momacookie · New reply October 8, 2009
- 10 replies
- My nameis Stephanie and I have recently had a tumor removed from my spinal cord . So myy question to you is my surgeon suggest that I see Dr. Rockwell at the U of W who will do radiation treatment on ...
More Complications.
- By claireabell · Posted September 2, 2009
- 0 replies
- Hey all I was just wondering if anyone had had any complications following vitrectomy, lensectomy, and retinectomy surgery? I had all of the above done in march resulting in silicone oli being placed ...
Eye Enucleation
- By marie3 · Posted August 20, 2009
- 0 replies
- Hello friends. I am going to attempt to get information once again. Has anyone had an eye removed? Most people receive a porous implant (medpore) during the surgery. Your eye muscles are attached to this ...
peg implant after enucleation
- By marie3 · New reply August 13, 2009
- 2 replies
- Hello group. I am looking for information regarding the peg implant after enucleation surgery. In May, I had enucleation surgery. I am contemplating the peg implant. I have some movement with my prosthesis ...
Trouble writing?
- By ALB · New reply July 30, 2009
- 5 replies
- Hi everyone, A few days ago, I came across someone mentioning that they have problems with one hand, especially with writing. I too have experienced this--a little after my first brain surgery and significantly ...
Avastin/Lucentis feedback
- By chrisbonin · New reply June 24, 2009
- 19 replies
- Hi I'm looking for feedback from people that have had trials with Avastin & Lucentis, especially anyone who has an angioma on their optic nerve. I'd like to hear your views on the success of your treatment ...
Enucleation
- By marie3 · New reply June 18, 2009
- 25 replies
- Hello all. I have decided to go through with eye enucleation surgery. I'm shooting for May 4. I feel pretty comfortable with my decision. I felt better leaving the doctor's office then I did going in ...
Chinese herb medicine for VHL
- By wilson-hk · New reply May 21, 2009
- 6 replies
- As i told. there is NO magic medicine for us. The things that we can do is check our body regularly. Taking special arrangement on our daily menu. There are quite some herbs recommended to taken by VHL ...
Solve our Basic problem
- By wilson-hk · New reply May 12, 2009
- 7 replies
- As we know, VHL is caused by genetic problem. we have to suffer to unlimited MRI,surgeries,SRS ( gamma knife, cyberknife and protron theopy ), and steriods until we die. I am VHL patient in HK, experienced ...
eastern medicine as alternate treatment for vhl
- By raekel · New reply March 1, 2009
- 6 replies
- has anyone tried acupunture to aid in recovery from surgery or radiation treatment ...
adrenal tumor
- By tobycujo · New reply February 23, 2009
- 9 replies
- I had a tumor removed from my bladder 3 weeks ago and they have now found one in my adrenal gland that the Dr. says they need to wait 4 months to see how fast it grows. The Dr. said with adrenal tumors ...
Treatment and alternative medicine
- By romcaromca · New reply February 10, 2009
- 3 replies
- Hello all, my name is Marek and I'm from the Czech republic. My 27-years old wife has had two hemangioblastoms removed from C-5 and Th-10 two months ago. Now we are looking for treatment against VHL and ...
VHL Pancreatic Cyst Drainage
- By FranMott · New reply February 8, 2009
- 16 replies
- If you have had a problematic pancreatic cyst drained, would you please share your experiences? Where did you have it done? Who did it? How did they go about it? Was it successful? and How long ago did ...
Doctor Pantellini
- By adriano_ro · Posted January 29, 2009
- 0 replies
- does there is someone who knows the treatment of the italian doctor Pantellini ...
There is light!
- By Myway · New reply January 22, 2009
- 5 replies
- Hello and happy new year to you all! I just thought that I would share with all of you who have kept my son in your prayers. Briefly, my son completed a six week course of radiotherapy which was treating ...
Any Info on combination of kidney and spine Chemo Drugs
- By StillKickin · New reply December 29, 2008
- 2 replies
- Any Info on thalidomide, temozolomide, or Auastin (bevacizumab) Chemo Drugs being used for treating kidney and spine tumors ...
Aye eye!
- By claireabell · New reply December 21, 2008
- 5 replies
- Hey everyone, I have massive scar tissue on my right eye and need more treatment for angiomas but the doctors are scared that my retina will detatch if I have more treatment. I have been having treatment ...
pain
- By MelanieT · New reply December 2, 2008
- 6 replies
- Good day, I am new to this. I was told one year ago I have VHL. I had never heard of it but I am slowly learning. I do have a question for anyone who can help. I have tumors behind my right eye. The biggest ...
