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Oprah's Big Give

wheelchairman36
  • By wheelchairman36 · Posted March 17, 2008
  • In Finding emotional support · 5 recommendations
  • I know lots won't know who I am because been a long time since posting. Oprah has gave 10,000 dollars to our local ABC affiliate to desperse among 4 organizations and the one has chosen me to recieve ...

CANNIBAS SHRUNK MY TUMORS

diane1805
  • By diane1805 · Posted March 23, 2008
  • In Medical treatments that worked for me · 3 recommendations
  • I just want to share my experience with you all. It started three years ago when i read an article on the internet about cannibas , stating that it was responsible for shrinking tumors in , it particulary ...

Need a friend

AlexAnderson
  • By AlexAnderson · Posted August 20, 2008
  • In Finding emotional support · 2 recommendations
  • I need to find a friend who I'm like. Someone who is picked on in school, has a disease, ya'know, the works ...

Opportunity in Chicago Sat May 31 - info about clinical trials process

joyceg98
  • By joyceg98 · Posted May 6, 2008
  • In Medical treatments that worked for me · 2 recommendations
  • On Saturday morning, May 31, Nancy Roach and Mike Katz are helping to convene a couple of focus groups of patient advocates at the 2008 American Society of Clinical Oncology (ASCO) meeting in Chicago ...

Cyberknife brain surgery

Raeanne
  • By Raeanne · Posted January 23, 2007
  • In Health management issues · 2 recommendations
  • Has anybody else experienced complications from cyberknife brain surgery? I had the procedure done in August of last year and unfortunately, I've become ill from radiation induced swelling of the tissue ...

tumors and syringomyelia

Kar

Is it possible I have VHL?

footballer
  • By footballer · Posted October 9, 2008
  • In Getting a diagnosis · 1 recommendation
  • Hi I am a 20 year old male and I was just recently diagnosed as having the VHL gene through genetic testing. Many of my family members on my mothers side have the disease and have had symptoms, including ...

Nano-foods: The next consumer scare?

gale
  • By gale · Posted August 1, 2008
  • In Health management issues · 1 recommendation
  • By Barbara Liston ORLANDO, Florida (Reuters) - Those consumers already worried about genetically engineered or cloned food reaching their tables may soon find something else in their grocery carts to ...

Bench Surgery

Hermvr
  • By Hermvr · Posted July 22, 2008
  • In Medical treatments that worked for me · 1 recommendation
  • Hi there, I have been diagnosed with VHL in 1999. It was first noted due to bad eye sight. After a number attempts of laser, that was not successful, the doctor decided to try and cut off the blood flow ...

Orlando VHL Conference/Meeting

gale
  • By gale · Posted June 12, 2008
  • In Finding emotional support · 1 recommendation
  • I hope this note finds everyone doing their best. Knowing this can be different for different people, we created a meeting with you in mind. Please come join us on the 15th Anniversary that the VHL Family ...

VHL Tests

Bandit00
  • By Bandit00 · Posted January 14, 2008
  • In Getting a diagnosis · 1 recommendation
  • I have a friend that went to the hospital one night for what she thought was kidney stones. After she got there they discovered a 10cm mass on her kidney, some cysts on her pancreas and some spots on ...

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