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Financial and insurance issues
VHL can be a strain on anyone's budget. Here is a place to share ideas for managing finances and dealing with insurance.
Vhl Disability Status Question
- By Eug · New reply November 19, 2009
- 5 replies
- Hi, Just wondering if anyone knows whether Vhl is now classified as a disability, whereby annual MRIs/CTs can be considered part of essential routine health checks. For people with diabetes, the medication ...
FINALLY!
- By beccaloo · Posted November 14, 2009
- 0 replies
- I finally had my day in court...and I WON!! The whole thing started back in Jan.2001, and it's FINALLY OVER and we can move on! I applied for soc.sec.dis. in 2003 and after 2 denials, 2 appeals and 6 ...
GOVERMENT RUN HEALTHCARE
- By Rick · New reply November 7, 2009
- 19 replies
- I was diagnosed with VHL in 1980 and have had a total of 23 tumors either removed with conventional surgery or otherwise taken care of (radiosurgery). I am wondering if anyone else out there is concerned ...
Ethical Dilema
- By Sendur · New reply September 12, 2009
- 2 replies
- I have been operated for VHL tumors in Brain & Spinal Cord 10 years back. Currently have some VHL develoments in Eyes and being addressed with treatment. I am professionally very active and getting posted ...
Tarceva cost
- By CharlieFL · New reply September 6, 2009
- 4 replies
- Has anyone else been turned down for insurance coverage for Tarceva - and if so have you found any way to get it at a reasonable cost? Thx ...
The expense for DNA test?
- By selinalee · New reply July 21, 2009
- 2 replies
- Hi, I am Selina. My mother has just diagnosed VHL this summer. She has several tumors in her brain and spine, and several cysts in both kidneys and liver. This is really a frightenning news!!! My brother ...
Places To Stay At NIH??What housing list??
- By FridayThe13th · New reply July 6, 2009
- 5 replies
- Today I called the NiH and the lady whom I spoke with at this number 301-496-4600 acted like she had no earthly idea what I was talking about.I told her I couldn't afford a regular hotel up there and ...
Applying for Social Security Disability
- By beccaloo · New reply April 11, 2009
- 6 replies
- I read this article in my local paper on Friday. It was a true "AH HA! Moment". Now I understand why this summer we're "celebrating" my 3yr. Application Anniversary. BTW, I think I'm number 764,999! You ...
Denied Insurance
- By NikitaFirestar · New reply January 28, 2009
- 11 replies
- I recently was denied health insurance by Blue Cross, and I'm not really sure what to do. My mother suggested coming on here to get some help, so I'm open to anything! Thanks for your time ...
Health and insurance
- By marie3 · New reply December 11, 2008
- 4 replies
- Hello. This forum is very new to me, so bear with me. Since my son and I have been diagnosed with VHL, the bills are overwhelming. The screening alone -- MRI, CT, plasma, urine, ophthamology, ....not ...
Prescription Help!!
- By chrisg · New reply July 22, 2008
- 3 replies
- Hi, My name is Chris and I was diagnosed with VHL in 1985 as a 14 year old. In 2001, my urologist removed what was left of my kidneys putting me on dialysis for 3 years. Luckily, I received a kidney transplant ...
Walk-a-thon: Summer 2009
- By avjo131 · New reply June 9, 2008
- 6 replies
- Hello everyone! =) I have begun planning a walk-a-thon to raise money for VHL research. The walk will be held in the metro-Detroit region, most likely River Bends in Shelby Township, Michigan or at Stony ...
High cost of MRIs
- By bnewbegin · New reply June 4, 2008
- 9 replies
- I just got my bill from Mass General Hospital for my annual head, neck and spine MRIs. The total bill was $19,256. That's 20 grand for my annual checkup! How can this be? It just doesn't pass the straight-face ...
Insurance changing to Kaiser Permanente
- By AmyB753 · New reply May 22, 2008
- 2 replies
- Hi all, My son is covered on his father's health insurance which is changing soon from Care First Blue Cross Blue Shield to Kaiser Permanente. But his care is currently through the medical center at the ...
New Medicare policy - what do you think?
- By joyceg98 · Posted May 8, 2008
- 0 replies
- A colleague of mine posted this in the Patient Advocacy discussion this morning... what do you think? -- Joyce I attended a program on medicare reimbursement. This doesn't affect my practice directly ...
Travel Insurance for those of us in the UK
- By Myway · New reply May 7, 2008
- 7 replies
- Our local parish here in Wales has raised money for my son to go to Lourdes - he would very much like to go in August as there will be a pilgrimge going then with his old school. Does anyone know where ...
GINA passed the Senate! Please thank your members of Congress
- By joyceg98 · Posted April 28, 2008
- 0 replies
- The Genetic Information Non-Discrimination Act passed through the Senate last week. It was passed early in this Congressional session by the House, and the President has promised to sign it into law ...
I Knew I Disliked the Summer for Some Reason...
- By beccaloo · New reply March 12, 2008
- 4 replies
- This could probably go into the "blogs" section too, but it's really all about our up and coming financial and insurance issues. It's kind of long though, so I wouldn't be surprised if only a couple of ...
Finance and insurance in the UK
- By funmadjoker · Posted January 20, 2008
- 0 replies
- I'm in the UK and noticed its really hard to get life insurance, I was refused life insurance when I got a mortgage but luckily my other half, who doesn't have vhl, was able to get it on his. Also noticed ...
Insurance and clinical diagnosis
- By pamathis · New reply October 19, 2007
- 3 replies
- I have been clinically diagnosed with VHL but have not yet had the genetics testing. I am getting ready to move so have been putting it off until my new insurance kicks in and I can find a doctor/geneticist ...
