Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Medical treatments that worked for me
Discuss your experiences with medical treatments.
Avastin/Lucentis feedback
- By chrisbonin · New reply June 24, 2009
- 19 replies
- Hi I'm looking for feedback from people that have had trials with Avastin & Lucentis, especially anyone who has an angioma on their optic nerve. I'd like to hear your views on the success of your treatment ...
Enucleation
- By marie3 · New reply June 18, 2009
- 25 replies
- Hello all. I have decided to go through with eye enucleation surgery. I'm shooting for May 4. I feel pretty comfortable with my decision. I felt better leaving the doctor's office then I did going in ...
Chinese herb medicine for VHL
- By wilson-hk · New reply May 21, 2009
- 6 replies
- As i told. there is NO magic medicine for us. The things that we can do is check our body regularly. Taking special arrangement on our daily menu. There are quite some herbs recommended to taken by VHL ...
Solve our Basic problem
- By wilson-hk · New reply May 12, 2009
- 7 replies
- As we know, VHL is caused by genetic problem. we have to suffer to unlimited MRI,surgeries,SRS ( gamma knife, cyberknife and protron theopy ), and steriods until we die. I am VHL patient in HK, experienced ...
eastern medicine as alternate treatment for vhl
- By raekel · New reply March 1, 2009
- 6 replies
- has anyone tried acupunture to aid in recovery from surgery or radiation treatment ...
adrenal tumor
- By tobycujo · New reply February 23, 2009
- 9 replies
- I had a tumor removed from my bladder 3 weeks ago and they have now found one in my adrenal gland that the Dr. says they need to wait 4 months to see how fast it grows. The Dr. said with adrenal tumors ...
Pancreas Growths and the problems to come...HELP..Please!
- By Hope2000 · New reply February 12, 2009
- 6 replies
- Can someone please talk to me if they found out they had a cyst or growth on their pancreas. I m feel all alone and my Docs are giving me the run around and Im paying all my money on tests where they ...
Treatment and alternative medicine
- By romcaromca · New reply February 10, 2009
- 3 replies
- Hello all, my name is Marek and I'm from the Czech republic. My 27-years old wife has had two hemangioblastoms removed from C-5 and Th-10 two months ago. Now we are looking for treatment against VHL and ...
VHL Pancreatic Cyst Drainage
- By FranMott · New reply February 8, 2009
- 16 replies
- If you have had a problematic pancreatic cyst drained, would you please share your experiences? Where did you have it done? Who did it? How did they go about it? Was it successful? and How long ago did ...
Doctor Pantellini
- By adriano_ro · Posted January 29, 2009
- 0 replies
- does there is someone who knows the treatment of the italian doctor Pantellini ...
There is light!
- By Myway · New reply January 22, 2009
- 5 replies
- Hello and happy new year to you all! I just thought that I would share with all of you who have kept my son in your prayers. Briefly, my son completed a six week course of radiotherapy which was treating ...
Any Info on combination of kidney and spine Chemo Drugs
- By StillKickin · New reply December 29, 2008
- 2 replies
- Any Info on thalidomide, temozolomide, or Auastin (bevacizumab) Chemo Drugs being used for treating kidney and spine tumors ...
Aye eye!
- By claireabell · New reply December 21, 2008
- 5 replies
- Hey everyone, I have massive scar tissue on my right eye and need more treatment for angiomas but the doctors are scared that my retina will detatch if I have more treatment. I have been having treatment ...
pain
- By MelanieT · New reply December 2, 2008
- 6 replies
- Good day, I am new to this. I was told one year ago I have VHL. I had never heard of it but I am slowly learning. I do have a question for anyone who can help. I have tumors behind my right eye. The biggest ...
CLINICAL TRIAL-ZD6474 ZACTIMA
- By donnainflorida · Posted December 2, 2008
- 0 replies
- Just curious if anyone has enrolled in this trial and how they are doing on it ...
CANNIBAS SHRUNK MY TUMORS
- By diane1805 · New reply November 11, 2008
- 9 replies
- I just want to share my experience with you all. It started three years ago when i read an article on the internet about cannibas , stating that it was responsible for shrinking tumors in , it particulary ...
brain tumors
- By Sty · New reply November 10, 2008
- 14 replies
- I have two tumors that have grown significantly over the last year. That's the first time they've changed in size in over 10 years. I don't know which route to take and would like some insight from as ...
Has anyone had (RFA) Surgery for Kidney VHL
- By Cyclops · New reply November 10, 2008
- 17 replies
- Radiofrequency Catheter Ablation. I think thats how is spelt.....I am due to meet a Doctor in a few weeks to discuss this type of surgery for some VHL kidney tumors. I have read a little bit about it ...
Nutrition
- By gale · New reply November 10, 2008
- 14 replies
- When we had the VHL conference in Orlando, I talked a little what works for me and what I'm bothered by. Oils being one. I was asked after the conference a little more information on the oils that I was ...
tumors and syringomyelia
- By Kar · Posted October 13, 2008
- 0 replies
- hello ...
