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Fundraising and raising awareness
Share fundraising ideas as well as suggestions for ways we can increase awareness of this often unrecognized and misdiagnosed syndrome, Von Hippel-Lindau (VHL).
VHL and Livestrong
- By lifeandhope · New reply October 28, 2009
- 5 replies
- Great news about Livestrong adding VHL to it's dropdown box of types of cancer!!! This is great exposure ...
VHL on Facebook and Myspace
- By Ariel · New reply August 25, 2009
- 16 replies
- Hi everyone, To start off, let me introduce myself; I am a junior in college, and six years ago, my mother and sister were diagnosed with VHL. Since my family found out about VHL, I have committed myself ...
Pheocromocytoma
- By beod · New reply July 1, 2009
- 5 replies
- I have whats called a "Pheo" in the medical world, or a tumour on my adrenal gland. I've started a blog to document my experience and provide a little insight for anyone going through a similar situation ...
S. King Mentions VHL in Short Story
- By Kristel · New reply March 24, 2009
- 2 replies
- The short story is "Ayana" in the compilation "Just After sunset." In the story there is a medical miracle that the doctors try to claim is just a misdiagnosis. One of the doctors says that he never trusted ...
VHL benefit concert
- By JennyBlue · New reply March 7, 2009
- 2 replies
- Hi all, I wanted to invite you to a recital I am giving in a couple of weeks. This collection of sacred and secular poetry all have the unifying theme of the promise of better things to come. Today is ...
Steve Jobs
- By jdwilli09 · New reply January 15, 2009
- 2 replies
- Did anyone else read the article about Steve Jobs? The AP just realeased an article where it says that he is taking a six month leave due to his health issues. It then says that he has already undergone ...
Alex Jay VHL day
- By AlexAnderson · New reply December 13, 2008
- 2 replies
- Hey, Cancerkid here. You know my fundraisers that I told you about? Well I have another 9 in may!! My friends in school are sooooooooo great! Instead of one location, I had so many volonteers that I needed ...
